NOTE: THIS A MY STORY OF PAST 10 MONTH, HOW I GOT MY LIFE BACK DESPITE BEING ON LD DEATH BED FOR 12 LONG YEARS
NOTE: THIS IS NOT A SALE PITCH FOR ANY PRODUCT. FREQUENCY IS THE NAME OF THE PRODUCT WHICH HELP ME.
NOTE: I'M NOT A MEDICAL EXPERT, I DON'T EVEN KNOW TOO MUCH ABOUT FREQUENSEA. I DIDN' DO ANY RESEARCH BEFORE TAKING IT (JUST ASKED MY LLMD IF IT IS OK). I TOOK IT, BECAUSE I SAW WONDERFUL RESULTS IT DID FOR PEOPLE WITH OTHER LIFE THREATENING DISEASES.
Old Post: I would like to share my experience with a natural supplement, which ended my 12 years long SSA disability due to LD, Babs, Erhlichia, Mycoplasma. From totaly bedwritten, attached to IVs and Oxygen 24/7, I have life again - traveling, working, even preparing tax returns for past 4 years and dealing with medical bills.
The product is an invention of my friend's father, who discovered it during the terminal phase of his rare cancer. He is well and it worked for me also. My LLMD had to take me from the position of his worst patient.
This ionic whole food tonic includes Marine Phytoplankton, Frankinese, Ionic Sea Minerals, Sea Vegetables, Herbs, Aloe Vera, Astaxanthin from cranberry and blueberry concentrate.(NOTE: The full list of ingredients is included in my second post of the same topic.) I use 2-3 larger amount than recommended maintenance dose, so each bottle lasts for me 10 days and costs around $30.
More information can be obtained by contacting me, Petra Weber: www.myforevergreen.org/534072,[email protected], home(970)479-8290 or cell.(970)390-2894.This product is marketed by Forever Green company from Utah. Their #(801)655-5500 and ID to use is 534072. FYI they have retail, preferred and member customers depending to the amount of discount. YOU DON'T NEED TO BUY ANYTHING TO BENEFIT FROM MY INFORMATION. I INCLUDED CONTACT INFORMATION, AS I CAN'T ANSWER ALL INDIVIDUAL E-MAILS AND PHONE CALLS (in 72 hours it is over 300 contacts).
Thank you for all your support. This forum got me through the worst times in my life and I hope I can repay some other members with valuable information.
Wishing you well ASAP!!!! Petra Weber
THIS IS JUST AN INFORMATION, NOT AN OFFER TO CURE OR HEAL LD. IT IS JUST MY PERSONAL STORY.
[ 10. November 2006, 05:11 PM: Message edited by: Punkie ]
Posts: 89 | From Vail, Colorado | Registered: Mar 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Petra, I'm glad to hear that you are doing so well.
However, you may want to reword your post, as some of the people here get very upset whenever someone tries to sell something, or promote a particular product.
I know you are doing this with the best of intentions, but you'll be surprised at how many are going to take this the wrong way.
Wishing you the best, Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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How long did you take this and did you experience any herx effects? What is it about this tonic that dr. h thinks is helping (anti bacterial or calm the immune system?)
I love to hear about new things that work for the worst of the worst (this was me too)
Can you take with abx?
Thanks! Kim
-------------------- We are spiritual beings on a human journey...
posted
You URL is bad, what is the actual name of the product? Is it that FrequenSea stuff?
Posts: 121 | From Memphis, TN | Registered: Dec 2004
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I just spoke with you on the phone, I did manage to get a look see at the wesite that you provided on this forum.
However you can not get passed the first phase of entering into the "order" site without a "referral username", so there fore you can not get any info on it...
Such as price ..
I guess if one wants to now they must call the company themselfs.
Posts: 374 | From NJ | Registered: Aug 2006
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the url is bad for me too...however I got on thru the bad url post itself.
when that pops up scroll shortly down and it will tell you to click - it does come up then.
I just spoke with her on the phone and this sounds promising.
