posted
In hope that the blood bank would tell me that they didn't want my blood, I asked them for their policy.
(I was hoping for them to refuse my blood in writting,...To help prove that there IS chronic lyme, and they don't want my blood)
Check out the correspondence below..... what should I do?
Von
-----Original Message----- From: [email protected] Sent: Sunday, November 19, 2006 8:41 PM To: Clinical Program Subject: donor elgibility
11-19-06
Dear Puget Sound Blood Center,
I got bit by a tick in March 2005, and contracted Lyme Disease.
What is your policy for blood donation?
RE: donor elgibility Date: Mon, 20 Nov 2006 08:29:39 -0800 From: "Clinical Program" To:
If you are symptom free and have been for at least three days, you are eligible.
Posts: 258 | From Washington State | Registered: Nov 2005
| IP: Logged |
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
wow, that's scary!
-------------------- Symptom Free!!! Thank you all!!!!
posted
Hi Von -- I think the member most active here regarding this issue is Roy Goodloe in Texas. He works with darkfield microscopes that can see the spirochetes in blood! He is very interested in the bloodbank issue.
You can email him by clicking on directory, at the top of this page, typing in his name and then sending him a private message. I think it would be great if he would also post a response here so we could read it. Maybe he might want to contact the Puget Sound bloodbank??
Posts: 13117 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
I agree with some on here to threaten to donate,but i dont think anyone should chance donateing blood,Even if your symptom free for 5 years.Babies,old folks,you name it,nobody deserves this illness.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
| IP: Logged |
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
Who organizes the national blood banks- is it the Red Cross? What about asking them for an official policy?
I think this tactic would be more useful after Under Our Skin comes out, by the way, since the movie discusses prenatal transmission and should get medical professionals thinking about modes of transmission other than direct tick bites.
-------------------- Symptom Free!!! Thank you all!!!!
beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
Be sensible and responsible. Am quite sure I wouldn't want the blood of any infected donor. My nurse has told me to take my name off of the blood and organ donor lists, as a favor to those in need. At first I was conflicted about this but, now I know it is the right thing to do.
Posts: 1452 | Registered: Feb 2004
| IP: Logged |
quote:Originally posted by von: If you are symptom free and have been for at least three days, you are eligible.
That is scary!!
I would not donate b/c I don't want to chance giving an innocent person all the misery I have gone through.
I will more than likely take my name off the organ donor list too. It bothers me to do it, but...
Posts: 240 | From MA | Registered: Nov 2006
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
United Blood Services called on Saturday and asked my daughter to donate blood.
She told them she had Lyme disease. She said it got quiet on the other end (as the person probably hurried to look it up...this is Arizona, you know), then they said, Oh........is your mother there?"
They didn't prod any further. I think just adding that she had a "disease" probably scared them.
I wonder how many people have gotten infected by tainted blood? I think the UBS and Red Cross need to be informed of this potential risk. Testing the serum isn't going to get them an answer.
Could the LDA come up with a pamphlet? I think anytime the blood supply is at risk people listen. Kelly
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
bettyg
Unregistered
posted
please do a search on this and post your thread in those links:
SEARCH found at top under post reply blood medical topic line only any date ... make sure you edited my profile to any date vs. default
leave membership blank and hit send button
you should get many conversations about this!
please post your current link in these! ****************************************
please get out your driver license's where you have shown you are BLOOD/ORGAN DONOR.
take tape/address label, etc. and write NO on it! highlite it!
you don't want to donate: blood. organ, tissue, or eyes!
**************
US dept. of defense made the guidelines of blood acceptability; american red cross follows those guidelines........
posted
I believe that the Red Cross policy is that a patient can donate after treatment and one year (possibly 3 months?) of being asymptomatic. I have not been able to find the policy, but will post if I do.
-------------------- Suzanne Shaps STAND UP FOR LYME Texas (www.standupforlyme.org) (Please email all correspondence related to protecting Texas LLMDs to [email protected] with copy to [email protected]) Posts: 977 | From Austin, TX, USA | Registered: May 2004
| IP: Logged |
bettyg
Unregistered
posted
i've copying/pasting from a previous post i found when i searched with my member no.
i do know the rules showed 12 MONTHS, NOT 3days!
bettyg Frequent Contributor Member # 6147 posted 13-09-2006 01:30 AM
Also if you signed a written paper to donate organs, tissue, blood, etc. notify them in WRITING you are VOIDING that paper due to your chronic lyme.
In LYME UPDATE: SCIENCE, POLICY, & LAW; it states the American Red Cross goes by the Dept. of Defense's rules :
If you have been free of lyme symptoms for 12 months, you CAN DONATE BLOOD! This isn't verbatim but from my lyme memory !
WRONG WRONG WRONG!
If you are going to have surgery, donate blood FOR YOURSELF, and have it clearly marked to SAVE FOR YOURSELF. DISCARD IT IF YOU DO NOT NEED IT!
I taped a NO on my driver's license organ donator until next time I renew my license.
See Treepatrol's newbie links for more comments.
We do NOT want to donate any part of our body! You wouldn't want anyone getting what WE HAVE; would you? Not me!! Bettyg
IP: Logged |
bettyg
Unregistered
posted
up; i added more info early this morning....
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
![[cussing]](graemlins/cussing.gif)
Printer-friendly view of this topic