Topic: too many things going on - I don't know what to title this
trueblue
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I know there are others much worse off than me and I'm sorry if my complaining all makes me seem like a wimp.
I imagine with all my whining few have missed that I've been having a crappy time of late. The LFTs are going down slowly, I'm very very tired and have ongoing abdominal pains. I have been basically unable to get answers from the local docs and am having trouble eating or not eating.
I've been sleeping usually most of the day and getting myself moving around 3 in the afternoon. I'm finally hungry enough to eat something substantial by then but within an hour or 2 have palpitations, inflammation and a massive increase in headache/neckache.
The headaches vary somewhat in frequency and intensity. They are mostly temple/frontal massive pressure headaches. Like the bones in your face and head want to blow out. There is also neck involvement, varying degrees of neck aching and stiffness, radiating up into my head and down my spine. I don't know what comes from what only it's not great fun. There a whole lot of back and rib pain along with the abdominal(upper and lower) crap.
I've woken up the past few days laying on my back and have been afraid to move because abdominal pains may start again but after laying there for a few minutes realize I can't just sit up or roll over. I have to reach over and pull myself up with my arms. (This morning I pulled myself up, broke into a sweat, headache started immediately along with palps and feeling out of breath feeling.)
I've been having a lot of trouble sitting for a long time (like I must have a chair with a back or sit cross legged on the floor.) But it's getting more and more difficult and painful.
Also annoying is the crawling/goosebump feeling I'm getting in my scalp mostly one side or the other it moves and sometimes moves over an entire side of my body.
I have constant fevers starting off low in the morning and rising by evening none of them higher than 100.5 usually lower. Waking temps range from 96.8 to 98.
I'm nauseous and/or queasy a good part of the time, which is temporarily relieved by eating, at least while I'm doing it.
I've been unable to get any answers or cooperation from the local doc and still have no answers to the abdominal stuff. I can't take any meds with the LFTs still kind of high and don't know what I'm supposed to do now. I'm very worried and pretty out of sorts, at the moment.
Thanks if you've read this and sorry. I just don't know what to do with this stuff and need to put it somewhere. There is no need to respond. I don't think anything can help me at this point. Although, by all means if you have a suggestion that may be helpful; let `er rip.
(Also my apologies if this makes no sense at all. I am unable to get things in the right order or remember it all and my head really hurts.)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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5dana8
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((((Hi true))))
I am so sorry you are suffering so much lately
I din't know much about what could be going on but here are a few ramblings or brain misfires:
*maybe the interuppted babs treatment-a babs flare? *maybe a delayed herx from it. I was still herxing a MONTH after stopping all babs meds? *Could you have caught the flu? I had the flu 2 years ago that-lasted 1 & 1/2 months? *Abdominal pains-this is a tuff one-IBS?, yeast?,constipation?,GB?,bowel problem like diverticulitus?,female problems? *Could the treatments lately stirred up some latenet problem like lyme,a co- infection or virus,mycoplasma, bart?
* if I had to put money on it I would bet the interupted treatment may have stirred up the babs.
detox, take tons of peo-bitoics,rest,drinks lots of water,and try to find one small bright spot and hold on to it for dear life-cuddle with a pet or snuggle up with a hot water bottle.Watch a good movie.Listen to some soothing music . Here's some more hugs becuase ya can't have too many of them
what ever it is I hope & pray you can find some answers and feel better soon
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
True, Please don't apologize. Pain is pain, we are not here to judge but to be compassionate and helpful.
What concerns me is the severity of your symptoms. You are sick. Simply very ill.The fevers are worrisome. This could be a herxheimer or something does not require treatment, lets say the flu.
It could also be something that requires urgent-emergent treatment. Pancreatitis, choelystitis, diverticulitis.
Will you go to an emergency room? Once they have ruled out anything life threatening, you can concentrate on coping and getting yourself through the weekend until your doctor calls you on Monday.
Now, wasn't he to get back to you on Friday.
Many, many and Posts: 628 | From the south | Registered: Dec 2005
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trueblue
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Dana, I think the Babs was full tilt flare (alternating with Bart) over a month ago while on treatment. I've been off ABX for alomst 5 weeks and everything else for almost 3 weeks. Only probiotics and sleep meds.
I am crashing.
"*Could the treatments lately stirred up some latenet problem like lyme,a co- infection or virus,mycoplasma, bart?"
