posted
Being an ex Dr B patient, I saw my new LLMD last month and he started me on a few new things.
In the past I've been treated for lyme, bart, babs, mycoplasm... I actually was feeling quite well.
I was having some recurrent headaches and night sweats associated with the babs and some neuro sx and some cyclic jt pain but all in all able to function quite well...
Well with this new course of treatment all that has changed...
I had never been on minocin or plaquinil so they were added to ketek bactrim and 10 cc mepron twice a day...
He's going after all the little buggars and their cyst friends too!
this is the 3rd week in and it's thrown me for a loop. I know it's all good and it means it's working.
I won't be seeing my LLMD for another month (I couldn't afford to see him any sooner even if I could!!)
I feel like I did 10 years ago prior to ever being treated
So I'm looking for advice on over the counter remedies to deal with what I guess is a herx
Severe headache usually behind the eyes with a new twist added in of a pounding on the left side of my head worsening with position changes,
brain fog, poor concentration, eyes don't want to focus a general zombieness, numness of extremities...
i know I've read of people taking diamox and migraine meds for the headaches, I will ask my LLMD whenI see him...
but in the mean time any ideas would be appreciated Thanks
Posts: 58 | From NY | Registered: Dec 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Burbur is a detox herb that is supposed to reduce herxes.
It's hard for me to say if it works or not, since I don't know what my herxes would be without it. I can also digestively only handle half the dose my doctor wants me at.
It's made by Nutramedix, and is part of a larger herbal protocol for Lyme. I think you can buy it online without a prescription.
Warning that it does cause loose stools in many people when you first start. My body won't get used to it, even after a few months. But my doctor seems to think that's uncommon.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Life.
Great name!
I am sorry you are suffering so from headaches.
Headaches have been my middle name all throughout treatment. Mostly to the exclusion of other serious pain, so in a way I'm "lucky!" Ha ha! But as you know, the caliber of the headaches is a whole 'nother animal.
When I first came limping over to LymeNet in 2005, a whole lotta nice people gave me some good suggestions about headaches. Since I was about ready for the frontal lobotomy solution. :-)
I'd like to tell you that some of the suggestions worked but frankly, the only thing that would even TOUCH my headaches are vasodilators -- Relpax, Imitrex, and so forth.
Yours might be different but they sound hauntingly familiar.
Please try some of the excellent suggestions in the thread below offered by our seasoned posters and fellow headache sufferers and see if anything helps.
In the meantime, please don't be shy about phoning up your LLMD (or posting a little fax to him) asking for a scrip for Relpax, assuming you have no cardiac concerns. Use extremely sparingly, like only when your headache is a 9 or 10, and not more than a couple times a week. For me it beats Imitrex hands-down, and sometimes affords two days of relief vs. the short-term relief of Imitrex.
I found that even pain meds, taken in desperation (!!!), did not touch it.
I surely wish you relief and know that head pain is the worst thing; thinking becomes almost impossible. Please hang in there and have faith that better days are ahead..
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