Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
TWO things..
One to do if you are a support group leader..
The other if you are a Lyme patient....
SUPPORT GROUP LEADERS-
Can you please send this short blurb to your local newspaper?
Fill in the blank with your groups name if you are a support group leader....
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Send it attention to the Calendar of Events.
_____________________ Lyme Disease Support Group members are supporting the National Lyme Rights Protest trip to Valhalla, NY on November 30, 2006. For more information please visit: www.lymenews.org
Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Might be a good idea to include Cheryl's link to explain WHY Lyme patients are marching.
I did.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
This is a sample letter.. use it... or do your own. Don't forget to keep them under 200 words!
Please send to your local paper ASAP.
THANKS!!!
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Dear Editor,
Lyme disease continues to be a growing problem here in ___________.
The new Infectious Disease Society of America's (IDSA) Treatment Guidelines have further limited the ability of patients to be diagnosed and treated properly for what can become a devastating chronic illness.
Recently, Connecticut's State Attorney General Richard Blumenthal's office filed a Civil Investigative Demand (CID) to look into anti-trust violations by the IDSA in connection with exclusionary conduct and monopolization in the development of the Lyme guidelines.
Chronically ill Lyme disease patients are also objecting to these guidelines by holding a Lyme Rights Protest on November 30, 2006 at the home camp of 3 authors of these guidelines, Westchester Medical Center in Valhalla, NY.
I would hope everyone who has been affected by Lyme disease would assist our nation wide grass roots efforts to improve the situation for those who have been denied care based on these guidelines.
Please visit the Lyme Rights Protest website at www.lymenews.org to see how you can help our efforts.
Sincerely,
--------------------------------------
Your name, address and phone number (They won't publish phone numbers but need them to verify the letter)
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Done, I did it! The Palm Beach post got one.
Me, who can't usually figure out how to do this stuff.
Thanks for making this simple enough for the simple ones.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
I shortened it:
Chronic infected lyme patients are being denied longterm antibiotic use by infectious disease doctors.
They are planning a march:
Lyme Disease Support Group members are supporting the National Lyme Rights Protest trip to Valhalla, NY on November 30, 2006. For more information please visit: www.lymenews.org
Antibiotics REDUCE high levels of INFLAMMATION which we KNOW is very harmful.
At least 12 other diseases are controlled by nonstop abx.
To see the controversy, go here:
November 16, 2006 08:00 AM Eastern Time
Historic Move by CT Attorney General to Investigate IDSA Guidelines Process
(here I included Cheryl's long link re: the CT attorney counsel)
Every Florida congressperson who would allow me to send them an email, got one as well as the Sarasota Herald Tribune.com
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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posted
Thanks for the posts. You made it very easy for me to copy and paste to send in an email to the editor of my local newspaper
and this will also be posted in the newpaper's blogs.
It's great to be getting some hopefilled information right now. Also am writing to CN's Attorney General just to say thanks so much from those suffering here in TN.
Janet
-------------------- DISCLAIMER: No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research. Posts: 287 | From Tennessee | Registered: Sep 2006
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