Posts: 374 | From NJ | Registered: Aug 2006
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Petra, Can you please list the ingredients? Some of us (esp. me) are very allergic to many things. I can't afford to order something and then find out I cannot take it. Thank you.
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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She is on nothing else - no meds - no probotics. Started this product in March and by June well she's completely functioning!
Her story is amazing to say the least.
I told her to post more here for us all to know.
I also called the company and they are closed at the moment - they are on mountain time - which ever time that is????
I will try again.
PS - It is a Juice - not sure what the ingredents are - but that's a good question as I too seem to have alot of allergic like symptoms as well.
Posts: 374 | From NJ | Registered: Aug 2006
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posted
That site looks like a pyramid scheme to me for snake oil.
What health product manufacturer doesn't list ingredients in their products? And a lot of the website is devoted to making money by selling the product.
While we all look for miracles, I don't think this is the one. (The second in command is asian and used to sell noni juice).
Would like to be proved wrong....but I don't think so.
Petra, I'm not questioning you....I'm so glad you are feeling so much better~ I'm just curious if you have you done anything else besides taking this juice?
[ 07. November 2006, 12:18 PM: Message edited by: tothepoorhouse ]
Posts: 867 | From PA | Registered: Jan 2006
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
We have once received a 'natural' deodorant as a free sample. No contents listed. Worked well, but were curious about what was inside.
Our research (a difficult one as the company kept it well in secret) demonstrated it contained large amount of arsenic. A very well known carcinogen if anybody wonders.
So it is time to get curious here as well.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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posted
NOTE: THIS IS JUST AN ANSWER FOR MEMBERS FROM THIS FORUM REQUESTIND DETAILS. THIS IS MY PERSONAL STORY.THERE IS NO NEED TO PURCHASE ANYTHING TO READ ABOUT MY WELL DESERVED BREAK IN MY LD TREATMENT.
Original post: Thank you for your comments.
I know nothing about the company. Once a month I order the product from the family member of the guy who found the product. I get 16 bottles wholesale, divide the price of $499 minus $100 rebate by 16 and sell it to my family and friends.
One bottle retails for $39.95 plus s/h, it can be purchased in multiples of 4 for discount.4 bottles retail for $159, wholesale $129. 8 bottles are $319 retail, $258 wholesale, etc.
As soon as my LLMD has all the paperwork ready I will buy it from him, as he can get additional 25% discount (for professionals only), so it will be again cheaper for me and my family.
After 12 years I'm finally going back to my work, so I'm not looking for a new job.
The site www.myforevergreen.org/534072 was OK yesterday and today. If it ever asks you for any ID it is 534072. The site is quite simple. You can choose to purchase the product at retail, as preferred customer with 22% discount or as member with $39 fee for wholesale. General inquiry can be sent to: [email protected].
My friend Lulu Garton is available to answer any of your questions. Please tell her I (Petra Weber) I gave you her e-mail: [email protected] or (970)926-8043.
You can also call the company Forever Green (Utah) at (801)655-5500 and tell them ID 534072.
I don't get any compensation, but think Lulu gets something. She gave me tons of products for free, and for her efforts she doesn't need to spend extra money on her kids and husband's Frequensea.
So you can decide for yourself, if FrequenSea is something you would like to try. Because it is a whole food, you can't overdose on it and it can be taken with other drugs (abx incl.) and supplements (I took 43 when I started FrequenSea).
Proven benefits of marine phytoplankton: - promotes general nutrition - nourishes nerves and eyes - promotes cardiovascular health - supports normal cholesterol levels - promotes normal blood sugar - liver support - healthy skin - provides energy -supports immune system
The manufacturer of this product recreated the "spring bloom" of phytoplankton that feed the ocean. This patented process captures nutritional harvest formely available only once a year and spread throughout the oceans. They support over 200 species of Marine Phytoplankton. Most other pr oducts have only 15-50 species. FrequenSea is a concentrate of life-force of over 200 ocean vegetables.
