I have been around this board for about 4 years so I am not new.
but the last two years, I just was too sick to read often or continue to post and very depressed.
Hopefully some longtimer folks will remember me, I hope. Just a quick refresher on my story-simplified.
I was bit in 1996, sought treatment after tick was removed which was attached at least 24 or more hours,
I did not know what it was till after it fed & engorged..Thanks for any info and help.
I have a hard time understanding things so please keep answers a bit non- technicle if possible.
THen got the classic bullseye, didn't know about lyme but thought it may be RMSF (because of the fevers were so bad).
I didn't have insurance at the time...so had to wait for an appt. at the low -income based clinic ..
took 3 weeks to get in there, but still had the rash & symptoms. The DR. still did not even look at the rash or test me for anything .
Dr. stated "NO" RMSF because it is very rare he said and never in GA.
Then said if anything it would be LYME, But we don't have that here either. It's immpossible.
I told him I had been to TN & the carolinas all over the mountains up that way the weekend I was bit.
He said its just not in the south. Stupid me asssumed he must be right since he is a dr.
I had all the clasic symptoms incl. fevers, aches, fatigue, sinus congestion, and fluish symptoms along with others.
Sickest I had ever been at that point in my life.
He sent me away believing him and with just Allergy meds and so forth - NO ANTIBIOTICS. ******************************************
I also had a rash on hands & feet that he said was exema but I had that before the tickbite and knew it was not exema as the creams never worked for it.
7 years passsed with a wide range of odd and seemingly unrelated symptoms, Incl. arthritis, depression, etc.
I went to several Dr. and it was usually about same allergy meds, etc., but no one ever treated me for or tested me for any type of infection .
Then in Dec. 2001, my cognitive functioning, problem solving, and memory became severely affected.
Short term memory was near non existent , could not train for a position I was previously 10 times overqualified for that had come available within my company.
I was embaressed and declined the position after trying to train for a week. I had asked to train for it because of severe joint pain in knee, wrists etc.
I was a waitress at that time and my extremities were weak and I was having great difficulty doing my job(for 20 years pryor I had been a restaurant manager or bar manager/tender .
I signed up for company insurance immediately (just happened to be december when I realized the cognitive issues .)
Eventually the following summer SEPT. 2002, I connected the dots and it led me to lymenet.
I had ALL the symptoms except heart problems at that time.
I knew I had my answer because of the tick bite, rash from years ago before I knew about what Lyme was. I found a LLMD via referal from this board. *********************************************
I tested positive with ease even by CDC standards through MDL,. I got the picc line and began treatments, incl. treatments for babs,
But even after 15 months IV an fluctuating symptoms, I was very bad off in the end- worse than when I began in many ways ,
But I did have initial problems with several meds one which initiated seizures which it took months to get rid of
(stopped only after I found out for myself it was the neurontin and not Lyme causing it-
the seizures stopped when I lowereed the neurontin dose to about half the prescribed dose.
Seizures have been gone since after being extremely bad for months- multiple time a day, and many times a week.
They were actually caused by the Neurontin -was given for off label use, nerve pain & restless leg syndrome,etc.
The other problem med. next which was Primaxin IV ..which I was very allergic to and immediately had reactions
I called and reported the reactions and how intolerable it was, but was told multiple times to just slow the drip down, further and further
eventually it as taking 2 1/2 hours for each infusion (2 x day) with bad reactions every time.
That med should have taken no more than 30-45 minutes to infuse .
Finally after 5 weeks of the Primaxin even at the slow slow drip, my body had had enough, and I burst into a full body rash.
with the ususal throat tightning, ill feeling etc.
The LLMD saw the rash and they finally agreed it was a drug allergy after trying a test infusion in their office which only proved it was the cause.
I had suspected that it had caused the bad rections all along.
Next after a breif break for the rash to heal up, they changed the IV med.
I had initial good results with many herxs from most of abx. and slight return of energy at one point, even photophobia and some neuro stuff improved.
