I have been on ceftin and ketek for 2 weeks and my vision is awful. Worse than ever.
Saw my llmd today and decided to take me off ketek. He said it is hard to tell if it is a herx, reaction to med etc.
We decided to rethink everthing.
This is what he came up with.
Continue on Ceftin, originally I was supposed to add Mepron in after 2 wks but he told me to hold off
Add Samento ( 1 dropperful daily)
Add Artemesinin from Allergy Research Group
This last one I did not think to ask about because my mind was trying to absorb all we talked about.
I have been reading Polar's posts and is this the same thing he refers to as Art. If so, do you think it is safe to use. His posts were kind of scaring me a little.
As I said before I am a newbie but try to go on here daily.
He also told me to go www/chronic neurotoxins. com and take a VCS test and to let him know if it is positive.
He said I should also get an appt with Dr. H in NY just to see if he has any ideas on treatments other than what he is doing.
He said Dr. H is very knowledgable. He has spoken to him many times on the phone and has been to conferences where he has spoken. He thinks the more knowledge we can get the better.
He also wants me to see someone in ME about bio feedback.
Sorry to unload all this but I am at my wits end about treatment.
Oh, and I did tell him I bought the book Lyme Disease and Rife Machines. As soon as I talked he talked. Amazing that our doc's can't bring it up. He read it said to make sure I read the whole thing.
Thanks a bunch to all who respond.
I'll check back in the morning.
karen
Posts: 151 | From Massachusetts | Registered: Nov 2006
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posted
All I gotta say is that artemisinin is pretty darn safe. You will likely herx, but as long as you take it easy, there should be nothing to worry about.
Just my $0.02 worth!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Karen
Artemisinin(Art) is safe- Its used all over the world for Malreaia(spelling)
It is a- Must- for Babs--
Google--WHO Artemisinin -- lots of good info there--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I have read posts of people having vision problems from ketek
so it was probaly a wise move for your dr to take you off it just in case.
This is just my opinion as a lyme patient...
personally I think polars reaction is not from the art as a side effect. I think possible herx from TBD.
I have had alot of the symptoms he has talked about from lyme and what not. Breathing stuff, heart stuff, slurred speach ect.
Alot of us have had this stuff... probaly even more so for those of us who have been sick long term.
I have taken artesismisinin since the summer and have been ok.
If you have babs it needs to be treated. Its not something you want to neglect.
Your dr sounds very knowledgable and it is GREAT that he listens... you really need a dr that listens to beat this disease.
Since tests arent accurate all they REALLY have is what we say to try to wade through the mess to diagnose/treat is tick borne diseases.
And he wants you to get an opinion from another llmd. I think this also proves him to be a good dr. Alot of drs have huge egos and their opinion is the law of the land.
I have never met your dr but he sounds like a good dr.
posted
My LLMD said that he had good luck with treating eye's that are lyme affected with meds that remove toxins from the system. Don't remember the names, but I think it is the same stuf for removing high levels of cholesterol. Ask your Doc.
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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