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» LymeNet Flash » Questions and Discussion » Medical Questions » Nailing the culprits

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Author Topic: Nailing the culprits
Thomas Parkman
LymeNet Contributor
Member # 3669

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Dear Members,

For the oddest of reasons Lyme disease is listed under the college of Rheumatology and not under the Infectious Disease Society of America. The interesting thing about these rheumatologists is that apart from rheumatoid arthritis they do not know the cause of anything they treat and cannot cure or help anything they treat except RA.

Bum Steere, the quack that discovered Lyme disease in children in Old Lyme, Connecticut was wrong in his original analysis. He said it was a viral infection, which was disproven when Burgdorfer discovered our friends Boris and Myrtle Burgdorgeri in 1981. Steere also said it was an auto-immune reaction and inspite of 25 years of research to the contrary that is now the medical dogma. That his treatments, theories and diagnosis have not helped anybody but have only compounded the problem and added to people's suffering does not seem to have bothered him or his fellow quacks in the rheumatology racket in the least.

Go to one of these people, as I did and spend a fortune in tests for nothing and be told to take tylenol as I was. Lovely. In any case my friend Liz Shephard has written the American College of Rheumatology (AMC). Read her e mail on the botton first and then the response at the top. It should blow you away. Cheers. Thomas Parkman

Ms. Shepherd,
>
>
>
>Thank you for your inquiry. The ACR Quality Measures Committee (QMC)
is
>responsible for all quality measures developed by the ACR, including
>guidelines. The list of possible activities in this area is quite
long,
>and the cost to do them is high. Because the ACR's resources are
>limited, priorities are set and followed. Lyme Disease is not
currently
>on the priority list for guidelines development, mainly because other
>diseases like RA take precedence within the rheumatology community.
At
>the moment, the ACR is funding development of updated guidelines on
RA,
>which affects 1% of the US population and for which no current up to
>date guidelines exist from any organization (the ACR's previous
>guidelines in this area are outdated.)
>
>
>
>The QMC continually reviews its priorities and also periodically
>receives feedback from the ACR membership on areas they would like the
>College to focus. Eventually, the ACR would like to develop or revise
>guidelines for major rheumatic diseases in addition to RA. This may
or
>may not include Lyme Disease; at the moment it is impossible to say
with
>certainty.
>
>
>
>Best regards,
>
>
>
>Amy Miller
>
>ACR
>
>
>
>
>
>
>
>________________________________
>
>From: [email protected] [mailto:[email protected]]
>To: Research and Education Foundation; webprogrammer
>Subject: Question from Contact Us Page
>
>
>
>A question from the Contact Us page has been submitted.
>
>Here is the question:
>I would like for someone to explain why you list absolutely no
practice
>guidelines on Lyme Disease, yet you list this disease as completely a
>rheumatology disease. Do you as a group claim and treat this disease
or
>not? It amazes me the conflicting information found about this and I
>would like to see policy on this issue please. If a Freedom of
>Information request is necessary please advise. Thanks ... I look
>forward to hearing from the American College of Rheumatology. Liz
>Shepherd RN Columbia SC
>

--------------------
Thomas Parkman

Posts: 341 | From Columbia SC 29206 | Registered: Feb 2003  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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hog wash heaven again! [cussing]
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Lioness
LymeNet Contributor
Member # 10655

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quote:
Originally posted by Thomas Parkman:
Because the ACR's resources are
>limited, priorities are set and followed. Lyme Disease is not
currently
>on the priority list for guidelines development, mainly because other
>diseases like RA take precedence within the rheumatology community.

That is why Lyme Disease should not be listed "within the rheumatology community"

It needs to be a priority!!

[rant]

Posts: 240 | From MA | Registered: Nov 2006  |  IP: Logged | Report this post to a Moderator
   

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