But later returned the longer I stayed on abx. the more severe some symptoms were not ever eliminated, but many milder symptoms did improve.
I was always herxing it seemed. After 11 months of Rocephin in combos with other IV and orals - treating very heavy mind you,
I was put on Cipro / Doxy along with IV clindamycin in rotation every two weeks with Rocephin abnd Zithro the other two weeks of each nmonth.
Somewhere in there a week of metrinazole too., and a wide array of other symptom meds .. incl. Bextra for inflamation, which is not good with The Cipro by the way.
I also was tested and treated for the run of the mill coinfections, mycoplasmas, etc. and treated when it was needed.
After beginning Cipro -oral..I had severe tendon problems from my 1st Cipro doses and could not even walk. So after a couple days I refused to take it.
After I checked the doxy by itself and I was fine, then tried the the cipro again alone and I was having terible tendon, joint pain again.
So I gave up the cipro after a few days the 2nd time.
The doctor agreed at my next visit with my decision but about 6 weeks later the NP insisted I do at least a week each month.
Then came levaquin IVs instead of Rocephin and other IV combos and other combos of ABX,
I began to really decline from the 1st time I began Cipro and ended up with:
severe back, neck, wrist, ankle, calf, shoulder, achilles pain, and damage which started the day I took my 1st dose,
Some of - not all the additional damage and pain continued to form later when I was put back on it.
Then while on Levaquin, I gained additional pain in these areas and some which is very permenant it seems as a result.
I began treatment with a Chiropractor within the 1st week I used ever Cipro due to the increase in pain and problems from the Floraquinalones.
I see him now still and his MD to this day.
After 16 months of treatment with the LLMD and the pain of the traveling back & forth every couple of weeks and compounded by major engine problems with my older car.
The car went went down, and it forced me to miss a couple appointments, which I had to cancel due to breaking down in route.
I gave up .. after all I was on very heavy doses of multiple types of daily IV abx. with combos orals abx. daily.
I was actually significantly worse than when I began.
I even had to stop working which I had barely managed to do for the 16 months of treatment- so I could remain insured to get well, which was very all very difficult .
But because I canceled the 2 appointments in route about half way there, each of the times during that past 2 weeks, when my engine blew out they would not let me just take a short break for 3 more weeks while my engine was replaced completely.
The doctors staff only gave me 10 day to get there to have my line removed or they would remove me from his patient list.
I told them I could not get there and offered to see a local Dr. or hospital to get my line pulled if thats what they wanted.
Even though I was not yet scheduled to come off IV yet pryor to the car trouble. That was not aggreeable to them.
Next I got a nasty letter stating I was released as a patient. Fed up at that point, I did give up for a while.
I have since been treating the symptoms instead and I do have a local doc who has worked with my back/joint problems and will provide oral abx., if need be when I ask - here and there.
My pain in back, hip,other joints are pretty bad but R HIP is beyond any pain imagineable
(I live on Vicadin literally and am still in constant pain.. so that began to take a real priority)
My body was tired & worn out after being on the abx so long and working too, and traveling so far all the time.
I have nearly every Lyme Symptom I began with except the ones involving heart so far.
I acquired a huge amount of symptoms I did not have before starting abx. treatment/ w/LLMD with longterm IV.
I also have quite a few things going on that are outside of the Lyme puzzle but started while on Lyme treatments; so this has me confused a bit.
I even did develop high blood pressure and kidney damage both while on long term IV Lyme abx.
Still also have these things now two 1/2 more years later.
I just recently found out a few viral things that I was never tested for .. to add to my Lyme puzzle and have also have had alot of recent MRI's come back with somewhat strange results.
I had a brain Spect that showed normal to the best of my knowledge 3 years ago.
I have found out I had or have Parvo b19, and EBV, and confirmed that I had HSV-1 (that one many many years I knew) and HHV-6, and back when I was in Lyme treatment, I also had Mycoplasma Pneumonia as well for months while on IV abx..
