posted
My lyme/western blot test recently came back negative but from what I've read here, I need the info from the bars myself to make a determination since it wasn't done @ Igenex. Can I request that directly from my primary, will it show on his end or does the lab give him generic results, in which case I would have to contact the lab to get the specific bars?
Thanks!
Posts: 46 | From RI | Registered: Nov 2006
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Call the doc that ordered the test from Igenex and the office should be able to relay the info over the phone and also mail you copies.
You are entitled to copies of the results.
Post them here and someone will explain the details.
BTW, my Igenex result were negative as well however, I was ++ on band 31 which is indicative of Lyme exposure.
Keep in mind that Bb is a clinical dxs and Labs are used to support the diagnosis.
Tic
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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posted
Tic my blot *wasn't* done at Igenex though I am planning on having it done, just not sure how to go about it. What is the cost and what tests should I have done? Do I need my primary to order it?
My question was if I had the blot done by a local lab and it came back negative, can I still see the bars on those test results to see if anything looks off?
Thanks!
Posts: 46 | From RI | Registered: Nov 2006
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posted
Unfortunately, there are only a few labs that test correctly for Lyme and co infections. My first Western Blot for lyme was reported as negitive. I asked my primary doctor to give me a copy of the report, and all it said was negitive. My doctor didn't realize that that was not a full report. When I called the lab, after quite a run around, they told me "it is either positive or negitive, we don't do bands."
This is unexcptable.
I then went to two different infectious disease doctors, neither of which questioned the report. Or should I say the one word. All this to say lots of labs are clueless and lots of doctors also are clueless. (some by choice)
You will have to insist on testing at one of the Tick Borne Disease speciality labs. You might have to ask more then one doctor.
Unfortunately, a doctor has to order the testing.
I got my primary care to order through Igenex by ordering the kit from her office, then saying to her "Please humor me. I just want to know."
Yvonne
Posts: 258 | From Washington State | Registered: Nov 2005
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posted
So if I understand it right, when I get the test kit from Igenex, I go to my primary, have him sign off on it (which he agreed to do thankfully), and I could have the blood drawn then for me to send? Do I mail the samples back to Igenex myself the same day the blood is drawn? Does it take a long time for results?
Sorry about all the questions it's just that I've never done this before and want to be clear. are #188 and #189 the only necessary tests for Lyme at this point?
Thanks!
Posts: 46 | From RI | Registered: Nov 2006
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