Marine Phytoplankton, single cell plants are the basis of ALL other life forms on earth, they are vegetation of the ocean. It's consumed by the smallest forms of life up to the largest. Whales that feed on plankton are known to live up to 200 years. Marine Phytoplankton is responsible for 90% of Earth's oxygen!!!
Marime Phytoplankton provide unique blend of phytonutrients and naturally balanced composition of see minerals. These phytonutrients are essential, natural, plant-based chemicals that promote proper metabolic functions.
Forever Green company uses Aqueous Molecular Partioning process which emulsifies all plant components and renders them water soluble. Nothing carries nutrients into our cells better than water. The process preserves the essential oils, resins and all powerful antioxidant rich phytonutrients of the whole plant.
I can't guarantee anythink for yoy, I'm just sharing my story. It's just up to you, what you do with above information.
Good luck! Petra Weber
P.S. THIS IS NOT A PROMISE TO CURE LD OR ANY OTHER AILMENT. IT IS JUST MY PERSONAL STORY.
[ 10. November 2006, 05:25 PM: Message edited by: Punkie ]
Posts: 89 | From Vail, Colorado | Registered: Mar 2004
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geniveve
Unregistered
posted
petra, sorry, i don't know your history.
what doctor diagnosed you with lyme and did you get tested with igenex?
i was officially diagnosed in november of 04 by dr. m in fort worth texas, and had final igenex results in december with plusses at 39 and 41.
i would be interested in hearing how long you have had lyme.
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Thanks punkie for sharing whats helped you.
I am a skeptical person, please forgive the following questions:
Do you think the IV and treatments you had first may have reduced your germ load and maybe thats why you feel better.
Or did a sigificant amount of time, on only this product alone, that you know for sure its helped you?
posted
Just checked out the new url that has been posted.
Went all the way thru the process of ordering - you sign for a month's supply - 1 bottle - automatic delivery each month using your credit card....with shipping and cost - the total per month is $50.00.
Not to bad if it works and allows one to get off of everything (as she told me she was on phone and thru email).
Also when I called her this morning - I got her - I didn't have to go thru anyone to get to her.
What's interesting to me is #1 there is no sugar in this product.
There have been so many different juices on the horizon - xango - nonai - goji etc - for me - I fear them because they do contain sugar - and sugar is a big no no within my body - I react instantly especially when extremely yeasty - if not that yeasty the built up of the littlest amount of sugar over time will explode and bring the yeasty bugs right out again.
I feel much better of course when there sleeping...LOL
Posts: 374 | From NJ | Registered: Aug 2006
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The marine phytoplankton is harvested in special glass huge tubs, using Wellness Water Filter (patented from Japan to destroy anything which doesn't belong to it, leaving it pure like it used to be. So there is no polution, no arsenic, no additives, no preservatives - that's why it has to be in the fridge after the bottle gets opened. The site is in Pacific Northwest - forgot the name of the company. In Utah is just their office.
As far as my LD history: I was diagnosed 8 years after getting severly sick from food poisoning (which triggered LD IMO). I did 4 years of treatment, no abx involved till Jan.06. I have 4 Igenex positive test results (both IGG and IGM), positive PCR test, positive Bowen test for LD and Babesia, and when I still didn't believe it I got Life Blood Analysis done by a pathologist using Bradford Microscope, finding very active lyme, Babesia and mycoplasma. So I can even look every day at pistures or video, seeing these "*******s" eating me alive.
In December 2005 I though I'm going to die, as my treatments were not helping at all, so I have agreed forst time on abx. I got so sick after my first IV Rocephin -I got only 1/4 dose (1/2mg) and was in ICU for 4 days on life support. My LLMD prescribed whole bunch of abx and other supporting meds and supplements. I started very slowly, like baby doses. After 2 month I still couldn't increase any dose. I don't know how the Rocephin would help me as I took total of 6 quarter doses, last in Feb. 06.
From March 06 I started on FrequenSea, my stomach wouldn't keep any meds or supplements down, so I just did IV pain meds and Mepron once in a while.
On June 1, I woke up as a new person, quite resembeling me 12 years ago. The rest of my story is in my previous post.
