posted
I have Kaiser and amazingly I presented my MD with my Igenex WB (which is IND 4 + and 5 IND bands , 1 + and 3 IND)as well as a symptoms sheet filled out.
He sent me to a ID, who said I didn't have Lyme but most likely MS and he sent me to a neuro.
I went to a LLMD out of state and out of pocket.
I then went to Kaiser's neuro with the same information and the treatment notes from my LLMD. She ran a boatload of other tests and...
Gave me a clinical dx of Lyme.
Pigs do fly. She has been working with my LLMD and prescribing the medications he recommends to treat Babs and Lyme for the last 6 months. It goes against the treatment protocols but so far it has been covered.
I still pay out of pocket to see my LLMD and she works with his treatment notes.
I don't know if she would have thought Lyme if I hadn't come in sure that that is what I had.
-------------------- Lucy Posts: 342 | From Hawaii | Registered: Nov 2005
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posted
Thx for writing. So...may i ask...are u confident with the Lyme diagnosis over MS? Interestingly...i JUST went to a neurologist today at Kaiser. He didnt say what he thinks i have but pretty much said something is obviously wrong. (I believe MS). But heres the thing....yes some of my symptoms (vision, left side numbness and weak foot, heat intolerance, mood swings, tingling, head pressure, etc ) point to MS...but if i continued to list my symptoms of alcohol intolerance, anxiety, nausea, etc etc) it could be something else. You are a little ahead of me because i should get my lyme test from Igenex tomorrow...and i set up an MRI appt today. Glad you are on your path to recovery. I also just got a diagnosis of CSF a few weeks ago which leaves me that much more confused. Pls share any info you might have with me on your symptoms. etc... thanks again
Posts: 56 | From bayarea | Registered: Nov 2006
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posted
PLEASE PLEASE PLEASE tell me who your doctor is-are you being treated with IV?
I have seen over 20 kaiser ducks who have told me repeatedly-despite a postive western blot igg igm from igenex that I DO NOT have lyme.
They INSIST I am "crazy"-and further more tell me I am depressed and if I just take a "happy pill" I will be all better.
I have been told that I am "typical college girl, with stresses and until I can learn how to deal with them, they CAN'T help me.
My primary care believes me, she's even willing to treat me with IV therapy, but she needs another doctor to back her.
She too has been working with my LLMD (out of network) to prescribe me oral meds.
I live in Northern California but I am willing to fly anywhere if your doctor will treat with IV therapy.
I have also had ONE kaiser doc-a rheumotologist tell me that he believes that I do have lyme and that he would recommend IV therapy, but he cannot authorize it.
I have had EVERY test imaginable-ALL NEGATIVE! I have had repeated Aids test, upper lower gi, sigmoscopy, colonoscopy, mri's, x-rays, allergy tests, spinal tap, eaten radio-active eggs-I mean seriously you name it and kaiser has tested me for it-
They came up with NOTHING, except chronic fatigue do to stress and fibromalgia cause unknown-
I know that I have lyme and babs and bart and erchil-but it's impossible trying to get them to "go along with treatment"-
Ne wayz, anything you can do or information you could give me would be great!
posted
they also tried to tell me I had MS-but my neuro doc (who didn't speak any english or to woman) told my brother that I did not have it-per my spinal tap result and my symptoms puzzled him.
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
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