posted
About 1 1/2 years ago I started experiencing severe joint pain, insomnia and extreme fatigue. I tested negative for lyme and my doctor told me that I was getting older, stressed out and to deal with my systems and try to take it easier. (I had just turned 40, was playing tennis 3-5 times a week and accepted his diagnosis-stupid me ;()
The only reason I finally got treated (with 3 weeks of abx-only) was that I got bit in June and got a rash. My new doctor said that I probably did I have lyme last year.
Anyway, before being diagnosed with lyme I treated my joint pain with glucustomine chondrotin with msm. This was very effective and I was able to stay quite active. My new doctor said that this "feeds" the lyme and I should not use until I am done with the abx (he now says 6-12 mos)
Does anyone know if it is ok to take supplements for the joint pain? I would like to try some light weight training in addition to walking, as I am beginning to feel my old fit self disappearing.
Posts: 15 | From Rhode Island | Registered: Oct 2006
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posted
I do not know about the supplements issue... I have not heard that one before. I was taking them at the same time.
Actually I don't think there is much point in trying to starve Borrelia to death as they can stand alot more deprivation than we can. That is just my opinion though. Possibly the Dr. knows something I do not.
One thing I discovered quite by accident is that diathermy helped my Lyme related joint pain alot. In fact it pretty much got rid of it. I was investigating Rife Machines (controversial subject here), and was in the process running tests with some early vintage diathermy units. I think the modern ones would do the same thing.
I am speaking of the RF heat producing machines used by Chiropractors, Physical Therapists, and that are sometimes in fitness clubs. You might try it if you can find one somewhere convenient.
Posts: 714 | From San Antonio TX | Registered: Oct 2004
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posted
You might try just the MSM or a high quality mangosteen juice. It is great for inflammation!!!!
I've taken MSM the entire time I've been in treatment. I would think it's the glucosamine that would be in question.
Does your LLMD believe in ANY supplements?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I've used MSM from time to time with a Lyme naturopath's blessing - and my Lyme M.D. knew about it.
I've never heard about glucosamine being an issue, but I was taken off L-Glutamine when I was diagnosed with Lyme so who knows, maybe that's an area of confusion.
I'm a big fan of Xango too.
You might ask your Lyme doctor about Kaprex by Metagenics. It's for joint pain, but is not glucosamine. Any products by Metagenics need to be ordered through a healthcare professional. Both my Lyme doctor and internist recommended it to me.
The only topical cream that has worked on me (and I think I tried them all) is Topricin at www.topricin.com - they are having a sale now. I have no financial interest in the company - but it helped me with some muscle pain, and I know one person with knee arthritis (non-Lyme) who swears by it (she was the one who told me about it).
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
Thanks. I will have to take a trip to the natural food store tomorrow.
My doctor has told me to take coQ10 for energy and that I could take a multivitamin twice a week.
But to be honest, I have gotten much more advice from this site.
Posts: 15 | From Rhode Island | Registered: Oct 2006
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stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
a recent study just came out several months ago. this report said there was no significant changes in the joints by using glucomine, chondroitin or msm. the drug companies are making mucho bucks on this stuff if it doesn't work.
so take it?? better of with ibuporfen 600 mg three times a day for a month or two and see what happens. you must however, take it every day 3 times with or without pain, since you are using it as an antiinfamatory.
mangosteen is looking good as a good antioxidant and antiinflamatory.
so whens or big match??? just started palying 2 days ago after 6 months in bed, so you might be able to take me now.
i will return to my previous form within 2 weeks and better form when i loose the 15 pounds i gained in bed.
i have court 9 saved for next week. saturday morning 9:00 stadium court at my club in West Palm beach. yes i was lucky and had an excellent private disability policy that covered me for occupation only. a must i think.expensive but worth it. they don't like to pay so 6 lawyers and %40,000 and 4 years, i finally got paid, 1 month before bankruptcy.
har-tru just redone. weather 80-85 degrees and always sunny.
docdave Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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posted
West Palm Beach sounds great. its starting to get chilly up north.
Actually, I played a little doubles the other day and barely made it through the 1 1/2 hour. But since my friends are 20 years older and one of the gals is relearning tennis after brain surgery, I fit right in.
Kind of depressing for me b/c the old me could play singles for hours.
Anyway, before being diagnosed with lyme, I found the glucustomine supplements very helpful. I guess I would rather take supplements than Advil every day.
Suprised to find the mangosteen juice tastes good.
See you in the dead of winter. Hmmm--I wonder if i will able to go back in the sun my then?
Posts: 15 | From Rhode Island | Registered: Oct 2006
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mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
I think that doubling up on the fish oil is a good idea. Also, I'm using a tart cherry concentrate called Cherry Prime which is helping me.
Posts: 2097 | From PA | Registered: Jan 2004
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