I went through quite a bid. 11 pulmonary emboli, 4 strokes, 2 DVTs - 1 in my heart, 4 strokes from blood clots in my brain. It's called hypercoagulation not responsive to ANY blood thinner. But since May 06 I didn't have any bloot clot. Interesting.
I would go through about 6 pneumonias a year, I had none since spring.
I lived attached to oxygen generator 24/7 for past 6-7 years. For 2 month I haven't use it - and I live in really high altitude. My pulmonary function test, VQ and CT scan show total reverse of lung tissue damage, with minimal scar tissue.
I used to spent month and month in the hospital for pain contol - mainly migraine and bone marrow pain (mycoplasma symptom). My record was 2 years ago - 96 days non-stop in a hospital. For blood clots I stayed just for couple of weeks at a time.
But I do need to complain about this product FrequenSea: I was in menopause since age 34 and since sommer I get my period again. I didn't use any hormones any meds to provoke it. My Dr. is so exited about it, he is not the one with belly cramping and stinky tampons.
So to answer the main question "What made me so much better" I thing FrequnSea supplied my body with vital nutrients in huge doses, which helped fuel the body, to get it solid platform for major internal platform. FrequenSea substituted my need for hydrocorticol, Syntriod, probiotics, multi-vitamin and mineral, narcotics, stimulants (Provigil), anti-vital,bacterial,parasitic and yeast meds, blood thinners, sleep aid (Ambien, Lunesta), anti nause drugs (Zofran - which costs $38/per pill cash, just not to barf your guts out), and female hormones, just to name the basic medications I could quit.
There are too many changes to the better to list them all. I hope I would stay on this track.
Thank you for all your questions, as I have learned more about Frequency in last 24 hours than ever before. I hope everyone will see at least some improvement.
Please let me posted on your progress and also if you find out different dosing. I use a bottle in max 10 days (32 servings), after stoping the product and going back into my old bad myself I used one bottle in 3 days hoping it would not take 3-4 weeks to work again. It still took 3-4 weeks to work again, so I don't think that megadose was justified. Now I'm smarter, I just don't stop taking FrequenSea. I'm just afraid to go down to maintenance dose, which is 1 bottle a month.
Please let me know if I didn't answer any question.
Posts: 89 | From Vail, Colorado | Registered: Mar 2004
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posted
I hope those of you who are ordering this keep us updated on your progress. Don't forget to check back in!
Wish I could get a free sample first as it is pricey. I've got a drawer full of supplements that just sit there and taunt me. Posts: 867 | From PA | Registered: Jan 2006
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posted
I wouldn't worry about it poorhouse, as things that sound too good to be true always are. I think that you are wise not to get sucked in. This stuff has no antimicrobial properties at all. It's just very expensive food.
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Here it is without the extra bells & whistles.
I'd suspect your hormones are being spiked by frankincense, ginger, maybe rose etc. These plants have phytohormones.
Also, Jerry Tenant used to practice with the scenar, and ran a yahoo group for a number of years but stopped. Is he still giving seminars about scenar or has he moved on?
[ 08. November 2006, 05:50 PM: Message edited by: oxygenbabe ]
Posts: 2276 | From united states | Registered: Jun 2004
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geniveve
Unregistered
posted
hell at this point, i'm willing to try anything. only thing is i don't give out credit card numbers due to identity theft.
is there anyway i can send a check and try only one bottle???
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
Is this product a new version of Xango? cause they are so similar making me wonder that they really work and we just need a well balanced diet.
I don't beleive that both products contain components that can effectively kill Lyme pathogens.
Posts: 1078 | From Fairland | Registered: Apr 2006
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How would you compare these 2 products?
Posts: 374 | From NJ | Registered: Aug 2006
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Well, given my sensitivities, I prefer less than more. One might be reacting well to one ingredient and badly to another and not know. Besides, I'm put off by the marketing hype. What is the reasoning behind frankincense or ginger? There is no information about why the herbs and phytonutrients were added.
