posted
Can you PM me please if it was worth it? I will not mention the clinic name but it is in NC and there is a long waiting list and you have to pre pay. I am about to die from Lyme's I suspect and have no other options. Thank you very much.
-------------------- neardeath Posts: 18 | From Raleigh, NC | Registered: Mar 2005
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posted
N.D., PM me with information about your symptoms, any treatment you have had and if you have been tested for Lyme through a lab like IGeneX...and the results.
It is difficult to know what would be good for you with so little information.
Would be happy to help if you can provide more details.
Janet
-------------------- DISCLAIMER: No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research. Posts: 287 | From Tennessee | Registered: Sep 2006
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posted
I'll PM this to you as well, but I am not bashful about the care I received in NC, at the LLMD that has just become fee for service.
When I went in to his office in April of this year, I was very sick. Very sick. I'd had the death "talk" with a number of other doctors because of all the problems this disease had created, but not one of them would admit it was Lyme - because after my positive WB and hospitalization for meningitis/encephalitis, I had 6 weeks of Rocephin IV. As far as any other dr was concerned, that was enough medication, and the Lyme symptoms, that had not gone away, were all from other problems (fibromyalgia, etc....)
I was at my wits end when I went down to NC for the first time. I just knew that nothing would ever help me, and I'd be as sick as I was forever (though that wasn't looking like it's be for long.)
The doctor I found down there was so compassionate. He spent so long with me, and my boyfriend (who was my caregiver when I couldn't take care of myself). He answered every one of our questions, and gave us so much detailed information. He made sure I was ok with the treatment plan, and when I was distraught over needing another PICC line, I was able to talk through it with his staff.
I got a lot sicker between my initial appt, and when the PICC line was in. I had seizures, hallucinations, fainting spells, you name it. His office staff was always there to help. Always. They answered every one of my phone calls no matter what time I called.
I went through a couple of months of IV treatment, and my body was through. It couldn't take it anymore. I stopped the drugs, and the staff supported me. When I had enough, they stood by me and removed the PICC, no questions asked. I was put on a oral medication schedule, which I was on up through my last appointment, when we decided 'm just not responding to orals and need to do IV meds again.
I cried, though I've seen this coming, and the Dr was great. He's the only doctor I've had that I feel actually cares about his patients. We're all individuals to him, and we have individual needs. He has always listened to me, and my concerns, even changing his treatment plan to avoid drugs that I wasn't comfortable taking.
I wouldn't think twice about referring anyone to him. He has given me my life back.
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
posted
Well, the point is that his treatment practices have been affected by the state medical board and the treatment AP got may not now be available. What you need to know is how people like yourself are being treated now. And this is best done by pm. Or by contacting the NC Lyme foundation, which is the support group. You will have to explain your situation, as to prior treatments, test results, etc.
Posts: 8430 | From Not available | Registered: Oct 2000
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Sent you a PM
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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quote:Originally posted by lou: Well, the point is that his treatment practices have been affected by the state medical board and the treatment AP got may not now be available. What you need to know is how people like yourself are being treated now. And this is best done by pm. Or by contacting the NC Lyme foundation, which is the support group. You will have to explain your situation, as to prior treatments, test results, etc.
He's still my LLMD, and still a great one at that.
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
posted
Wasn't questioning your post, AP, just pointing out that his treatments will be affected by the state medical board ruling. I don't see how it could be otherwise.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
NearDeath, I never received a PM from you about seeking a doctor in NC.
I have personal information which might help you but I do hesitate to post it on this forum.
As for Dr. J in NC, there is no long waiting list at all. But there are things you should know.
When people post on the Flash Discussion wanting information but not giving much personal information of their own, we tend to be cautious. Unfortunately that has become necessary because there are people who come here for the wrong reasons.
I am certainly willing to help you if you will PM me.
Wishing you the best, Janet
-------------------- DISCLAIMER: No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research. Posts: 287 | From Tennessee | Registered: Sep 2006
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