LymeNet Flash: anyone take Florinef with Lyme?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » anyone take Florinef with Lyme?

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Author

Topic: anyone take Florinef with Lyme?

bigmamma
LymeNet Contributor
Member # 7181

posted

If so, did it help you?

My hormones are all out of whack from Lyme. Very low aldosterone, etc.

Low to nonexistant in many hormone levels. I am in a catabolic state which means breaking down.

(Breaking down in more ways than one.) [Frown]

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Some day, this mamma's gonna dance!

Posts: 199 | From here | Registered: Apr 2005 | IP: Logged |

DolphinLady
LymeNet Contributor
Member # 6275

posted

Florinef helps me as does treating lyme and babesia.

Posts: 925 | From California | Registered: Sep 2004 | IP: Logged |

dguy
LymeNet Contributor
Member # 8979

posted

Florinef was great at relieving my symptoms but anyone with an infection needs to exercise extreme caution.

Florinef is a steroid, and like all steroids it turns down the immune system. So, while you take it you might feel better, but you are also allowing the infection to spread unchecked.

Posts: 727 | From USA | Registered: Mar 2006 | IP: Logged |

am36
LymeNet Contributor
Member # 9409

posted

florinef made my fatigue and muscle weakness profound. Was taking it for POTS. I stopped it after a week. Just my experience.

If you do take florinef, you MUST take potassium supplements with it and have levels checked periodically.

Posts: 169 | From former Philadelphian | Registered: Jun 2006 | IP: Logged |

lymednva
Frequent Contributor (1K+ posts)
Member # 9098

posted

Florinef is often used to treat forms of orthostatic intolerance. It helps the body retain fluid, so as a result there is increased blood volume and increased BP.

I use it along with midodrine and Inderal to manage what was profound Dysautonomia. My condition has improved slightly since I began Lyme treatment last spring.

As noted it is necessary to take rx potassium when taking Florinef, since it leaches potassium from the body. My LLMD also monitors my potassium levels on a regular basis.

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Lymednva

Posts: 2407 | From over the river and through the woods | Registered: Apr 2006 | IP: Logged |

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