Posts: 2276 | From united states | Registered: Jun 2004
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posted
Well I know ginger is used for inflammation and digestion.
I need to look up the other that you said...
So which product in your opinion has more of a benefit?
I did not go back yet and compare ingredients, something I'd like to see side by side.
LOL....I'm not to kean on the marketing thing either but something needs to soften my soul as I'm almost ready to enter into the real estate world and in that world there is definitely marketing! Posts: 374 | From NJ | Registered: Aug 2006
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good for tumors - ulcers - vominting - deysentery - fevers.
china uses it for leprosy.
the inhalation of steam laden with volatile portion of the drug is said to relieve bronchitis and laryngitis.
Posts: 374 | From NJ | Registered: Aug 2006
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posted
Dave that is what I said too in another post....many different kind of juices coming out these days.
I just went to my health food store the other day and there were 4 different juices of sale - one zango - noni - goji and Acai.
All info showed each juice was used for different aliments and each one of them had small amount of sugar in them ( a samll amount of sugar for me is a no no) .
This real xango (the one posted) has sugar...my Xhusband takes it everyday as my Xbrother and his wife are sellers of this product, my xhusband gave me a bottle to try once and in 3 days I could not breath (congestion) I'm assuming the sugar as it feeds my systemic yeast, so I could not take it - it scares me when the chest congestion comes in.
I have a whole darn case of it right here in my house as we speak, Xhusband has auto delivery and he had extras - so for now it sits.
posted
My first question would be, "Has anyone contacted Dr H to see if he is really recommending this product?" Not to say that a doc couldn't be hoodwinked, but most of them are pretty savvy about evaluating products they endorse.
As for the ingredients, basically a list of amino acids, minerals and vitamins plus antioxidants. Frankincense is the same thing as boswellia -- an anti-inflammatory.
Nutmeg, ginger and boswellia are all used in Ayurvedic (Indian) medicine for G.I. issues. Looks like the Rosemary is added as a natural preservative -- kind of like adding Vitamin E to fish oil capsules.
The one ingredient that I found interesting was the Substance P -- this is a neurotransmitter that your body produces when you are in pain. Hubby had a doc give him this once and as with all homeopathic things he has tried it made things worse instead of better.
I don't think this product could hurt you, but I have absolutely no confidence that it could kill Lyme or any of the coinfections. If you are lucky it might give you an energy boost, but I would be very surprised if it did much more than that.
This is my opinion and not medical advice.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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I was once told by my doc's that there was nothing more they could do for me. This after being treated for Lyme already straight for 7 yrs Orals and Iv's.....
I searched out another doc, went was put on IV again and started to have extremely scaring and sudden reactions to the IV meds and such.
I stood up one day and SAID NO MORE - NO MORE DRUGS - (orals -IV's) doc's warned me not to do this as they told me I might die.....I said so what - I might die on this crap as well.
I said I was taking my chances - ( I knew it was a risk) but I placed it all in Gods hands and if he wanted me - he needed to come get me - it was now or never....
Well I guess the good Lord decided that at least for then it wasn't NOW because I'm here and alive and living - 9 yrs later.
When I first saw my regular doc's after about 9 months they said to me - what ever it is your doing - keep doing it because you look great - and we believe and can see your feeling great. Something that they never thought was going to happen to me ....
My point to this is that each and every one of us needs to find that, needs to get to that point, what works for one doesn't work for another, and nothing says we shouldn't at least try new things or different things, because one will never know.
A new and different path back then was what brought me to where I am - many different things were tried, some rejected - some not.
But I stand and am a believer - heck I'm a spectic too...but I'm willing to try any natural thing as long as it doesn't promise to kill me...LOL Posts: 374 | From NJ | Registered: Aug 2006
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quote:Originally posted by Dave6002: Is this product a new version of Xango? cause they are so similar making me wonder that they really work and we just need a well balanced diet.
This product is NOTHING like Xango....not at all...except that the Big X has gotten me to feeling WONDERFUL as this other product seemingly has for punkie.