Yes, yes and yes... I was supposed to start treating recently reactivated viruses when my meds were pulled.
Abdominal pains seem to be either one or a combination of liver, galbladder, speen, pancreas, kidney or possibly ovary. All those areas hurt and having the ultrasound done was brutal.
There are no bright spots at this moment only trying to cope and wishing to escape. Thank you for the hugs.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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I agree: a flare up esp Babesia - the temp usually goes up in the afternoon or evening and causes those massive headaches --it feels horrible Are you using any complementary therapy? How about magnesium
this has helped me get through the flare ups
don't give up 2 mag
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trueblue
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Ser, I'm still pretty sure this is no herx. A major flare of multipe things, sure. (also not a flu)
The doctor was on vacation so no one in the office bothered to look at the lab results from Monday. After much pestering and waiting until the office was closed babyduck(new partner fresh from school) called at my insistance. He didn't have the results of the ultrqasound and was not really able to interpret the blood work.
He suggested drinking something nutritional like grapefruit or apple juice and not soda pop (Yes, he used the words soda pop to me) If I was having difficulty eating.
He said the ER would do the same tests they just did and find nothing to do, so, go if I want but it's a waste. Obviously, so was having what I've already ahd done and having a conversation with him. Oh, he did wish me a nice weekend.
He thought the ultrasound tech would probably have mentioned anything life threatening. The report should be in Monday and I asked for it to be sent to the gastro/liver specialsit as I was able to wangle an appt for Tuesday morning.
No one is going to call with anything.
I'm just trying to stall until Tuesday; Tuesday is far. This has been going on and getting worse for weeks.
Thank you for the many hugs and kisses.
I'm going to try and sleep for a few hours just to make them go away.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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bettyg
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Blue, so sorry to read of ALL your pain/other problems mounting. Sending you too.
how about food allergy? allergic to GLUTEN...wheat/rye/oats/barley or CASEIN ... dairy products
I would have never believe I was allergic to them, but was finally dx 4-06 after 30-36 years of SICK GUT! Best wishes to you. Keep posting letting us know how things are going.
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trueblue
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quote:Originally posted by mag: hi true blue
so sorry for what you are going through
I agree: a flare up esp Babesia - the temp usually goes up in the afternoon or evening and causes those massive headaches --it feels horrible Are you using any complementary therapy? How about magnesium
this has helped me get through the flare ups
don't give up 2 mag
nope, not allowed anything complementary or otherwise. My only choices now are heat or ice. But thank you for the encouragement.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Just want to let you know I have felt all of those things and think it is/was the disease itself.
I don't really know how much good it does to differentiate Lyme from coinfects but I do know when I was on Mepron Zith it was horrific. Just like you describe and I thought the medicine was killing me.
But since you aren't on much medicine anymore...it is so hard to say what to conclude. Except I have come to realize for myself at least, that this is a long term gig and now I don't really want to stir stuff up at all unless there is good reason to.
I think....
clear skies, an open window deep breathing music you love gentle teas visualization
might be something of something. I know it sounds silly considering your situation and how awful you feel, but it may help especially since it sounds like you can't count on the medical community at this point.
trueblue
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Thanks Betty
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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kelmo
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Your post just breaks my heart. I don't have any recommendations or words of wisdom. The others have done a great job with that. I just wanted to let you know that you have been heard, and I am thinking of you.
trueblue
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quote: Just want to let you know I have felt all of those things and think it is/was the disease itself.
I don't really know how much good it does to differentiate Lyme from coinfects but I do know when I was on Mepron Zith it was horrific. Just like you describe and I thought the medicine was killing me.
I agree PT and thank you.
I think this is killing me without the meds and things are stirring up all on their own.
I'm just going to crawl under the covers and hope for escape, now. It's all that's left, at this moment, to do.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trueblue
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quote:Originally posted by kelmo: Your post just breaks my heart. I don't have any recommendations or words of wisdom. The others have done a great job with that. I just wanted to let you know that you have been heard, and I am thinking of you.
Kelmo
Kelmo, I'm sorry and thank you.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Andie333
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True,
Just to know that my thoughts are with you!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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There are SO MANY blasted things that can cause the abdominal pain and other GI symptoms... everything from Crohn's Disease and ulcerative colitis to cancer of the pancreas, colon, etc. There's IBS, ulcers, gastritis, pancreatitis, appendicitis, gallbladder troubles, kidney infections, celiac disease, Addison's disease (an adrenal problem), etc. Even pelvic inflammatory disease, endometriosis, and ovarian cancer can cause pain in the abdomen! Also, some parasites such as giardia can cause these symptoms.