In addition the severe back both lumbar & cervical Pain, which began after Cipro use have ruined my life.
I was diag. w/bilateral carpal tunnel, DDD, FM, CFS, and now the recent MRIs additionally say some really strange things.
Here is what is significant in the MRI reports: ***********************************************
Wrist MRI (L) has several lunar bone cysts, and ligament perforations, fluid, and the earlier emg/NCV tests and ultrasounds and strength, pinch grip test had also confirmed Neuropathy and lots of nerve damage and bi-lateral carpal tunnel in both wrists.
Right wrist MRI showed:
has a ganglion cyst and a 3mm thick tear in the ligament. Along with the similar nerve damage and carpal tunnel finding from the previous EMGs./NCV and other tests done earlier.
similar to the other wrist but all the weird MRi stuff I never knew about.
My lumbar region & R Hip pain, radiculopathy, which started in the lumbar region initially has
also osteoarthritis in R. HIP, deep constant severe pain which effects my gait & movement from what we assumed was the lumbar radiculopathy, Degenerative disc disease, and buldging or herniated discs.
but the HIP MRI just found additionally in both hips large mass in one and a lesion,and cyst thats the (R)and Cysts in the other (L) along with a mass but that sides usually not nearly as painful as the right.
They also found cysts in several of the lumbar nerve root sleeves 6, 7, 8th nerve roots sleeve slightly asemetrical to the right. possibly compromising the 7th nerve root.
In the lumbar & cervical region:
Too many bulging disc to even note but more than 10 or more those are in both cervical and lumbar and loss of cervical lordosis - severe
(curve of neck, also loss of joint & disc fluid), thorasic curve-mild of spine, Sponylisis, several herniated nuclear pulposus/ and discs, and compression of nerve root was previously diagnosed but unclear on the MRI, and spondylisis was noted on this MRI
I also had earlier dx. of spinal stenosis and a right arteral claudication was found recently -( thats R arterialleg clot )..( which is next to have taken care of by the way )
Next I had a brain MRI - and I fully expected to see lesions or white spots due to all the memory loss, cognitive and multitude of neuro issues.
This one a new neurologist who seems very clueless about Lyme wanted to read the films himself. The nurse just callled me and said it came out clean - can that be possible or does this require a certain type of neurologist .
I will tell you that I do not trust his reading of the films or some of his remarks in our initial session.
Within 3 minutes, he without even looking at the stack of medical records and test results I brought to my appointment, he made the asumption just because I am also being treated for depression & anxiety that I might be better off seeing a Phychiatrist.
I said and since I am already being treated for those symptoms now, what is he going to due about tremors, memory/cognitive, IQ loss etc?
He didn't answer and went about doing a slight exam. then ordered the brain MRI.
" Is it common to get a normal MRI if you have Lyme with severe Neuro problems, and is there a better test to see if there is something that will show?"
Just wondering if anyone is having any of the Cysts, and strange ligament damage found in the MRIs?
Also how about serious back, hip, lumbar pain & problems.. if you have a diagnoses and know something let me know.
I am also wondering is there a antibiotic that causes Cysts, massses, lesions etc .
Is there an abx. that causes kidney damage and ligament damage ?
Any helpful info is appreciated.
If you are experiencing any of the other stuff that is back related etc., you may also let me know what you have been Dx. with; if you think it may help.
Thanks - sorry it was so very long. Let me know what you think please.
The neuro dr. is not very good,
new pulmonary Dr. is excellent as I also have asthma, and COPD . Sandy
-------------------- Sandi ( badkitti30043) Posts: 664 | From Atlanta Ga. | Registered: Aug 2002
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Badkitty. Welcome back. I'm sorry you've been having such a hard time.
Well, it looks like your lyme had about six years to disseminate. That's a long time to wreak havoc.
I'm sorry that treatment didn't seem to help you. Or perhaps it did help you, but you have so many other problems concurrently that it's hard to untangle what's what.
