Topic: Finally, a visit to the Gastro/Liver specialist and then cast off. :(
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Can it just stop now?
What would you take for pain? Would it help chills, fever, queasiness, etc. Side/back pain is worse than anything?
I would just like an answer and the doctor's office to make some suggestions.
Gonna go hide back under the covers.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
call that doctor and tell them what you are experiencing!!!!!
there is no reason to suffer like this. it is THEIR JOB and they are often okay when patients call in physical distress as you are!
PLEASE CALL the doc and find out what he suggests you take for this pain.
trueblue
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Member # 7348
posted
quote:Originally posted by trails: call that doctor and tell them what you are experiencing!!!!!
there is no reason to suffer like this. it is THEIR JOB and they are often okay when patients call in physical distress as you are!
PLEASE CALL the doc and find out what he suggests you take for this pain.
I called at 10 this morning Trails. The medical assistant just called back and said the gallbladder, liver and part of the small bowel that they could see all looked perfectly normal.
I asked whether she was sure they performed the test correctly, especially since I am much worse since they did.
Also no one has address the pain on the lower right side either.
I told her exactly what was going on. I also said, no matter what this is it needs taking care of NOW. She's tracking down the doc to find out what to do.
She seemed to think enough stones could cause this problem.
So I'm waiting for another call back. And no help in sight. I don't want to do this anymore, ok?
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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5dana8
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Member # 7935
posted
I am so sorry true
Hang in there
Hoping & praying they can get to the bottom of the causes.
This will passs & won't be forever, although it must feel like that by now
True
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Ouch, True, I'm sorry you're hurting! Not having a clear answer is the worst, too...
Won't be any consolation, but after my HIDA scan last year (which was normal also), I had the worst week of pain I'd had in a long time - kinda thought they stirred stuff up or something. After that week, it slacked off for awhile - hopefully yours will settle down, too. But another ultrasound a few mos later showed stones and sludging, so out the GB went - and I've been better since (up till now, and all my recent pain!).
Hang in there, ok?
TXC, sounds like maybe you have your answer...
Trails, yours is coming out for sure? Maybe you need a nice, cuddly stuffed Kermit to replace your GB!
Ever think our surgeons should offer bulk surgery options? Take out all the, a-hem, "expendable" organs at one time for a discount? Kinda like warehouse shopping. Scary thought.
Hoping everyone's feeling better today.
No news on this end, but whatever's going on here seems to have settled down, so I'm patiently waiting on my doc to call back...
Happy weekend to all, Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
(As an aside... The ultrasound already shows stones. One last year showed a single either stone or polyp. I've had gallbladder problems since my early 20's and am tired of nursing the damned thing.)
Anyway, the medical assistant just called back. the doc says the liver and gallbladder check out fine. That's why I was there. Apparently their job is done.
If I need something else notify my internist because if I went to a hospital he would be the admitting physician. That office is already closed for the weekend (and they sent me off to this one because they couldn't be bothered).
So... no answers (or answers but they are all no) no help, why bother.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I cant believe this.
They didnt even tell you what to do for your pain?
Can you call your LLMD and have him call in something for pain?????
I am sorry trueblue--- you really sound like you are in pain and have way too much suffering.
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
The medical assistant said I could take Advil. (Well, first she said Tylenol and then remembered the liver thing.)
She also told me that she has her gallbladder out and gets some biliary spasms and Xanax works for her if I have any of that.
I have some but it's reserved for bedtime. I don't dare increase my daily intake of it. I could concievably take a small portion of my night dose earlier.
I am not in so much pain that I can't stand it. I am feeling pretty sick all the time, though. A little better at night (and better while I'm eating, if I eat). I just can't go on like this forever, it's been a couple of months already, and not getting any better.
I can't think of any other ideas but to call the LLMD on Monday and see if they have any ideas.
My LFTs are better. The AST is back in range and the ALT 104 (under 63 would be within normal range). I can probably start back on some sort of supps or meds now, or soon, if we're careful.
All that's left is TBDs if nothing else tests out and I'm not likely to get anyone here to address those, nor to look any deeper at what's going on I'm afraid.
(I do believe the GB is bad regardless of what the tests say. I just think they aren't looking at the right things and it's moving on to more GI stuff.)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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I can't believe how they are shuffling you around. I really hope your LLMD can help out somehow. This ain't right.
And ADVIL??? Oh, please, you might as well drink water. This ain't Advil kind of pain!! This is "Lord, give me morphine now or I will kill someone" pain.
I hear you on the back pain. I actually MELTED part of my heating pad the other night from overuse on the highest setting. Oops. DH thinks it's funny, but I don't.
And I agree it's probably your GB, no matter what their tests show. It worries me that your LFT's and such are dropping back to normal. In GB disease, the levels often drop back down once chronic disease of the GB is established.
Is there any way you could get a "second opinion" from another specialist? I had to go through a few ducks myself before I finally found one who would listen and look where I was telling them to look.
I am so sorry. I am keeping my fingers (and toes) crossed for you.
Anybody live near Blue that can take her some chicken soup??? Seriously!
Posts: 220 | From central TX | Registered: Jun 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Thanks Trails and TXC, I really don't know what my next move is.
(The medical assistant did say the gallstones could have caused the spike in LFTs.)
What I don't understand is if there are stones and they seem to think there are AND they are causing pain(and likely illness)... wouldn't you think there would be some way to address that problem?
I have a friend that always thought she had GB problems. Since she was a child anything oily, fried or too rich always made her sick.
(This made perfect sense to me, she was describing exactly what I've been feeling since my early 20's. I am very careful about what I eat because of it and many foods are just to yucky to even think about. People think I'm just a picky eater, I am to an extent, but there are all these things I can not eat, as well.)
Anyway, back to my friend... all of her tests always came back fine, her concerns were ignored over and over. Eventually, sometime in her late 30's, I think, she needed surgery for something else. Can't recall the exact details.
She asked the surgeon to take a look at the gallbladder while he was in there. Darned if it wasn't horribly diseased and he removed it.
She told me that she never knew what it was like to just eat normally until it came out. She didn't know how bad she felt until the troublemaker was removed. It was the most amazing thing to not have to deal with that anymore.
I don't know why I told that whole story. It makes so much sense, though.
All I can think of at this point is trying to find something natural to try and improve the situation and need to run that by the LLMD. I can go back to 6 glasses of papaya juice a day, I suppose. Sure is a lot of sugar, though.
I don't I want to waste more money on trying to find someone else to not do anything about this. (The tests I had so far are going to cost me more than I have as is.) I'll also call the internist's office again on Monday but doubt it's even worth my time and effort.
I'm going to try and round up all the test results and send them to the LLMD on Monday, if I can. The gastro wouldn't fax out of state.
I'll shut up now. It's very possible cactus is right about the test. That seemed to make me much worse. Maybe in a few more days it'll be out of my system. I had some weird reaction to the dye anyway. I coughed and had shaking chills through the entire procedure. I was thinking the A/C blowing in my face, maybe not?
I don't know what to think and am rambling. I'll stop now.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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