"THE IDSA GUIDELINES DENY PATIENTS ACCESS TO EVIDENCE-BASED STANDARDS OF CARE FOR LYME DISEASE"
or simply "WHAT IS YOUR RESEARCH-BASE???"
...because they have none. despite the 400 footnotes cited, this question cannot be reasonably answered.
mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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bettyg
Unregistered
posted
TC, I put my many suggestions on SIZZLED's post in activism.
Adding: I think something needs to show the numbers OF LYME DEATHS and by state IF possible!
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
Mo, good one!
Can I make that a 'Burma Shave' sign???
What sign do YOU want, for those who can't make it there?
Be heard! Be seen!
Posts: 4258 | From over there | Registered: Jul 2001
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Hi ladies....
I sent these suggestions to the website you suggested...
TBD +IDSA ------- DEATH
LYME KILLS
LYME IS THE SUPERBUG!
TBD +IDSA +AMA +HMO ------- DEATH
I thought they would be concise and eyecatching!
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
How's this for Burma Shave -ish (short and rhyming sign) my first one above was definately too long. Needs to be short and stick in the brain, easy to read, for those who do not know the history or the IDSA:
How about:
DENYING LYME is a CRIME
mo
[ 27. November 2006, 10:46 AM: Message edited by: Mo ]
Posts: 8337 | From the other shore | Registered: Jul 2002
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Please make your signs understandable for everybody. Don't use jargon. I don't think many people from outside will get the word (or symbol of) 'Duck'.
Test your sign or your slogan on non-Lymies first. See if they can get it.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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* The fewer words the better; you want this to be legible if your sign should be on the news Thursday evening.
* Personalize with your state.
* Please DO NOT write anything about Westchester Medical Center our issue is with 3 of the doctors there, not the center itself.
* Use ribbon to attach 2 boards together and use them like a sandwich board over a person
* Use Lyme green poster board
Posts: 621 | From US | Registered: Jun 2006
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bettyg
Unregistered
posted
also, cover your sign in dry cleaner type bags in
case it RAINS SO YOUR EFFORTS CAN STILL BE READ!!
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Some signs should say something against IDSA. Otherwise people wouldn't know against who the protest go.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
GEEZE!
To make a sign! It shouldn't be THAT hard to do!!
You'd think I was trying to build a space ship!
It has taken me TWO days to do ONE sign!!!
But..
You can see it from here to the barn!
And I'm working on another one which I hope will be done by Thursday. If so... you MIGHT see a bit of Lyme green at the protest.. and a 1/4 mile away!
And yes.. I resisted the longing I've had for years..
To make a "bill board size" sign.. I can't believe I just used THAT word.. watch out now...
Great job with the signs. I work with an environmental group and we do a fair amount of protests (completely non-violent, no civil disobedience either), anyhoooo we do a lot of placards and signs.
There are a couple of rules: don't use acronymns (IDSA etc), most people won't know what you are talking, or protesting about, so you need to keep it very very simple. Make the letters at least 4 inches high and use a dark marker that won't run in the rain. Have information that you can hand out - the press like filming that.
Keep your focus - this is a very complicated and controversial issue - you need to come across with a sharp focus and present yourselves as passionate about the issue, but also as reasonable, rational and sympathetic. This is doubly important as you are protesting against doctors who are considered eminently credible authorities by most media until proven otherwise.
You probably have already done this but you should identify spokespeople so the media know who to go to. They will probably want quotes from other people attending the rally, but you want to make sure that there are one or two media point people.
Try explaining your protest in under one minute to someone who doesn't know about or understand Lyme disease. If you can't do it in under a minute keep practicing until you can.
You also need to figure out why people without Lyme disease should care about this issue. Most people will think: Why should I care? Says who? What's in it for me? If you can answer those questions in a compelling manner you are half way there.
My advice is to use the thickest darkest waterproof markers you can find so the signs can be read from a distance. I did this for the Hartford Rally and all my signs got on TV/in the papers.
You can attach sticks of scrap wood with packing tape so you can hold the signs up high. You can make them double sided.
I'm still undecided on my slogans but am considering:
LONG TERM ANTIBIOTICS ARE SAVING MY LIFE. THE NEW GUIDELINES WILL DISABLE ME
LYME IS WORSE THAN YOU CAN IMAGINE DENYING TREATMENT IS A CRIME
THE NEW LYME GUIDELINES ARE CRIMINAL DR WORMSER SHOULD BE ASHAMED
LYME IS HARD TO KILL MANY IN MA TOO SICK TO BE HERE
WITHOUT LONG TERM ANTIBIOTICS I WOULD BE DISABLED OR DEAD REVOKE THE NEW GUIDELINES
My mother & some friends might come:
DON'T STOP MY DAUGHTER'S TREATMENT I'VE SEEN HOW EFFECTIVE IT IS
MY FRIEND HAS LYME HER TREATMENT IS WORKING DON'T TAKE IT AWAY
That's all for tonight. See you Thursday. I still have room for a few more from MA. Need a ride? hats
Posts: 956 | From MA | Registered: Nov 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I see you messing around with me Sizzzzzzzzzzzzz...
