posted
Does everyone that has lyme have a low body temp. . In the start of all this, after I found the bulls-eye rash, I had a temp. of a 102, then when starting the antibiotic it seemed my temp. never even made it to 98. So is it the Lyme or the antibiotics causing low body temp. Posts: 158 | From PA. | Registered: Jul 2006
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posted
Lyme lowered my temperature. For a while it was down aound 95 and I felt crappy. I was pale and cold. Now after 2 years on antibiotics my temp has come back up to the 98s. This coincides with starting to look & feel much better. I'm still on abx though. hats
Posts: 956 | From MA | Registered: Nov 2004
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posted
Hi I also have low body temp ,as do most people on here it seems very common amoung us lymies.
I have for years,I was bitten 10 years ago. I also have other temp. regulatory symptoms too, like sweating easily( even when everyone else is cool), night sweats , and have exagerated intolerence of really hot or cold among so many other things - recurring fevers as well
The other responder above me to your post stated its Babesia...This went on for years until I began treatment for both babs & lyme.
I can't say for sure which 0ne it is but if someone else has proof or a therory that its babs that changes our body temps - then its very possible,thats what it is.
I had also heard that its to make the body temp more desireable for spirochetes.. they dont like hot.. I know If I have a reg. temp. than I amm actually running a fever and feel as such.
I have lyme and tested positive, never got a positive test for babesis but did get tested several times,It can be illussive too- I think.
But it t was suspected by my previous LLMD based on symptoms that I did have it & I was treated for a long time.. I do not recall off hand which symptoms go with which infection but the previous poster is likely right.
I was on concurrent treatment for Lyme and babesia for 16 moonths , they gave me about 8 21-30 day rounds of mepron w/ zithromax,or Mepron & clindamycinon> I was treated off .. based on symptoms.
I am sure I have that particular coinfection in spite my Babesia test results coming back neg. ,
Because after treatment I did see an improvement in the night sweats, they remain one of the few symptoms that dramatically improved but the Low body temp still has not gotten back to normal so likely am still coinfectedand ,some of the temp. irregularities have improved ..over yreatment and with time but not enough for me to be happy with the results so far.
My avg. temp is 97.1 for about the past 8-10 years, I believe at first for along time I just ran bad fevers alot, at some point though my actual temp went down.. I would still feel like my face was burning up.. this went on a long time many years before tested & treated.
I am just guessing but I think all the temp. regulation stuff is linked together - or at least in me it is.I have had the body temp rise a few times without fever since my treatments for lyme and babs- at the most up to 98.0 ..If it is babs causing it then I need to treat that some more as well.
I just personally can't say for sure which infection caused it for sure but babesia causing it does seem resonable.Which is goo9d to know if thats correct.
-------------------- Sandi ( badkitti30043) Posts: 664 | From Atlanta Ga. | Registered: Aug 2002
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posted
My body temp used to run high as a kid-usually around 99. Over the last few years it's dropped from that to now 96.8. It seems like every time I have it checked it just gets lower.
I also have cold sweats-but i didn't test positive for babs. I tested pos for erlechylia and bart-
It would surprise me that I have babs too though.
There's my two cents
Lindsay
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
my body temp runs HIGH, so whay does that mean? I typically run 99.2 I thought this was babs...as it is sometimes cycical and is normal in the morn and night but raised in the day even if I am not mobile.
posted
I can directly relate my temperature with the babs
because i used to regulate it to get pregnant, and it ran the average 98+...
after kids, then lyme,
i was never higher than 97... even 96 average.
I took mepron for a year b-4 discovering i was
alergic, and haven't been treating it since.(One year off) I
did take artemesia last year, which made me herx big time!
I need to do some more babs treatment and curently
on I.M. rocephin and oral biaxin for the lyme, because
every morning after dropping off kids to school, i bundle myself in layers of clothes and
sleep (no choice) then by 2:00 pm, i wake in a
sweat (just in time to pick up the kids!!!)
what I am taking now hasn't changed my highs and
lows of temperature... unless i am in ONE BIG giant Herx!!!