If you don't want to post additional symptoms, PM me... let me know what other stuff might be going on in addition to pain, fever, nausea. Have you vomited? Has there been a change in bathroom habits, such as diarrhea or constipation? Do you feel bloated, or have increased flatulence?
Maybe if we work together we can figure this out.
Posts: 220 | From central TX | Registered: Jun 2005
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True, Your doctor did not do his job. He is assuming that the tech would tell YOU if there was something worrisome? No your doctor should be thorough and make sure there is nothing worrisome. ( My doc once said: Assume makes an a** out of u and me ) sorry.
This all could be part of the lyme and coinfections. But it may be something different. We can't assume that because we have lyme we are immune to other problems. Sorry.
The most important factors now are: is this a new and different symptom? how ill do you feel?
If this is new and you feel awful, it could be an acute episode requiring internvention.
I had a period of intense abdominal pain with fevers. I could not eat, and after a while even warm tea caused me to vomit. I had a kidney infection, but none of the typical symptoms such as pain on urination or urinary frequency.
Have they done routine urinalysis and urine culture? Have they taken a look at your ovary? Spleen? Are you amylase and lipase normal? Have they ruled out diverticulitis? Do you still have an appendix- they too get infected. If your doctor hasn't thought about these possibilites and given you a sound explanation for whey they are not the cause of your pain, there is much a ER or urgent care doctor could do.
Use your own judgement, if the pain is really bad or gets worse go to the ER. They may run other tests, or you may get a better doctor.
Sending you many more Posts: 628 | From the south | Registered: Dec 2005
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just don
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True, Sorry for your pain problems.
I cant send any hugs since it may hurt you,,, specially if an ultra sound hurts. I always thought that was a jelly wand rubbed over your abdomin. IF that hurts,,,you are indeed hurting.
Appendicitis(sp) really comes to mind IF all else fails and you still HAVE one!!! That IS serious ,,,but most any quack filled duckie can get THAT right!!! BUT if it ruptures, you wont be talking to us fer a long while. And thats NOT GOOD!!!!
I always was told if you pushed on one side and the other side hurts, its appendix. Not sure if thats the only way to dx it tho.
Hope better days are ahead. Specially cause its Saturday nite date night!!! Dont wanna miss your date tonight,,,do you??? IB--just don--
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groovy2
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Hi True
I have both lyme and babs--20 yrs
Let me tell you I have had every symptom you can imagen and then some--
I have been so sick at time I am really suprised that I am still alive-
Now I am doing perty good most of the time-
I still have some symptoms but they are lessening everyday--
The crawlies- stiff neck- heart palps -head ache- temp -sounds like babs-
Babs caused about 80% of my symptoms-
Make- Sure -to figure out if you have any co infections-
I did not make much ground until I treated for Babs-- Also--
Babs also Trashed my stomic--
Now my tummy is doin good--
I ate 2 Whole apple pies in 2 days a week ago to treat myself-AAhhhh
You Will get Better- I have--Jay--
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5dana8
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here's a pillow to rest your head on
hang in there
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trueblue
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Hi ~ I just woke up and read all your responses.
Thank you all... Andie, Tx chaos, Tutu, Ser, Don, Groovy and Dana.
I'm just looking at when and how this situation came about. Most of it has been going on for some time but has been increasing in intensity. I'm looking to see how long and how it progressed to make a little sense out of it.
Be back shortly with a detailed report and then maybe some pieces will fit together (ha, or not).
Again thank you for all your support, hugs, kisses and responses they are greatly appreciated.
brb
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Hi True, I am checking in as I pack. Sorry I can't offer you more.
If I could I would run over, but Texas is a little far from you.
Hang in there, if you can wait until Monday I would request to see a GI specialist immediately.
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trueblue
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Ok, here goes...
Last October I was taking a low dose of Levaquin and the herx was getting too bad. The doc had me stop for 2 weeks and then restart. In the interum(sp?) I took some green foods with Chorella in them and had what seemed to be a gall bladder atttack.
Went to ER and ultrasound revealed a 4mm polyp or stone. My then LMD decided it was a tiny stone and couldn't be causing the level of symptoms I was experiencing and deeemed it gastro-herx.