Lyme can surely cause a lot of pain, but I don't think it can cause structural damage, such as stenosis and bulging discs.
It sounds like you're ascribing your current problems to your long term antibiotic use. Is your present doctor suggesting that, perhaps?
In fact, the 'cysts, masses, lesions' you list are much more apt to be caused by lyme than by antibiotics.
The school of thought is that it is far riskier to NOT treat lyme than it is to try and treat it.
Somewhere between 10-20% of people with neuro lyme have negative brain MRI's, though those same people will have a much higher rate of positive SPECT scans. You should always request a copy of your tests, including your MRI, and read it yourself, since neuro's often lie.
You say:
quote:"I began to really decline from the 1st time I began Cipro and ended up with severe back , neck, wrist , ankle, calf , shoulder , achilles pain and damage which started the day I took my 1st dose,and some of - not all the additional damage and pain continued to form later when I was put back on it and then while on Levaquin I gained additional pain in these area's and some which is very permenant it seems"
You also say:
quote:I have nearly every Lyme Symptom I began with except the ones involving heart so far,and acquired a huge amount of symptoms I did not have before starting abx. treatment/ w/ LLMD, with longterm IV and I also have quite a few things going on that are outside of the Lyme puzzle but started while on Lyme treatments..
It sounds to me like you couldn't tolerate strong meds although they did help you for a time. It also sounds like you have a lot of musculoskeletal things going on in addition to lyme.
However, there's a distinct ring of a person wanting (perhaps at the suggestion of a new doctor) to lay this all at the door of her LLMD. I do not think that would be fair. Perhaps that is not your intent, but it sure reads that way.
If your LLMD got this drift from you, I have no doubt why he wrote you a goodbye letter. It is one thing to have various things be tried and fail; it is quite another to feel any blame assigned on account of it.
I do hope you find some help soon and are feeling better.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Hi Sandi, Yeah I remember you. Sounds like you've been and are going thru lyme hell.
I don't know where Michele M gets her info but YES lyme does cause structural dammage. Even regular arthritis can and does enter soft tissue and causes dammage.
My spondylosis is what the ducks called ankylosing spondylitis with my initial diagnosis.
Some ducks have told me it's "degenerative joint disease"...but have no clue as to it's cause.
I guess we know what the cause is now don't we...
You obviously have been hit the same way.
You also mention about three flouroquinalones you've been on...levaquin,cipro,ceftin...these all cause tendonitis. Working while on these abx's could have led to further tendon dammage.
The cysts you show on tests is the cystic form lyme hides in when attacked by abx.
Ganglion cysts are common with lyme...I had one removed from the bottom of my left foot early on.
Mri's I have had done show little brain lesions...not noticed by neurologists or overlooked...but read by llmd as lyme related.
A lot of lymies get missdiagnosed with MS because of lesions noted on mri's.
Pet or spect scans are better indications of lyme infection as utilized by Columbia University's lyme/cognitive extended abx therapy study.
You're in some really bad shape...It was difficult to read your post but I did'nt notice you ever being on rocephin or ceftriaxone or vancomycin...
You do want to take metronidazole to break open the cystic form...but in conjunction with another abx either orally or IV...
Have you tried andy Ketek...a macrolide which should help your mycoplasmas and babs?
This is oral....which helped me a great deal.
Hope this helps you in some way.....anything else I can help with let me know...zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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First of all everyone here should know when Sandi was being treated she was seen by a top LLMD office, (recomended by this very board).
While I have no answers for you Sandi, I am here if need to PM someone.
I know you must be sick and tired of all this Lyme crap. I know I am.
The only advice I can offer and I know you don't want to hear this but, try another LLMD. I know easy to say and hard to follow through with all you have been through already.
I do believe the cirpo type drugs can cause lasting damage. With me it took months of getting back to normal after only a month on them.
And I also think Tony has given you some sound advice.