-------------------- well i know a disease that these doctors can't treat, you contract on the day you accept all you see... Posts: 97 | From nor cal | Registered: Oct 2006
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posted
...also, i would be curious to know if the cold
temperature of us lymie/babs people are more
likely to lose weight?
I myself lost 35 lbs. when i first got sick.
(it wasn't a good look, trust me! I'm 5'5" at worse, i was slightly under 90 lbs.)
but i hear a lot of people with lyme actually
gain weight, so i wondered if it was the babs,
and the change in body temp. or something... (ya
know how it takes a lot of calories to try to keep warm...)
just a thought,
but i am sure its more complicated than that.
-------------------- well i know a disease that these doctors can't treat, you contract on the day you accept all you see... Posts: 97 | From nor cal | Registered: Oct 2006
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posted
Thanks everybody. I was a little, okay alot, concerned when I checked my temp and it was 95.7. Ever since this all started back in June 06 it's been one thing after another.
I'm still confused about my LLMD telling me after my tests came back that although I had no symptoms until this June that I had to have had Lyme for more that a year.
I almost fell off my chair because here I thought "okay the bad news is I have Lyme but the good news is that I just started at the beginning of that month with
backache from my waist to my neck, fatigue, fever and then found the bulls-eye rash, Soooooo I found it early and I could get rid of it."
Instead......... when I asked him what stage it was in he said late / borderline chronic.How can I have it for more than a year and not have any symptoms at all? He did say I have a good immune system. That I'm sure had something to do with it.
Although this means nothing, apparently, but nothing was said about co-infections.
AND, The worst thing that can happen right now, my LLMD just retired. Everyone knows that LLMD's are few and farrrrrrrrr between.
So I'm really concerned about the next step. He did tell me what treatment he had planned for me when went over the results in Aug. and when he announced his retirement
he did move my appointment up and set me up until the end of December. I have my name on waiting lists with two other Drs., #30 on one and one hundred something with another.
AND.....,what's up with some of these Drs. charging $600.00 / $700.00 for the first visit?
I must look like a !@#*!@& Bank. My LLMD charged $180.00 and the one that I'm #30 on the waiting list is in the same range.
I don't care what anybody says,That ain't right!
You hear the saying, " that you can't put a price on your health", but they (LLMD'S) are, by charging those fees they are denying people the medical help that only they can give.
I am 53 years old. I miss the Drs that use to care and were'nt so greedy. I can sit here and without even trying name 4 Drs. that truly cared about their patients. Of course they all past away. I think they would all turn over in their grave and be ashamed of the way most Drs are today.
I say Most because although my Family Dr. don't know a damn thing about Lyme, he does go the extra mile for his patients.
He went out of his way to take a friend of mine medicine that she needed before going home one night. But they're few and farrrrrr between also.
Sorry this is so long.
But thanks to everybody. Especially since I don't have a Dr. that I can ask questions right now.
I'm on Lymenet every night trying to learn about this horrid disease. I'm not sure I'm making much progress.
Posts: 158 | From PA. | Registered: Jul 2006
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Low body temperature is caused by
a disruption of the HPA axis.
This is the hypothalamus, pituitary and adrenal glands. They "communicate" with each other.
The hypothalamus controls several things...among them, body temperature.
It is a defensive/protective move to conserve energy.
Think about how someone can fall thru ice and miraculously recover once resuscitated after being without oxygen for several minutes.
Oddly...our temperatures sometimes drop with viral infections...at least initially.
BTW...when you have chills, exactly 20 minutes later, fever hits...spikes.
Fevers are normally highest in the late afternoon.
Body temperature is lowest in early morning (it drops during sleep), just before awakening.
Think about this: cold reduces inflammation...yes?
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Like Marnie says, the lower temp CONSERVES energy, so at least for me, to answer your weight/temp question....
-Temp before Lyme was 98.6 -Temp after Lyme was 95.6 (it is now 97.6 w/herbal tx, but I went without tx for 17 yrs.)
-Weight gain in first two months was 46 lbs.! -Overall wt. gain now is 60 lbs.(thanx to ducks and their drugs) -I was "normal" wt. before, so this much xtra = obesity.
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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