posted
I herx badly on Doxycycline (within 3hrs). I also herx on plain Amoxicillin (without probenecid), which I'd hoped would be more gentle.
My herx involves going even more deaf than I am already, with much louder tinnitus, headaches and generally feeling like death.
(I also get big-time neuro symptoms with Doxy - tremors, eye twitching, etc).
The ear thing is worrying though... I'm concerned that the herx could be doing permanent damage to my ears.
I can't manage more than 36hrs on Amox or Doxy before I give in and come off them. Even fairly low doses knock my ears out.
Anyone else get this on a herx? Does your hearing recover properly afterwards?
The main thing I'm hoping for by treating Lyme is my hearing back, because that's been getting worse and worse over the last year (I was a music producer). But I'm worried that treatment will actually do MORE damage.
P
Posts: 19 | From London | Registered: Dec 2006
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Your hearing problem as well as the tinnitus can be due to lyme.When you experience a herx, your symptoms become more exaggerated. Found this article for you to read. All the best to you.
A number of other problems can cause hearing loss, particularly sensorineural hearing loss. Many of them are very common conditions that are not always associated with hearing loss. They include:
Common Childhood Infections Mumps is the most common cause of one-sided total deafness in the United States. Frequently, the child and family are not aware of the hearing loss until years later. Other childhood infections, such as scarlet fever, may also affect hearing, particularly by destroying the eardrum and damaging the middle ear bones.
Special Infections Many infections can result in hearing loss, including:
Syphilis. It can be acquired at birth or through sexual contact, and a person may have it a long time before hearing symptoms occur (sometimes for 30 or more years). Caught early, this form of hearing loss can be cured. However, if it is not recognized and treated, the hearing loss may progress and even become total.
Lyme disease. This increasingly common infection is spread through the bite of a tick. Lyme disease often causes a rash and joint pain, but these may be minor enough to escape notice. A diagnosis of Lyme disease can be made with blood tests. It is treated with antibiotics.
Numerous other infections including herpes, cytomegalo virus (CMV), measles, mononucleosis, chickenpox, pneumonia, flu, and fungal diseases may cause hearing problems as well.
Problems With Blood Flow Insufficient blood flow in the inner ear or related areas of the brain can contribute to hearing loss.
This can happen as a result of cardiovascular disease, untreated high blood pressure, and other similar conditions. It also may be present in people whose blood tends to sludge and clot excessively (hypercoagulability), or who have too many blood cells (polycythemia).
-------------------- nan Posts: 2135 | From Tick Country | Registered: Oct 2000
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CaliforniaLyme
Frequent Contributor (5K+ posts)
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1: Nippon Jibiinkoka Gakkai Kaiho. 1976 Dec 20;79(12):1630-41. Links [A case of late congenital syphilitic labyrinthitis-with reference to Hennebert's sign, fluctuating hearing, Herxheimer reaction and therapeutic response of impaired hearing (author's transl)] [Article in Japanese] Kamei T, Ishii H, Okawa T, Satake B, Yoda M. PMID: 1035264 [PubMed - indexed for MEDLINE]
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
In my experience it will be transient- hope so*!)!! Symptoms often get worse and sometime brand new ones will even appear!! ***********
1: J Neuroophthalmol. 1994 Jun;14(2):77-80. Links Transient worsening of optic neuropathy as a sequela of the Jarisch-Herxheimer reaction in the treatment of Lyme disease. Strominger MB, Slamovits TL, Herskovitz S, Lipton RB. Department of Ophthalmology, Montefiore Medical Center, Bronx, NY 10467.
A 58-year-old woman developed neurologic and neuroophthalmologic manifestations of Lyme disease, including a radiculomyelitis, cranial neuritis and mild right optic neuropathy. Upon treatment with intravenous ceftriaxone a Jarisch-Herxheimer reaction occurred with encephalopathy, mild fever, worsening radiculomyelitis, and deterioration of her visual acuity. Intravenous methylprednisolone was given, and the visual acuity recovered over 72 hours. This case suggests that transient worsening of optic neuropathy can develop as a sequela of the Jarisch-Herxheimer reaction in the treatment of Lyme disease.
PMID: 7951931 [PubMed - indexed for MEDLINE]
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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