Good Luck Sandi
-------------------- Stella Marie Posts: 694 | From US | Registered: Apr 2005
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-------------------- Stella Marie Posts: 694 | From US | Registered: Apr 2005
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bettyg
Unregistered
posted
Sandi, please use my BROKEN up post on your complete long story in your 1st post; it's too much SOLID BLOCKS OF TEXT still after you broke up a little of it.
Illegible for those of us with neuro lymie; can't comprehend/read things like that.
To do this, go to your 1st post, and click on PENCIL, do a block delete of ALL BODY CONTENTS.
doing a block delete; use your control key and right arrow key going from where you start talking until you finish ok.
then hit the EDIT SEND button.
Now go to MY post, and do a BLOCK/COPY of all the text I broke up for you making it legible reading for us all.
same thing, use the control key and right arrow to HIGHLITE all of what I broke up for you.
now use RIGHT ARROW and chose COPY.
Go back to YOUR top post, click on PENCIL and now PASTE it into your post.
Use right arrow mouse and click on PASTE. When done hit the SEND EDIT button.
Sandi, I spent 1.5 hours breaking up your long story that was continuous text. Thanks so much for using my efforts so othes can read this and CAN HELP YOU WITH YOUR QUESTIONS. thank you. Bettyg
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quote:Originally posted by bettyg: Sandi, please use my BROKEN up post on your complete long story in your 1st post; it's too much SOLID BLOCKS OF TEXT still after you broke up a little of it.
Sandi, I spent 1.5 hours breaking up your long story that was continuous text. Thanks so much for using my efforts so othes can read this and CAN HELP YOU WITH YOUR QUESTIONS. thank you. Bettyg
Sandi, I was able to read your post just fine as you posted and I have a "Neuro lymie brain" as Bettyg often describes. Who would spend 1.5 hrs breaking up someone's post?
Feel free to blow anyone's posts off that tell you how to post!
I would just like to say sorry that you have been suffering so long. Perhaps if you are unhappy with the care you received from an LLMD you can find another who can help you as you desire.
Good luck and welcome back to lymenet!
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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posted
Hey BettyG, I appreciate that you did all the work breaking the post for me Bettg and I finally remembered how to go back and edit it ..
so those having trouble can read it- I had hoped I broke it up enough originaly but was tired after writing all that which took along time as well.Thanks and I will do as you suggested as well.
-------------------- Sandi ( badkitti30043) Posts: 664 | From Atlanta Ga. | Registered: Aug 2002
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posted
Hi Michelle You are right that it had a long time before dx. for it to get a good hold on me, but I am not trying to lay anything on anyone.Just what is- is you know. I don't blame anyone..
I adored my LLMD , and did everything I was told to do and likely treated LYME much harder than at least half of the Lymies ever do, but yes there were a few meds I had reactions to that were severe.
Actually the Imipenim ( primaxin )is one of the ones that made me the sickest because I was allergic to it, but it did also help alot.
Later many of the symptoms returned though as I was on other combos.
Oddly while I was on the one and only break I ever took - to heal from the drug allergy /rash I felt better than I had in years.Fatigue disappeared and energy was back , clearer thinking, no depression even though I looked like I had the chicken pox from the drug allergy.
But it was short lived.lasted two weeks till I started Mepron and Zithromax and then added Rocephin IV and I never felt that great again, later during next 6 months after beginning the rocephrin I had some different mild improvements and occassional good days, until I was told to switch on and off w/ other iVs ( Clindamycin Iv I think)and cipro/doxy combo too..followed by many many other combos .
Rocephin was also a really good med for me but what one med helps , sometimes another med comes along and messes up it seems.
As I said the longer I stayed on the strong doses the worse I got overall . ,an average day would be IV Rocephin , and IV Zithromax - 2x infused),mepron- for babs , metronazole and or 1-to 3 doses of one or two other orals abx. .Plus all the symptom meds, like trazadone, bextra, vicadin,neurontin, actigall,diflucan and much more.. plus supplements. So I did treat heavily until I just had nothing left to fight with.
