posted
I was asked to post an email message I have sent to my friends, family and acquaintances to get their involvement with the lyme petition.
I believe this petition is crucial to our solidarity as a lyme community and to show support to our legislators for the upcoming bill to improve diagnosis and treatment of lyme disease.
It is part of my daily ritual to come down to my computer several times a day to check the signature page... to read what people want the legislators to know about lyme disease and to see what the current number of signatures are. It boosts my spirit greatly to see the numbers grow.
Here is my letter: Hi,
If I had been able to have a proper diagnosis followed by appropriate treatment when I discovered I had Lyme Disease back in May, I would not have been sick throughout the whole summer until I could find a doctor who would deal with this.
Now I have been required for my health's sake to take a medical leave from work. Every night I give myself IV treatments of Rocephin, an aggressive antibiotic which has resulted in bodywide Candida. I take Flagyl, another antibiotic (oral) which leaves me shaky, fatigued and prone to emotional outbursts since it so stressful.
I am asking you to fill out this online petition to support a bill pending for congressional and senate review and (hopefully) passage.
I knew what I had and it took three months to find a doctor who would treat it. Others are not so fortunate and suffer for years leading to severe pain and often to cognitive and neurological impairments.
It took me visiting six different doctors from June 2nd to August 28th. They tested my blood five separate times, leading to five negative results due to the inaccuracy of the screening tests.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/