If you have an important issue like, finding a sick animal, having chest pains, child is fainting, etc, etc.....
Please dont post it here, TAKE ACTION! What I mean to say is this....
If something is vitally important, then take the needed action at once, dont post here, its crazy!
Chest pains, ill, blue, breathing issues, found a dog/cat, should be dealt with by the proper channels...
I cannot believe the posts I read sometimes, it really shocks me...
Chest Pains = ER Finding a sick animal = ASPCA, LOCAL NO KILL SHELTERS, every state has them, just do a google search... Breathing issues, fainting, = ER I know we all have come to trust one another here, but lets be serious with some of these posts... While your waiting for answers from Lymenet, someone or something could die!
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posted
While I know that you Rob are a very kind person and you only mean to help, I think you are forgetting something very important.
Sometimes the members here are so foggy, they just are physically unable to make a clear decision while in the situation. They know something is wrong, but can't figure it out on their own.
While I agree that people should take the appropriate actions, you have to remember that asking for advice and help is the only action available to some of us at certain times. Hindsight can be 20/20 and when looking in from the outside. Unfortunately, this illness can leave us looking through very murky vision.
I remember this past summer, during a horrendous herx and stifling heatwave, the air-conditioning was out in the aptartment of our dear friend Melanie Reber. Melanie is BRILLIANT!! She is generous and considerate and gives detailed information on just about everything to just about anyone.
Well, Melanie had to post on lymenet for tips to keep her and her sick animals cool. She was so sick she couldn't think, she had to be told to go to a hotel. This may have very well saved her life. She was so appreciative to the members who helped her realize how to take action.
So please everyone, if you don't know what to do, post and ask. Don't be afraid, most of us can remember a time when we were also unable to think clearly. ( for me this happens almost daily, I had to point to my item on a menu yesterday because I couldn't get the words out)
Rob I know you are a dear heart and you just probably forgot how sick the rest of us are. I am so thrilled you are feeling good nowadays.
-------------------- Daisy Posts: 122 | From at the computer | Registered: Jul 2006
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posted
Going to the emergency room every time people with Lyme have a scary and weird symptom often really doesn't work.
We often test negative for the usual suspects as to why we are having chest pains, shortness of breath, etcetera.
Doctors tend to already think we are hypochondriacs and nuts a lot of the time. Also, a lot of people have major financial constraints.
But I think everyone should know this is just patients helping patients, and is not a replacement for necessary medical attention.
Our symptoms also change constantly.
I know many times I went to the hospital, the symptom I went in for disappeared and was replaced by some other different
but equally upsetting symptom, and doctors thought I was making things up, to have random symptoms appear and disappear so rapidly.
I did get proper help there though for breathing problems from asthma and the flu, which they did know how to deal with.
Farah
Posts: 208 | From New Mexico | Registered: Dec 2005
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Hi Rob,
I have been sick and dealing with all this s*** for 19 years.
I know my body and how bad a symptoms like breathing difficulties can be before I really need to go to the er.
If a symptom is so severve I would go to the er.
How often have you been to the er with lyme symptoms?
Do you know how much you get harrassed and mistreated when you have chronic lyme (a disease that almost every er dr doesnt think exists)
While one is scared and worried about an accute symptoms you have to fight and argue with drs who wont consider the most probale cause of your symptom (chronic lyme).
Lets just say its not fun and I aviod it as much as possible.
Some people just want to know that others have had a symptom to... like fainting.
I remember on one post someone said their husband was fainting aboot an average of 5 times a day. Apparently the lyme had messed up his adrenal function... so he even knew the specific cause......
are they supposed to go to the er 5 times a day?
I know you mean well...
But there are people on this board who have cognitive difficulties, people that are bedridden, people who have NO ONE left in their life because of this disease.
I have my family but I have no real life friends left... I consider the people on this board my friends...
And may I ask who do you turn to when you have any kind of problem (even if it is with a pet)
... my guess would be your friends (and the people that understand you best).
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I don't think Rob meant any harm. If anything, he was trying to help.
I think there is some good advice in there. Lyme can cause heart damage. Chest pain needs to be taken seriously. The same with restricted breathing.
People don't need to run to the ER with every new symptom. But something like new chest pain should get checked out ASAP. Remember, Lyme can cause heart damage.
In my experience, somebody usually responds to these posts quickly with the advice to get to the ER.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Yes I am sure that rob doesnt mean any harm.
I am CERTAIN he was trying to be helpful. I know you are a really nice guy and have never said anything to injure anyone.
You have even had some very elequontly written supportive, encouring posts,,especially lately.
I hope you don't think I was attacking you rob.
Its just that I dont want people to read this post and decide not to post if they NEED to.
Sometimes things aren't always black and white, add brain fog and no one else to turn to....
posted
while i appreciate your comments i agree with others. living with a spouse who is in absolute denial and doesn't want to hear one word about health issues, having no family or friends locally to talk to, means you are pretty much isolated. this board may be the only outlet some of us have.
and, yes,i've been at the end of my rope with no one to talk to.
i recently had a very bad episode with a doctor and if it hadn't been for boards, i may well have done something very stupid without their advice.
er---don't think so. it's a waste of my time and unless i am in dire life threatening situations i'll tough it out. they don't understand lyme or yeast and do more damage putting stuff in your records than good.......
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BostonLyme2005
Unregistered
posted
Hi Guys,
I NEVER mean to hurt any of you beautiful people! I just wanted to let you know sometimes we may be in an actual need for real help, same as for an animal.
Vet's/Dr.s, have a place, ni kill shelters for animals, support groups for people, have a place in our lives.
Remember, your life is important, not only to you, but to others. You can always post later, after you are in the safe zone, right!
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