Michelle I am really curious about one thing you said about lyme can casue cysts - You have heard of Lyme casing actual masses, cysts and lesions - ( not the cyst form of lyme) but actual CYSTs??
If so I did not realize that and would be interested to know much more and why & how ..do they still need to be removed if causing problems?Will they go away with antibiotics?
Thanks for remembering me all, Tonyz I had been on about 11 months Rocephin during the 15 months of IV care .. but did not get the option of Vancomycin from by LLMD even though I tried and did actually ask for it instead of Levaquin-
it just was not a med he was using at that time and he was not willing to go outside his copmfort zone, who knows he may be now.
I think I recently was on Ketek for something else - if so I had no bad issues with it.I will give it a try if its not in a family of drugs I am allergic to now.
This year I also developed a new drug allergy and it was to amoxy- which I had always been fine with before but turned blue could not breath, talk ,walk or anthing from throat closing,lack of air.
It was last december, The ambulence guys came and tried to insert all kinds of tubes etc, and the IV the tried to insert spewed blood all over the room( my kitchen ) freaked everyone out as you might imagine
- so I went in to the hosp. in my blood soaked top and pjs..
I assume there was something going on with blood pressure or heart at that time from the anaphalaxis from what I was hearing by the ems people if it were not so scarry it might have been a funny sight I imagine- with IV FLUID AND BLOOD GUSHING upward OUT like a fountain ,
I just closed my eyes & thought I was a gonner, heart was racing,could not get air at all then when my face & lips turned blue you could hear it in all their voices- the worry,
I don't think my fiance has ever been that scared in his life so he could barely answer questions and he even took two years of med school a few years back too
and you would think he would be used to all this after all these years of lyme plus the basic med school info .
...But I could not even answer med. questions to EMS or anything, it was a severe anaphalactic reaction -
I was taken in by ambulence and kept at least 20 hours in the ER and tested for everything from kidney stones( because when everything was going on my hip pain traveled around to my frount, tremors were severe ,
... there was another BP med I had recently began for blood pressure so no one was quite sure the cause yet, it turned out I had taken he amoxy for a cut on my finger that immediately became infected within 24 hr.
The amoxy was the main thing they came up with was anaphalaxis.Oddly while in the ER the finger cut infection spread up my arm within an hour and they put me on Rocephin for that and then cephlexin orals later to clear that up - so who knows.
.... I had been on amoxy many times prior without incident too..so weird
STELLA- Thanks I remember you well too..I do plan to eventually get another LLMD when finaces will allow me to return to a different LLMD,I just need a different approach as far as lyme goes, .
I would like to see Dr. C. at some point and will eventually but it may take a bit longer than I would like to be able to do that.. I have Southcare Insurance but do not think its accepted-
I may be wrong though about the insurance. But anyway can not finacially manage it at this time either way..Would like to do the Heparin therapy eventually.
I agree on Cipro and other Quinalones as far as damage goes now I just have to figure out how I got here and try not to make any of the same mistakes,I am just trying to discover if these are all related or what.?
Then I need to determine what is unrelated to Lyme, or Lyme treatments and how to best fix these things.
Stella I am glad to hear that any problems you had with cipro have cleared.
So far its appearing like I may have 3 surguries before the end of the year and I have never even had much surgury except stitches, or the picc line., D&C once,Childbirths twice and never any repairs really.So a bit freaked at that thought too
.And still waiting on tons of other testing etc to return that was done recently.I was referred to a new Dr. for the Carpal tunnel before they even found the cysts and ligament damage in both wrsits, so not sure if he can fix it all or what...
..the neuro had asked me did I want to get it fixed ? I said yeah and ended up with this appointment for carpal tunnel next week too,
after taking to the new Dr. for carpal tunnel I will ask for all of your input /advise regarding whatever they want to do..I trust the general concensous better than the individual duck- when it could have any bearing on the Lyme or my overall health.
