cause massive peripheral neuropathy (i.e. numbness and tingling)
and is there anything that can help? I need to get some sleep at night...
VLSer
Posts: 48 | From Vermont | Registered: Oct 2005
| IP: Logged |
trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I am experiencing similar situation on Rifampin and Cipro.
Valium or Ativan are what help calm my nerves (literally---the buzzing and tingling) so I can sleep at night. No amount of advil or other NSAIDS will do the trick.
Can you get to a doc to get a script? Some others have tried low dose Elavil...that stops me up(constipation).
Sometimes a hot bath helps. sometimes it can worsen it.
SOmetimes herbal teas work.
THere are lots of other sleep aids, but I have only had success with the anti-anxiety meds for my nerve pain. hope it helps, trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
| IP: Logged |
posted
I have had peripheral neuropathy off & on for 6 months. LLMD says it neuro lyme. Some abx (flagyl) make it worse.
Posts: 213 | From ohio | Registered: Jul 2006
| IP: Logged |
posted
it does help thanks, I'll see if my llmd will call something in.
Posts: 48 | From Vermont | Registered: Oct 2005
| IP: Logged |
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I have peripheral neuropathy throughout my whole body from Lyme and/or coinfections. It's been one of my worst symptoms.
Neurontin is often prescribed for nerve pain but I became too tired on even the tiniest dose and had to give up.
I have been on a few different abx, it hasn't changed it, but I have heard that Flagyl can cause it - haven't been on Flagyl yet.
I don't have any words of wisdom, just empathy, because it's so hard to sleep with it.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
| IP: Logged |
posted
You can try Cymbalta for PN. I use it for mine and it has worked great.
Tic
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
| IP: Logged |
posted
When my neuropathy was worse I took Topomax and Elavil at night and it seemed to mellow the nerves a little. Thankfully with treatment these symptoms have become more sporadic rather than constant.
I had tried Neurontin but had trouble with being out of it and weight gain, Topomax was easier to tolerate and more effective for me. I think everyone is different.
-------------------- Lucy Posts: 342 | From Hawaii | Registered: Nov 2005
| IP: Logged |
posted
I treated my PN with the Photonic Stimulator, a near infrared machine made by Bales Scientific. I prefer this to taking yet more meds.
Contact the manufacturer for a practitioner in your area. Treatment costs vary. I ended up buying one because I use it regularly to treat myself and family for varying conditions.
Best.
Posts: 925 | From California | Registered: Sep 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic