posted
I am looking into getting a prominent lawyer in calif to see if they can get some media coverage and go after my provider who will not accept IgeneX lab results and said it was based on the new england medical journal referance article and it was probably a false positive. Thats how it was left. No other explanation nor treatment advice. Left me with a huge ????? I am looking to see who many people would be willing to give a small e-mail, card, note, letter, or even just a name so they can get some facts, and numbers behind them to give them enough amo to go against these providers. If they see how many of us suffer from this disease and what this will stur up maybe they will take this case. How knows but its worth a try. If so please sign your name and well go from there and if something becomes of it I will write you all back and let you know if you need to give a testimonial or a note, card or just a name. Thanks everyone. Till next time. I will write you all and let you know as soon as possible. thank you all, Terri Posts: 45 | From Redlands, Calif | Registered: Aug 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
So it sounds like you're saying:
- You have a positive lyme test from IGeneX.
-Your insurance refuses to cover treatment, saying IGeneX is a bad lab?
To back up a little bit, did you first have a negative test through some idiot lab like Quest? And that's what the insurer is hanging onto?
The insurer needs reminded that lyme is a "clinical" diagnosis, even according to the CDC!! Therefore, it doesn't even need a lab result! However, luckily for you, you just happen to HAVE one!
Perhaps you can print out the accreditation information for IGeneX for them. Here's a link:
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I think it would be important to find out exactly what article they are referring to so that you can mount an effective argument.
I would ask the insurance company to provide their reference. Post the reference here. There may already be responses to the article by ILADS or IgeneX.
Contact IgeneX. Ask them if they know of any such article and defenses against it. Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Hi everyone, I called my LLMD to tell her about indcident and she said she will forward my e-mail to Nick Harris herself. My LLMD knows him personally. She said he will be interesed in this and he will get back with me as soon as posssible because he had just gotten back from the international conferance for the lyme. I will let everyone know what is going on. I am only asking if and when I get someone to look into helping us lyme patients if the would tell there stories about lyme, testing, insurance or medical problems getting treatments etc. all you have to do is say yes or no. Thank you for all your help as far as the article goes, I have contacted the new england medical journal and they said a site to go on but we can only view limited articles if we werent a member. so I will see if Mr Nick Harris from IgeneX can get a hold of this article and also Kaiser permenente since they claim there was an articel referance. terri
Posts: 45 | From Redlands, Calif | Registered: Aug 2006
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