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» LymeNet Flash » Questions and Discussion » Medical Questions » Off meds again and discouraged

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Author Topic: Off meds again and discouraged
hurtingramma
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Member # 7770

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Once again, I've had to stop my abx because of a rash. We don't believe it is Lyme die-off, but more of a reaction to the abx building up in my system.

This is the 3rd time I've had to stop them in the year and a half of treatment.

How can I ever get will if I have to keep going back to square one? I have to start each one slowly, and one at a time. I'm on biaxin, plaquenil and doxy.

--------------------
"Few of us can do great things, but all of us can do small things with great love". Mother Theresa

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Aniek
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Any chance you are allergic to some antibiotics?

--------------------
"When there is pain, there are no words." - Toni Morrison

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May
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Member # 10319

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Can you take grapefruit seed extract or
garlic or olive leaf extract in the mean time?
It might be the plaquenil causing the
rash too.

Don't get discouraged. Cleaning out
your system may be a good thing too.
Lots of sympathy.

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hurtingramma
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I do take olive leaf and chlorella daily. We don't think it's really an allergy because it takes months to build up. I AM allergic to plain penicillin, so those are out.

I am just getting so discouraged wondering if I'll ever feel better.

I do get relief from PT and going to a therapy pool, but all the aches, pains, cognitive stuff....are coming back full force.

--------------------
"Few of us can do great things, but all of us can do small things with great love". Mother Theresa

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lymie tony z
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hurting gramma,

Don't be too too dicouraged.

All of my abx protocols have been interupted as well and I have never been on an IV longer than three months(once).

And I have had repeated improvements...seems like almost every different abx I have tried killed a strain or two and I lost a symptom here and there.

Just wish I could find the fatigue strain or the one that gives me pain and weakness whenever I try to do physical stuff....

Almost ALL my cognitive problems are gone....although some around here have accused me otherwise...LOL

So hang in there....you'll get better...it just may take you a little longer....

Orals never seemed to be as effecacious as IV's in my case.

May...yeah I tried all three of the ones you mentioned and astragalas(among other things) as well early on in my alternative self help treatments.

Although I think I got a herx from the grapfruit seed extract I used about four times the dose(I ramped it up)...so who knows....

But abx worked best for me.

zman

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I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman

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