groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
for about the last 3 months I have stunk like a damp homeless guy and his 3 dogs --
I have been having to take 5 showers aday-
My pee smells Horiable and Very dark
About 6 weeks ago I started mepron -Again- for babs--
Now in the last 5 days my pee color has cleared up and it smells perty good(Perfume)
My BO is Much better also-- and almost smell good (Cake or Stake) not sure
About 2 weeks ago I had a crazy skin rash that poped out on my face and neck- Quickly 1 hour-
It was red and bumpy and it hurt somewhat- Dry -scalie- whitish this rash went away in 3 days(Poof Gone)
I also had a rash that poped out at the same time that looked like a lone pimples that Really hurt(nerve) in 5 places on me- (back hand -arm -elbow-leg-)
2 days later I also got some small white blisters that popped out on my Hands- palms only (many)
These blisters came from about 3 layers deep in my skin--
The blisters would form in 10 minutes or less- I could watch them - Crazy-
The blisters would break(Dry) and the skin around them would peal away-- Quickly--
the blister area is alittle tinder now---
I think maybe the Babs in my skin or Babs toxins in my skin and body are getting flushed out--or dying--
Over the last 2 months some of my Babs symptoms have creeped back--Damit--
over the last 2 weeks my nite sweats have returned (neck area only)not whole body- perty bad tho-
The heart palps have showed up again also- Not real bad tho --only at night-
Over all I am feeling perty good-- If I could get some sleep I think I would be doing Much better--
Im perty sure I have the Genius Book worlds record for-- No Sleep-- (before I got sick I thought sleep was a waste of time) -Ouch-
I sure hope the BO and smellie pee are gone forever--so do my friends--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
Actually, you said something interesting...I just fell into a babs relapse myself after 4 months of treatment -- stopped the mepron, and poof! Revenge of Babesia, volume 2: the nightmare continues...
I broke out in an acne-like rash over my chest, shoulders, and a little on my face. I wondered if maybe it is related to the night sweats, which are back with a vengeance.... clogged pores, maybe? Anyhow, the rash and the babs seem to be connected.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
| IP: Logged |
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Groovy ---- glad your feeling better. You always make me laugh ....... even when I don't think I can. Thanks for that ......
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
| IP: Logged |
posted
My son's feet used to STINK due to the babesia.
Posts: 758 | From now TX | Registered: Mar 2001
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
I think we may need some audio/smell footage of the actual stink
seriously, it does sound like a major die off with the toxins trying to find away out of your body.
As far as the sweat & heart palps. I think all hell may break lose and your symptoms may get worse for a time. Mine did. But eventually they will get better.
hang in there
yep. Having lyme really stinks. Big time. Literarly & figuratively(I know I shouldn't use words I can't spell)
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
Yup, had the rash and the stink for a few weeks while off meds. Figured it was because I added some animal protein and dairy back into my (otherwise macro) diet, at the urging of a nutritionist.
Am back on meds AND back to my mostly macro lifestyle and the rashes are gone and the stink is much more pleasant.
posted
Medical mushrooms can cause a person to smell peculiar too.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
Yep I think the rash is a symptom of Babs--
I will explain-- I have Lyme and Babs --Un DX 18 yrs-
Threw time I noticed that when a joint pain would flair up on a certian joint -(Babs)
I would get a small rash on that joint a 2 or 3 days before the pain flair up--
The rash was small red bumps with what looked like a small white scabe-Ruff--
the bumps were mostly spread out around whole body--not clusters--
Some of the bumps hurt when scratched- most did not -
When scratched some of the bumps had a nerve effect that you would feel the scratch in another part of the body- scratch hand--feel in on back--crazy--
All bumps Itched Real Baddddddd- Almost drove me Crazzier-Im Serious--
The experance that finally convenced me about the connection was--
the rash formed clusters of bumps on both of my shoulders- about 150 bumps per shoulder--
This was by far the most I had ever had bumps clustered like this--
3 days later when I woke up I could not move my arm -At All - I was face down in bed and I could not move -- Was Real Scairy-
The pain in my shoulders was Extreme-- Perty much lost the use of my arm for about 2 months--Ouch--
After about 8 months the Bumps (rash) started to slowely go away-- my shoulder pain also lessened also --
A year or so later- As soon as I added Babs treatment the rash started to lessen- Quickly-
Now after 14 months of Babs treatment- Also- the rash is almost compleatly gone--
The rash except for the Itching would be Easy for you over look as a symptom --
Im perty sure this rash would be real easy to over look (miss) at a doctor visit-
The 5 bumps I now have Look like a Bigger version of the rash above-- almost exact --and are going away -
I sure hope its these nasty little critters last day in the Sun Shine--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
I just wanted to add that I have "the stink" currently on Biaxin XL and also had it when on Zithromax, but not on other abx. For me, it appears when on macrolides only.
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
| IP: Logged |
posted
"3 days later when I woke up I could not move my arm -At All "
Is this a specific babs symptom??-Happened to me once (maybe when this all started???) Was quite frightening-had to actually lift one arm with the other to move it-
Wasn't tested for coinfections & only showing band 41 for Lyme-Is it time for the tonic minus the vodka
Don't mean to hijack a thread (again.. ) but seemed like an odd & familiar symptom you've related-trying to process it all! Sue
Posts: 249 | From finger lakes, ny | Registered: Jul 2006
| IP: Logged |
charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
tonic is good....use it.
Posts: 2804 | From Texas | Registered: Oct 2000
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Damn!!
The rash was small red bumps with what looked like a small white scabe-Ruff--
I get this on the front of my ankles!!!itch whoa Ill sometimes rub them with the heal of other foot and if not careful done in past scratch till bleeding.
Some of the bumps hurt when scratched- most did not - Me too
When scratched some of the bumps had a nerve effect that you would feel the scratch in another part of the body- scratch hand--feel in on back--crazy--
Had that my mother use to call it sympathetic nerve pain which I get.
All bumps Itched Real Baddddddd-
Yep!
Question do you or have you had sweats chills high fevers now or in the past??
And are you weak and tired alot poop out easy sweat easy??
And I have smelled those smells you described it is intermittent with me smells like sweaty feet sometimes or sour smell.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Well, I stink too, and I'm not taking abx - just natural stuff.
*sign* Sometimes it is so bad that I'm tempted to just burn my pajamas instead of try to wash them.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
| IP: Logged |
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi all
Yep --Im 100% sure the stinks and skin rash are symptoms of babs--
A few days ago I upped my mepron dose to 3 tsp spread threw the day-
I have been herxing perty hard -- yesterday I felt so bad I could bearly sit in a chair-
Im Real Tired -muscle aches-ears ringing- night sweats(neck)- the stinks - chills and all-- My temp has been hovering between 100 and 97F-
My skin is somewhat peeling on my whole body--
Today I woke up feeling perty good-
Im thinking the babs is trying to make a Last stand-- so I am going to stomp on it--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
posted
For me body odor is a symptom of babs. Sorry you've relapsed. I hope you beat it back into remission easily and quickly!
Posts: 925 | From California | Registered: Sep 2004
| IP: Logged |
posted
yes, i have babs and used to always be searching for that putred stench that i was sure was coming from my dogs farting... til one day they were no where to be found, just me... and the source was discovered...
I think thats why i still have my dogs, just so I can blame the curious odor on them when others question! (kidding...sorta)
Anyway, they cant be blamed for my breath, which could literally drop a cow on a good day... and... I guess i now know why i got such huge ugly boil like pimples too... never realized it was from babs and its one of those questions that always gets forgotten during the doc visits...
-------------------- well i know a disease that these doctors can't treat, you contract on the day you accept all you see... Posts: 97 | From nor cal | Registered: Oct 2006
| IP: Logged |
posted
Jay-Pm me about your Dr.-weren't we seeing the same NP in Austin? Who do you see now? Jean
Posts: 247 | From san antonio,tx | Registered: Oct 2004
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
((((((Jay)))))
Hang in there
"We must accept finite disappointment,but never lose infinite hope"...martin Luther King
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
posted
What is the deal with the stench? My urine and sweat smells TERRIBLE and I am not on abx right now. Is this a Lyme symptom or a symptom of any other disorder for that matter?
Posts: 331 | From virginia | Registered: Nov 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/