It's always correct to get anything cardiac checked out. You can never be sure if it's lyme or not. I am glad to see you are doing that.
Yes, it can be from the lyme. SOB and chest pain were one of my first symptoms..10 years ago. I thought I was going to die. I have also gone through all the testing, several times. I always pass my tests.
When I started treatment last March I was having constant SOB. I also had a racing pulse and could always feel my heart beating in my neck. It use to scare the you know what out of me.
After several months on abx I woke up in the middle of the night and shook my husband awake. I told him something was really wrong. He asked me what I was feeling and what he should do. "Do I need to take you to the ER?" After I calmed down and thought about it I realized I wasn't feeling my heart pound in my chest or neck anymore. At first I thought my body was shutting down. Then my hubby said that that was normal, he doesn't ever feel his.
My point is it does get better with treatment. For me, I was so used to feeling it that I freaked out when I didn't. It has been a couple of months now since I have had no SOB or palpitations. It still feels strange to me to feel "normal" in that sense.
I hope that your appt. with your LLMD goes well. Make sure you take all your cardiac results with you. A good LLMD will send you for those tests anyway so you should show that you have had them done already.
canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
I had / have shortness of breath - it's more like I can't breathe deeply enough. It can be a symptom of Babesia ("air hunger") - please check it out, because if the Babesia isn't treated first (or long enough), and you do have it, you will have to be like me and have an antibiotic treatment failure and redo your course of antibiotics.
Best wishes and good health,
Canbravelyme.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
severe shortness of breath here. did I say severe?
I have other muscle weakness as well, so we assume it's muscle weakness, especially as it gets worse when I talk or heaven forfend-sing. Cold air makes it somewhat better.
It was suggested to me to do an MIP-MEP (maximum inspiratory/expiratory pressure) pulmonary test. It's not routinely done on the pft's
BTW, I know this from when they thought this was myasthenia gravis---if breathing trouble is being caused by muscle weakness, then a pulse oxygen count is not an effective way of evaluating it, as the patient is getting enough oxygen, just working like crazy to get it.
my #1 worst symptom, and believe me, I've got lots of other symptoms!
Posts: 169 | From former Philadelphian | Registered: Jun 2006
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
am36...I have had the same problem, I'm glad you've mentioned it. I've driven myself to the ER for asthma, crazy for air, and my pulse ox is 97. They think I'm just having an anxiety attack.
Yeah, anxious I can't breathe.
My dauther gets this, too. I would hope that if it's babesia that she would show pos for it. What she has now is Bartonella and mycoplasma pneumonia.
She is supposed to be taking a month break from antibiotics to help heal her gut, but her air hunger came back real quick.
posted
Char - if your abx for Lyme is doxy, that can hit the babs a bit. My LLMD just put me on artemisinin on the hunch that I have babs (though I tested negative) and I have already herxed after only 4 doses of 100mg each. His clue was that I herxed a bit on doxy. Just a thought for you.
Totally with you on the short of breath. I'm a singer and I find I can't sing nearly as long without taking a breath as I used to. Frustrating to be breathing every other measure. Check into babesia with the LLMD.
-------------------- Getting older is when we would rather not have a good time than have to get over it. - Oscar Wilde Posts: 386 | From Radnor, PA - where the ticks run free | Registered: May 2006
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posted
Doxy also hits babs? I started on Doxy, tested + for babs but didn't have a lot of sx. Maybe the initial doxy knocked it down. I thought only mepron/zith worked?
Posts: 561 | From eastcoast | Registered: Aug 2006
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quote:Originally posted by shoney: Doxy also hits babs? I started on Doxy, tested + for babs but didn't have a lot of sx. Maybe the initial doxy knocked it down. I thought only mepron/zith worked?
I'm just repeating what my LLMD said. After he heard my symptoms from the previous month, he said I had experienced a "latent herx" and that the doxy "sort of hits babesia", so he recommended that I try the art and see what happens.
I did herx yesterday with pain and muscle tightness in my shoulders and neck. Advil helped and today I'm feeling a lot better, though still tighter than usual.
-------------------- Getting older is when we would rather not have a good time than have to get over it. - Oscar Wilde Posts: 386 | From Radnor, PA - where the ticks run free | Registered: May 2006
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posted
I get sob when I exercise. The "air hunger" was one of my first symptoms. I have assumed it is a LD symptom b/c (i) my LLMD said so, and (ii) Doctor B has "air hunger" on his LD symptom list.
I had a battery of heart tests performed by a cardiologist & they were all clean.
Posts: 213 | From ohio | Registered: Jul 2006
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posted
I started out the same way with air hunger that lasted for approx. 6 months. They did a full cardiac work-up on me, comprehensive PFTs, and lots of other more uncomfortable stuff - all came back negative. The air hunger finally resolved, but I have had chronic GI, headaches, joint pains, and other symptoms ever since. My sister was just dx'ed with Babesiosis and we think that we were exposed at the same time. I'm looking for an LLMD right now.
Posts: 2 | From Columbia, SC | Registered: Oct 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Thanks so much for the information and the replies. I sure hope that my cardio work up is normal without any blockages, etc.
It is the strangest thing to be sitting in an ER telling the MD that I can't breathe and yet the pulse-ox reads 99-100.
Will take all info with me to the LLMD. Thanks again sooooo much.
Sincerely, Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
Shortness of breath- sweats-Low body temp- muscle-joint-pain- heart palps- headache
Are all signs of Babs--Babs is a tuff bug-
Doxi may help alitttle-if treated early-
Look into Babs-very common--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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