At the first baby dose back on Levaquin all the gastro problems resolved. I was pulsing low dose Levaquin for a few months and otherwise saw no benefit and quite a few side effects.
I have been running low grade fever on and off for a long time and certainly most of this year.
I was off all treatment until this June. I started taking Artemisinin (at a very low dose) and 4-5 days in had a big flare of already bad Babs symptoms, just like everyone told me would happen.
I took Art alone for a month and eventually the nausea, etc got better and this exploding headache resolved some... I was cycling every 12 days. I felt like my insides were beaten with a baseball bat; It felt like all my organs were sore. I figured, Wow, I must be riddled with parasites.
Lots of new lower back pain and an increase in symptoms. I added an anti-malarial and tolerated it well, but it changed the cycle. 10 days later added a macrolide. Herxed bad one day and then was finding the whole thing while not tons of fun, basically tolerable in contrast to all the treatment i've tried for the past 8 years.
I realized I could do this. That was the first hope I had in a very long time. I could put up with the junk and was waiting to get to 4 months and hoping that's when I'd see some improvement.
The LLMD did a lot of prodding around of my internal organs and nothing seemed out of the ordinary aside from everything being tender. I was tested for h.pylori and it was negative.
So we add some supplements and eventually a new med, not for TBDs and it made me very sick, 4 days later my LFTs came up high. I was told to stop ABX and did and I stopped the bad med days later. ... 2 weeks after my LFTs had doubled and I stopped everything else.
The increase in right sided abdominal isssues increased dramatically once I stopped the rest of the Babs meds.
I did have lower right side pain and for most of the time on the Art.
So it seems I can draw any of a couple of conclusions... I am riddled with parasites Babs is completely out of control Bart is also flaring (got the scary dreams and emotional things to back it up) I may or may not have something wrong with any of the hurting organs for sure the liver has taken a hit.
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Chaos - as for the questions... I haven't vomitted but really want to and that something I don't do ever. Bathroom habits not atypical for me. There is some additional trouble digesting stuff since this got worse. No significant bloating and not much gas.
My back and neck hurt a lot and most of the pain is in or around the right ribs with some pulling in the right lower area. And the side of my waist feels bruised on that side.
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Ser ~ The only tests done so far was h.pylori a few months ago and the ultrasound this week. No UA has been done. Ovaries were check this past year and have 2 tiny fibroid cysts.
I don't know if amalase and lipase have been checked. It sure sounds like a good idea to me.
I had an upper GI series quite a few years ago and was told I had a hiatal hernia and one diverticuli not imflammed. Neither bothered me at the time and I don't think they are the culprits now.
Yes, I have an appendix. I had the chiropractor press on it as that was one of the areas that hurt and it didn't have rebound pain.
I have an appointment with the gastro/liver specialist on Tuesday morning (that's the best I could do, they origianlly wanted to give me an appt the 2nd week of Nov..
Had the internist followed through as he was supposed to I'd have been seen this week. I tried to get things moving but was getting no cooperation. If he was so eager to pass it off to the gastro he should have made sure it happened in a timely fashion.
The pain is not bad enough to go to the ER and if it gets that way or fever goes really high I would go without a second thought.
Ok, I have no idea what I'm up to here so am just hitting post.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trueblue
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quote:Originally posted by just don: I cant send any hugs since it may hurt you,,, specially if an ultra sound hurts. I always thought that was a jelly wand rubbed over your abdomin. IF that hurts,,,you are indeed hurting.
Ah, it hurt because the woman shoved that wand as hard and as deep into my innards as she could. She did find all the really sore spots. For sure she saw stuff if it was there the way she attacked me. Nice if she had shared her findings, no?
Normally US does not hurt at all.
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nope, don't want to miss date night but you know... Tutu brings candy and flowers... I may have a date with her.
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Jay ~ Thank you for sharing and telling me it will get better. I appreciate that more than you can know but also wish you'd saved me some pie.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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It is comforting to know that you will be seeing a GI specialist on Tuesday. It may seem a while off, but it is lets see, three days away.
There is much the GI doc can do, a urinalysis to start with. Unlikely that is the source but it needs to be done.
In the midst of pain, it is hard to be calm, but you will get through this. And many people care about you. Try warm teas, heating pads, peppermint oil also helps.
back to packing... In my rush I almost forgot Posts: 628 | From the south | Registered: Dec 2005
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nope, don't want to miss date night but you know... Tutu brings candy and flowers... I may have a date with her.
I'm on my way!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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trueblue
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-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trueblue
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quote:Originally posted by serendipity: It is comforting to know that you will be seeing a GI specialist on Tuesday. It may seem a while off, but it is lets see, three days away.
There is much the GI doc can do, a urinalysis to start with. Unlikely that is the source but it needs to be done.
In the midst of pain, it is hard to be calm, but you will get through this. And many people care about you. Try warm teas, heating pads, peppermint oil also helps.
back to packing... In my rush I almost forgot
Thank you, for everything and then some, Ser! and
Where are you packing to go? I was thinking you weren't moving or are you going away? Did I know this and shall soon feel stupid for asking? Oh hope it's somewhere good and not for some nasty medical thing.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Sorry, True Blue, I haven't had the time to read all the posts(nor focus!), but did anyone suggest possible C. difficile infection from abxs? Also I would be careful with grapefruit juice as that duc advised you since it often reacts negatively with other abxs/meds. Anyway , I have just said a little prayer for your health and recovery.
-------------------- To win this battle, make the time for exercise and fitness activities! There is no shortcut to any place worth going! pegee4 Posts: 59 | From Hamptons, New York | Registered: Aug 2006
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trueblue
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Thank you Pegee, I'll have to wait and see what the gastro guy says on Tuesday. He should have whatever test results, there are, by then. I sure do hope there's something in there that makes some sense.
But rest assured I won't be drinking any grapefuit juice. Yuck, I hate grapefruits! Blech!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Jill E.
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Hi Trueblue,
I'm sorry you are still suffering. You and I have chatted a few times about liver issues (mine being from Ketek).
I will say, I was sick for months - hepatitis-like symptoms from the damage Ketek did to my liver. It was a very slow recovery.
I did have liver aching on the right side, nausea, loss of appetite, fatigue, etc. - I don't recall fever or headache.
I know you went through all kinds of tests for liver issues, but are there any liver tests they have overlooked? I had so many done, I didn't think there would be any blood left in me - and that was just the blood tests - I had the biopsy, too.
Hugs to you, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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trueblue
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Hi Jill, They havent done any tests this time around but bloodwork and Ultrasound and won't give me the results. Grrrr...
When I had the acute flare of Hepatitis, 8 years ago, my symptoms were exactly as you described.
I have those again but a bunch of other stuff on top of it. If it was just waiting it out I think I'd be ok but there seems to be more to it and more problems by the day.
I am finally going to the liver guy on tuesday so pretty much nothing has been done. Just waiting and suffering for the most part. pfft, get's old real quick.
Thank you for the hugs. I'm not nearly as depressed as I was this morning.
Thank you again
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Hi True, I've left the blue out of your name. There are many things true about you. Blue is not going to be one of them.
How are you today. Do post so we know how you are.
I will pm you about my move so I don't hijack another thread. I'm moving to another apartment in the next buidling, within the same apartment complex.
Back to packing And yes another I think you could use a few more Posts: 628 | From the south | Registered: Dec 2005
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trueblue
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quote:Originally posted by painted turtle:
quote:Originally posted by trueblue:
...So, trueblue...is THAT my rolling head you finally found from months ago?
Hope you are feeling well with open skies good breathing,
and enough focus to make some tea.
I forgot all about that! Here we are! (I'm not sure which one is yours and which is mine but they look like they're having a good time.)
I'm feeling slightly better. At least no one has stuck an US wand in me for a bit that's a step in the right direction.
Thanks painted
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trueblue
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quote:Originally posted by serendipity: Hi True, I've left the blue out of your name. There are many things true about you. Blue is not going to be one of them.
How are you today. Do post so we know how you are.
but... but... blue is my favorite color!
Good luck with the packing and moving, ugh!
I'm doing ok, I guess. A little better than yesterday, maybe. Still extremely tired and headachy, a little out of breath and palps but the abdominal pains are not as bad.
I'll likely live and for the most part am not as depressed as yesterday morning except for now and again.
Thanks for more hugs!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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I assumed blue was for down, depressed, dark. But if it is your favorite color I'll call you by your full proper name.
Blue is a calming color, blue glasses are used to treat depression and anxiety, and my bedroom is blue as I find it calming. Turns out there is a scientific basis, blue calms the autonomic nervous system.