Hard to NOT say it.. isn't it?
HA!
I know the bus folks .. at least one.. will need a sign. I told her not to worry.. that I THOUGHT you'd have some to share. Good to see you will!
THANKS!!!!
I had a friend come by earlier.
They looked at my signs.. some of the ones I had finished that were laying around still drying.
The first words out of their mouth ..
"You're gonna to go to jail."
Funny thing is.. they meant it!
When I laughed them off they also said not to expect them to get me out of jail. After all... who can be bothered getting a friend out of jail... during hunting season!
posted
quoting GwenB...her comments were OUTSTANDING so I broke them up for you SIGN MAKERS!
posted 27-11-2006 09:56 PM Hi all
Great job with the signs. I work with an environmental group and we do a fair amount of protests (completely non-violent, no civil disobedience either), anyhoooo we do a lot of placards and signs.
There are a couple of rules:
* don't use acronymns (IDSA etc), most people won't know what you are talking, or protesting about, so you need to keep it very very simple.
* Make the letters at least 4 INCHES HIGH and use a DARK MARKER that won't run in the rain.
* Have information that you can hand out - the press like filming that.
* Keep your focus - this is a very complicated and controversial issue - you need to come across with a sharp focus
* and present yourselves as passionate about the issue,
* but also as reasonable, rational and sympathetic.
* This is doubly important as you are protesting against doctors who are considered eminently credible authorities by most media until proven otherwise.
You probably have already done this but you should:
* identify spokespeople so the media know who to go to.
* They will probably want quotes from other people attending the rally,
* but you want to make sure that there are one or two media point people.
* Try explaining your protest in under one minute to someone who doesn't know about or understand Lyme disease.
* If you can't do it in under a minute keep practicing until you can.
* You also need to figure out why people WITHOUT Lyme disease should CARE about this issue.
Most people will think:
* Why should I care? * Says who? * What's in it for me?
If you can answer those questions in a compelling matter you are half way there. Good luck!!!! Gwen
posted
here's to spending thursday night in jail -- only after a civil and copelling education as Gwen defines, of course!
m
Posts: 8337 | From the other shore | Registered: Jul 2002
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
Aww.TC, I will TRY and come bail ya out....after someone bails ME out!
I am using the names of the WRITERS of the IDSA who are there.
If no one knows what IDSA is, at least they will know WHO wrote them!
Posts: 4258 | From over there | Registered: Jul 2001
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Bettyg,
We protest against IDSA and we are not allowed to say IDSA on signs?????
If people don't know as you suggest than press should explain.
'IDSA' must be visible on sings.
Besides, one sentence is enough to explain who they are: associatiation of bad doctors who try to deny diagnosis and treatment of Lyme disease.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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I agree we have to get our point across with quick catchy phrases that the media outlets will focus on. With catchy phrases the cameras will focus in and the media will ask more questions- that should be our goal.
Posts: 238 | From Bethlehem, PA | Registered: Oct 2004
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Love the slogans and the pictures. All definitely have merit.
I'd like to add to one please.
I WANT TO LIVE WITHOUT LYME!!!!!
Will be sending all of my positive thoughts and prayers to all attending. Will be there in spirit if not form.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
up
-------------------- Posts: 1279 | From In hiding | Registered: Feb 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Word of Advice...
Don't try spray painting neon green paint on posters.
posted
ya know, after all this brain wracking over signs and whatnot... i'm beginning to think we should simply all spray paint our a$$es Lyme green and show them the collective bootie.
m
Posts: 8337 | From the other shore | Registered: Jul 2002
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bettyg
Unregistered
posted
quote:Originally posted by Areneli:
Bettyg, We protest against IDSA and we are not allowed to say IDSA on signs?????
If people don't know as you suggest than press should explain.
'IDSA' must be visible on sings.
Besides, one sentence is enough to explain who they are: associatiation of bad doctors who try to deny diagnosis and treatment of Lyme disease.
Areneli, there are so many postings here, it's easy to get mixed up who said what ok.
I did not say anything about IDSA; but I did break up GWEN'S post where she said that and emphasized all the WONDERPOINTS she stated for easier reading for us all.
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posted
I was thinking about this too,(idsa acrynms) but i really want to make something about what the real truth of this issue is. why are they doing this? its tricky to come up with one for that.
I ntended to D isable S icken A nnihilate
I deally D eath S ickness (and?) A quiet epdiemic
one of my friends forgot the name and called it "isad or whatever" i thought that was cute, and it made me think of: idsa makes isad
Posts: 245 | From connecticut, the lyme state | Registered: May 2004
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
Mo,
I'm going to Home Depot now!
I love it the Lyme Bootie Train to Valhalla!
Man that made me laugh just thinking about the sight of all our lime green rumps.
-------------------- Posts: 1279 | From In hiding | Registered: Feb 2006
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