I also have to have something done with the claudication in the r leg artery- and I am guesing since they said see a vascular surgeon - it may be surgery of some sort and everyone keeps pressing me to find a vascular surgeon before a clot breaks loose.. so its coming up also.
Some of the initial things like tendon stuff Disappeared after I first stopped Cipro But the back /hip pain had really hit me hard.It has yet to improve significantly .And there are some areas that have been in severe pain ever since , the achilles stuff went away as soon as a few days passed, but swelling( edema ) continued.
I also have never had Hyperbaric for the Lyme in conjunction w/ abx. which I will do if I am approved for retroactive SSDI.Then I will be able to afford it - do not know if Insurance will cover that one either.. Thanks for caring..
IMANURSE Thanks, I do agree with you as well, since everyone has a right to write what they wish..and how but I DO KNOW SHE ONLY MEANT WELL, so I can understand the motive behind the request -
I too have a hard time reading large blocks - it was just so long a post when I started breaking it up -some stuff did not seem to need to be broken down much more and I was tired too.. sooo I hoped it would be good enough.
.. but I fixed it for her and any otheres and I appreciate all the time she went to.. but at the same time.. a simple request to break it up would have been fine,
I would hate to have anyone waste that kind of time on just reprinting my post- I will try to do it in the future...BTW every one just ignore all the spelling screwups.
Cant recall who suggested to get MRI - on disc , I think it may have been betty or stella but thats an excellent idea,
I did not relize you can get it that way, I just kinda wish the the MRI radiologist had read it instead , But I will do it, Does this cost usually a seperate fee?
I go back to the neuro-duck in a week and maybe he will say something worth hearing , God I hope so, its the worst trying to swim in the duck pond.
I tried doing a search for a LL neuro through Seeking DR. a while back but never found a local one.I am in the atlanta suberbs.. you would think in a city this size you could find quality help.. Thanks all
-------------------- Sandi ( badkitti30043) Posts: 664 | From Atlanta Ga. | Registered: Aug 2002
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bettyg
Unregistered
posted
Sandi, thank you so much and I deleted my broken up post you copied to the top.
You needed so much help in so MANY different medical areas that there was no way to be abe to obsorb so many!
That's why I spent the amount of time breaking it up for you so YOU GET NEEDED HELP being a long-time member!
Yes, you are right; I only meant well. I just SOB, scroll on by, imanurse's comments as all she does is find fault. Yes, it takes one to know one! lol
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posted
It takes one to know one.... That's hilarious Betty. Sounds like something my kindergardener would say!
Thanks for the good belly laugh! ROFLMAO!
Yes, ligaments are one of the niche areas that BB likes to hide, and so is the brain. I can't recall right now others discussing actual cysts from Lyme such as those that show on your MRI, but that doesn't mean they don't exist. Lesions on the brain are well known to be caused by Lyme. This is well documented in medical literature. However, one can have cognitive issues associated with Lyme without the lesions evident on an MRI.
A better tool to detect hypoperfusion to the brain is called the SPECT scan. This is what Columbia and Dr. F use. He is currently doing a study on the use of SPECT imagery for Lyme vs. other organic brain issues.
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Levaquin in some people is nasty Iam one of them I was on High oral Doses around 6 months when I first started getting treated. I have snapped torn 3 tendons and that hurts bad. To the point I saw you were on it Iv levaquin What I can tell you is ever since I was on it I still get some deep soreness I know its the damage rom levaquin but Now years later I dont get it very often the deep pulling along the bone.
What I have noticed is the time it took to recover from levaquin side effects and what has helped was Magnesium and B complex vitamins and Cq10.I hope this will help you at least elliviate some of your troubles. It will take a couple of years to really notice a differance from the suppliments I told you about.
Personaly I havent taken Iv antibiotics on purpose because at those levels in the blood especially levaquin it already penitrates just fine orally.
Good luck I remember you too
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