Neither of us is claiming that it cures ANYTHING. But if you FEEL cured, it's all that matters to ME!
Xango contains MANGOSTEEN. That is the only 'active' ingredient....and it's a powerful one!
Punkie's product does NOT contain mangosteen.
When you read the research on the mangosteen, keep in mind that all the research was done YEARS before our product was brought to market. [as in 50 yrs in some cases]
As for the sugar content. It is a non-issue. It is fructose and has minimal effect since mangosteen is a natural anti-fungal.
Diabetics love mangosteen.
Ladylee....That congestion was most likely the mangosteen clearing toxins from your sinuses. Had you kept at it, you likely would have cleaned things out a bit more.
I no longer have to take Flonase, nor antihistamines since taking the mangosteen.
I've always been sensitive to yeast issues, that's why i preach it so much. But mangosteen has NOT been a problem for me. All you have to do is watch your diet...which is what all of us should be doing.
We have many asthmatics and COPD patients taking this product...so breathing should improve on it, not get worse.
At any rate, I fully believe natural products can improve our health! Why wouldn't they? They are NATURAL and our bodies LOVE natural.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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You have not been around very long or not read very many of my posts obviously.
Hubby started out with the herbal route and ended up in the hospital 4 times in 6 weeks I think (with Dr J in Kansas -- author of Healing Lyme With Alternative Medicine). We have also gone the alternative route with hydrogen peroxide IV's and IV Vitamin C etc.
Have done the P.K. protocol with IV glutathione and IV phosphatidylcholine. Have done the conventional IV Rocephin with the Dr B. Have done IV colloidal silver (Argentyn 23 -- currently) and the Buhner Healing Lyme protocol (currently).
Have taken thousands of dollars of nutritional supplements -- you name it and hubby has probably tried it.
Yes, hubby is still sick. However one visit a year with an LLMD is probably one factor in that -- spent all our money early on with ducks trying to get a diagnosis that was not anxiety/depression.
In the 5 1/2 years hubby has been sick (in treatment for about 3 years) the longest period he has taken antibiotics continuously is 4 months. We knew from the start that his G.I. could not tolerate endless antibiotics without breaks. Toxicity is a very real concern and I feel this is downplayed by too many LLMD's.
I kind of share the philososphy of Buhner as posted here.
My point is that it is fine to discuss supplements and alternative treatments etc -- the problem is that not everyone realizes that just because something makes them feel better it doesn't mean they are killing Lyme or coinfections.
Dr B told hubby he didn't have a problem with alternative treatments as long as he didn't do something that was potentially harmful. He also said that just because a treatment made you feel worse that didn't mean it was helping you either. Arsenic will make you feel bad, but that would not be because of a herx.
If you or anyone else tries the product I hope it lives up to the hype. A return to some semblance of a normal life is what I pray for for hubby and all other Lymies.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Lymetoo, I agree that natural stuff can help fully with our body's as well.
That is why whenever something new pops up - I investigate.
Maybe your right about the sugar in the "X" - the congestion comes in on to the chest - so it makes it hard when you can't breath to tell if it's a reaction or if it's a die off.
Maybe I will give it a try again soon, since I ordered this "green" as I'll call it - I will wait to see how that makes me feel, as I plan on doing at least 3 months on it.
My boys take the xango.
How long were you on it before you noticed a differance and are you on other things?
Posts: 374 | From NJ | Registered: Aug 2006
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I was not aware that your husband started out from the onset of Lyme with natural things.
Sorry to hear all that he's been thru.
Please don't get me wrong to this day even tho I have had a harder time at first after stopping meds for lyme - I do not in any way shape or forum say that my doc did me wrong by choosing aggressive treatment with the onset of my lyme thru IV's and orals for 7/8 yrs straight - as a matter of fact - I thank him for saving my life!
It was after having all that ( the meds ) and even one more yr yet that I started researching natural paths for this illness as well as yeast.
Some worked some didn't - and this yeast is a beast as well.
I think lymetoo said it best, it's natural so it can't hurt.
But I guess in your husbands case it can and did hurt right?
