posted
It has helped alot, Carol! Took about 2 yrs, if I remember correctly. Diet helps alot too.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Abx didn't help my IC. Elmiron did, though it took a feew months. It's no picnic, I sympathize.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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Cobweb
Unregistered
posted
I do the Elmiron,too and have had bladder instillations, was supposed to learn how to do them at home-but I ran out of money because of delayed disability due to lyme.
When I am rolling in the dough(whole grain only)again I'll pick up on IC treatments. Meanwhile all doctors' apppointments but my LLMD's-and she's not even getting paid-are on hold.
I feel like Dustin Hoffman-what's that movie?-I think I'm going to die on that bus ride to New York. and that's okay- I know all my lyme buddies will give me a proper send off. Bury me with a laptop logged onto Lymenet.
quote:Originally posted by Ann-OH: I do not have IC.
That's good news!! But bad for your friend!
Cobweb....Yep, a laptop connected to Lymenet. We should all die that happy!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
A yahoo group called LymeTreatments is a small group of IC patients who all turned out to have Lyme.
Bladder pain is a major issue for them so the discussion often is of which antibiotics make bladder flares worse or better. Very nice group of people.
Many of them work with particular practitioners who are specialists in IC, then began to realize a sub-group of patients were Lyme, too. They know IC specialists that I was not familiar with - you'll get some names that you don't normally hear within Lyme circles.
My IC-like symptoms pretty much resolved shortly after I started antibiotics for Lyme but I do get flares every now and then.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I have IC too....its not fun. but diet helps a bunch.
My IC symptoms started october 2005 lyme diagnosed Nov 2005 Had a bad bought of bacterial vaginosis Jan 2005 which gave my bladder a very bad beating, a long with yeast.
IC finally diagnosed May 2006 with a hydro/cysto
The yahoo group is a great group of people.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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I have IC. My IC symptoms began about 5 years ago.. was diagnosed about a year and a half after the onset with IC by a hydro/cysto. I had myself tested for lyme about two months ago, which came back positive.. but, I have reason to believe that I've been dealing with lyme issues ever since childhood, I just never gave it any thought, before this.
No one in my family ever talked about lyme or worried about it. I don't remember ever being checked for ticks, as a young child by my parents.. lyme was just never a thought, even though we live in a fairly woodsy part of PA, and I spent much time outdoors (and in the woods) ever since I can remember.
gabby Posts: 31 | From US | Registered: Nov 2006
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