I'm sorry things are tough. I really am tired of this disease, wish we could all get over it soon.
I have to get back to packing, which is now a challenge as I am herxing from treatment for Babesia.
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trueblue
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Nope, blue is for just what you said, all the good stuff. I painted my bathroom a beautiful blue, I'd like to do one wall of my bedroom but can't take the smell again. It takes weeks until it goes away.
I'm sorry about the Babs herx and packing, yikes. When do you have to be done by? Maybe you can rest up a bit? Take it easy as much as you can. Naps are our friends!
Hang in there kiddo and thanks for everything.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trails
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I just got back from being away from the computer for a few days and I CANT read all this blue--but I REALLLLY wanna know if you have ANY new info and if you feel ANY bit better. I think from the look of the posts, you DONT feel better or have new info which is really upsetting!
I am thinking about you and hoping tomorrow is a VERY busy at your docs office because they are all running around getting YOU all the info they need to!
Posts: 1950 | From New Mexico | Registered: Sep 2001
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trueblue
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posted
quote:Originally posted by trails: I just got back from being away from the computer for a few days and I CANT read all this blue--but I REALLLLY wanna know if you have ANY new info and if you feel ANY bit better. I think from the look of the posts, you DONT feel better or have new info which is really upsetting!
I am thinking about you and hoping tomorrow is a VERY busy at your docs office because they are all running around getting YOU all the info they need to!
Trails ~ I am feeling a little better. I have no answers and nothing to do but wait until an appointment with the gastro/liver guy on Tuesday.
Trust me, I made quite the fuss I on Friday; I called and let everyone know. And... no results, doctor on vacation, blah, blah, blah.
eventually a medical assistant called me back after hours and I read her the riot act and made her have the little duck-in-training call me.
Made him look at the bloodwork and he didn't understand it(there are 4 docs in that office and nobody could look at lab results from Monday). Didn't have the US report and I hollered at him for a long time and told him that US report better be at the other Dr B's office tomorrow.
I will call over there and make sure they receive it. His medical assistant is more competent.
/rant
Tuesday still seems far and I'm not feeling too confident that there will be any help there, either. He does know liver stuff but this TBD thing is gonna be fun to explain. He knows I have Lyme but I'm gonna have to spring the whole Babs treatment thing on him.
I really hope the ultrasound showed something. I could really use some answers soon or at least the ok to take something/anything.
There is nobody in these parts bending over backwards to help me and neither are they likley to.
/rant (ha, guess I wasn't really done before)
And Trails... Thanks for thinking of me.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trails
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posted
true--how are you doing?
Posts: 1950 | From New Mexico | Registered: Sep 2001
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trueblue
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posted
I'm alright, it's nearly Tuesday and the abdominal stuff has died down considerably. I feel yucky but at least that is less.
Still can't get a copy of the US. I finally got the phone # of the radiologist after hours today.
I'll have to try them in the morning.
How are things by you?
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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I saw the GI specialist today and he SNORTED when I told him about the HIDA scan that the hospital did without CCK. He said that makes the results totally useless and unreliable... "like trying to get a heart rate on a dead heart that isn't beating", and ordered another scan for me Wednesday.
Maybe our luck will start changing this week?
Posts: 220 | From central TX | Registered: Jun 2005
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trueblue
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posted
quote:Originally posted by TexasChaos: Hiya, Blue.
How ya doing?
I saw the GI specialist today and he SNORTED when I told him about the HIDA scan that the hospital did without CCK. He said that makes the results totally useless and unreliable... "like trying to get a heart rate on a dead heart that isn't beating", and ordered another scan for me Wednesday.
Maybe our luck will start changing this week?
I'm so sorry, TXC, I hope you're holding up ok and can last until Wednesday.
At least the GI had a clue. Did he have anything else to say? Good luck on with your new improved HIDAscan. I'm sorry, I bet doing this twice is especially fun. I hope they find your answers soon.
It's like bozos all around here, too. They keep telling me they'll have the US results in 2 weeks. I sure hope the GI/Liver guy has something of use to say tomorrow.
Ha, they called me at almost 5pm today to give me the bloodwork results from last monday. Said I wasn't diabetic and my CBC and liver profile was fine. I asked if 47 and 144 sounded like a perfect score to her.
Hang in there kiddo!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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