So what has his progress been and what is he taking?
I agree - Best wishes and best health to all!
Posts: 374 | From NJ | Registered: Aug 2006
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posted
Punkie, Your story is truly amazing as is Tom Harpers. You went through so much, too much!
I can't even imagine how I would keep my head together going through all of that.
Thank you for returning and sharing your success. -------------
I just want to add that there are a few other ingredients that were left out in the above posts The product labeling does list Mangosteen - also bladderwrack (what is that?) 24k chocolate, Spirulina, Kelp, and Irish Moss
Posts: 465 | From New York, NY | Registered: Aug 2005
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posted
Interesting information - glad to hear that you are so much better Petra and I thank you for sharing your experiences.
But, it's a bit worrisome that you are freely sharing specific info. about your Lyme doc online. We go to the same doc and he has not mentioned this product to us.
This reminder from the moderators thread asking that we NOT post doctor's CITIES!....
"posted 06 April, 2006 03:16 PM by Lou B LymeNet Users, The LymeNet Terms & Conditions contain the following: You also agree not to post the last name, or the first name, of any person that treats Lyme disease. Instead, please use the first initial of the last name only, with the state, but not city. For example, Dr. B. in NY. This person's contact information should not be displayed on LymeNet. However, you may email this information. This is to protect those that treat Lyme and the Lyme community.
A little reinforcement. The following is part of a recent email exchange I had with Pat Smith, President of LDA:
"Lou, at the moment I know of a half dozen or more of docs under scrutiny. A few of the docs have websites and go out there, but most don't. The major websites do not post names. I do not use names when I speak about docs, we do not use them on materials in testimony and try to train patients not to use them.
I used to think people were a bit out there when they said websites were monitored. We know from certain legal cases that indeed, that has happened. People speak about treatment on the net. Not good to have someone say Dr XXXX gave me 1G XXXX drug 2x day. I actually have become more conservative as I have seen documents and heard political chatter all over and I think we keep docs and specifics of treatment as off the net as possible."
Got the message? [tsk]
-------------------- Lou B"
With the climate nowadays against LLMDs, I'm thinking that we shouldn't even be using our docs initials in our posts - save the details for e-mails which are secure - just my opinion! We need to protect our docs from prying eyes that might use the info. to their detriment.
Hope that we can all find therapies that work for us, Nancy
Posts: 688 | From Florida | Registered: Aug 2001
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
I just have to agree with Bea.
In addition:
1. Natural can mean many things...not all are good. Natural does not mean Organic. Natural does not mean safe.
A natural vitamin C is the exact same chemical formula (by definition) as synthetic Vitamin C.
A chemical formula is what it is, no matter the source.
Many things that exist in NATURE, there by NATURAL, are NOT good for us.
2. Fructose is NOT good for us. In fact, recent findings state that the Fructose in soft drinks is partially responsible for the Obesity Epidemic in children. The corn syrup industry(Cargill, Archer Daniels) has been pushing Fructose on the public for years...empty calories are empty calories!
3. I wonder what constitited the diet of those who claim benefit from this product...BEFORE they took the product? In other words, perhaps this product was simply makng up for the lack of nutients in the person's basic diet.
If one eats well in the first place, lots of veggies and fruits and lean chicken/clean fish/and no added sugar, one should be OK in the nutrient department.
Yes, I eat as such AND take some basic supplements as well.
I have tried Mangosteen...tasty, but zip. I have tried special Green or Red powder supplements. Zip. Marketing hype.
By the way, Dr. H recomended Zhangs Chinese Herbs years ago when I was his patient.
Another big ZIP and a waste of money.
Going off ABX i dangerous, as the bactria attacks cardiac muscle and brain tissue. I know, as I have a Right Bundle Branch Block and Severe Hypoperfusion of the Cereberal Cortex(Brain).
No wimpy juice or supplement is going to kill the ketes the way some ABX can.
Yes, I agree, one can begin to feel toxic...but I am used to the ABX...no GI problems, nothing adverse at all.
