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Thx, Betty, for the list. Amazing situstion.
TNJanet, when you write again, you might remind them that the governor had Lyme this past summer and was given the gold standard -- immediate IV treatment.
Hm...what about contacting the contacting the governor's office about the whole issue? He's now had some personal experience.
Posts: 13171 | From San Francisco | Registered: May 2006
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Robin, TN's Governor went to the Mayo Clinic! His office received MANY phone calls, letters and emails pleading with him to see a LLMD. They were
all met with denial as far as I know. My own LLMD wanted to talk to him and I made his office the offer but they never responded.
I didn't know about him receiving IV ABX. After the initial reporting of his situation, his office was pretty much mum on the subject. It was
such a good opportunity to spread the word about Lyme but for some reason his office and staff were not forthcoming about his treatment or his
current health. I hope for his sake that he did get IV ABX. He certainly was very ill and his SX came on very quickly. He has stayed out of our
local news lately. I am paying attention to that situation. If you know something I haven't mentioned here, please PM me. Ya know, his spokespeople never actually said he had Lyme
disease. It was reported that he possibly had some type of tick-borne illness. This was a few months before elections and there was a very tight
Senate race here. His party won but I don't remember him doing any public appearances. I do remember a report saying he had lost about 15 lbs.
Guess I will call his office again and ask where he received TX since there we sure need LLMD's in TN and not all people have the luxury of going
somewhere else, especially since he has bankrupted the state's health care system for the uninsurable and needy.
Janet
-------------------- DISCLAIMER: No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research. Posts: 287 | From Tennessee | Registered: Sep 2006
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Thanks so much for your information and suggestions. I will definitely use that tactic when I contact the governor's office again.
It sure is hard to know where to put limited energy.....work on getting treatment, buy groceries, pay bills online, contact govt.
officials about Lyme and the need for DX and TX options. When someone (like yourself) offers advice I am always so grateful. It's as if
putting your brain cells to work on MY situation increases MY brain cells or maybe it's just me borrowing some from you. Did that make sense at
ALL????
Think I'm going to contact Nashville support group and see if they have the latest poop (I mean scoop) on hizz honor. My daughter has their
contact info. So good to hear from you!
Janet
-------------------- DISCLAIMER: No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research. Posts: 287 | From Tennessee | Registered: Sep 2006
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TNJanet -- I think it was one of the news delivery sites that mentioned Tennessee's gov getting IV treatment right way. Either [email protected] or [email protected]. Too bad they didn't use it as an opportunity to educate.
Posts: 13171 | From San Francisco | Registered: May 2006
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Yeah, I had gotten 3 docs name from the ILADS who are located in North Carolina, and one is in South Carolina.
2 have websites. One doesn't mention treating lyme on his site, he just mentions a bunch of symptoms like chronic fatigue, joint pain, etc. He is an Integrative physician. He does both conventional treatment and alternative. He also has stuff about metal toxicity, nutritional support, etc.
Though, I would be afraid of seeing him for lyme since his practice is diluted with lots of things.
And the other one does mention treating lyme on his site. That is the main thing. Though, he doesn't accept insurance, and his first appointment is $700. It does get cheaper for follow up visits. And he goes by the CDC diagnosis. And keeps mentioning about getting repeated testing. So, I don't think I would want to see him as I would probably see him several times and treatment may never even get started. Reason is because I test negative for lyme via ELISA and Western Blot. But I did test positive for it via C6 Peptide, and I don't think that test is accepted by the CDC yet. So, I would probably spend all that money for nothing.
Any opinions on Dr. M in Missouri? He used to work with Dr. C. I would like to see Dr. C, but plane tickets right now are over $500, and his first appointment fee is almost $500. I was thinking of seeing Dr. M since I could drive there in 5.5 hours and he accepts insurance.
So, is Dr. M good to see for lyme and coinfections?
Posts: 310 | From TN | Registered: Jan 2007
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