I just wish SOMETHING would work after 12 1/2 years and four ILADS LLMD's!!!!
Whatever floats your boat friends!
OH, the Nutrasilver? Well, this is day 6. Am I better yet? No. But...perhaps in a few days...na...maybee not...or???
Peace, Love and Wellness, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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posted
have you tryed mepron with zith and art together?its seems to work for me and I have the severe hypoperfusion...if you do art becareful and do it with an llmd ...I agree to keep killing the infection wether it be lyme or co infection... eric
Posts: 593 | From long island ny | Registered: Apr 2006
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Where do you get art? I would like my daughter to add it to her zith/rifampin regiment.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Qustion: From moderator's message I'm supposed to change my original post, but I don't know how to edit it.
I meant to share my progress after talking to my LD friend (one hour before the post), who got very upset, that I waited over 10 month to tell anyone, what I was doing.
I didn't research the FrequenSea product at all. Most of the information I just got from phone calls and e-mails in last 2 days. I took the product just because I saw the great results it had on a lot of sick people in our valley.
My whole life I was a very succesful professional athlete. Came to US in 1990, shocked about junk and fast food, which I have never touched in my life. My friends would always joke, that I must be sick from eating all the organic and natural foods. Truth is, if my life style would not be so pure, I don't think I would be still alive.
I was so frustrated, that all 12 years I was doing everything "right" and was getting sicker and sicker. My friends - smokers, drinkers, fast food junkies (with great sence of humor) were the ones who were getting better.
I can't comment on the questions about different ingrediences in FrequenSea, as I don't know which ingredient did what for me. I can clearly relay to a person with drawers full of products (I have 7 file boxes in my bedroom). I put my trust into everything which seemed at that time it could help me. So I treated FrequenSea in the same manner. No hype, just to try it for 3-6 month as I did with every other products in past.
The issue of payment for FrequenSee by check: I don't know if the company takes them. But if you want, I can send you a bottle - I just ordered 16 bottles, then I divide the total on the invoice to get to the price of 1 bottle.(Last time it was $499.95 for 16 bottles, $42.50 tax, $32 s/h, which comes to $35.90/bottle plus shipping to your home, guess about $4.00) If you are interested, please send me a note on my e-mail [email protected].
Please keep in mind, this is not my business, I'm just trying to help the same group of people, who helped me so much during very hard time of my LD period. I didn't think I would be getting so many possitive responses. It is so sad to hear, how wonderful people suffer every day.
IMO I think FrequenSea gave my body the best nutritional fuel to kick by body into gear and start to heal itself. I don't think FrequenSea is meant to "kill" anything, but on the other hand I don't think I suffered from abx malnutrition, my pain was not a sign of body's cry for narcotics, My nose was not stuffed by need of Nasonex, etc. , my daily vomitting was not due to the lack of Zofran (or other ungodly expensive meds - $38/pill of zofran was my co-pay); etc.
IMO FrequenSea is for ME the product I was praying every day last 12 years. So it is something my body clearly could absorb to take advantage of. I'm very pleased it is natural product, but I would be glad if a man-made product would have the same result. RequenSea just fits better into my lifestyle.
If somebody took my report of recovery as a sale pitch, I'm truly sorry. I hope I have explained it clearly, that I'm just sharing my story. Please note, I never mentioned, that I'm cured, as I don't believe you can ever get cured from LD. I'm just having my pre-LD life quality back and enjoying every moment of it.
I'll keep you posted on my future progress. My job starts on 11/22/06 and I can't hardly wait to be back. I just wish for everyone, that one day you too can write a story like mine using whatever worked for you.
Take care, Petra Weber
P.S. Sorry about the lenght of this note. It's amazing how easy is to write without the brain fog. Wow - I just found out how to do edits.
Posts: 89 | From Vail, Colorado | Registered: Mar 2004
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Thanks so much for all the great information, Petra. I'm very glad to hear of all the responses you have received. I hope you haven't been too overwhelmed.
And I wish you great success with your new job!
Tracy in Colorado
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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