posted
How many of you have this kind of "electric feeling" like there is a lot of electricity inside the whole body? I have it often and it's just awful. Sometimes there are even real electric shocks in the teeth! I wonder if any supplement would be helpful, I read somewhere that some mega doses of calcium could lessen the sensation. Any experiences?
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
Not sure about calcium, but people do use magnesium for muscle spasms, perhaps with a broad spectrum mineral supplement.
I had all that stuff.....I'd like to forget about it, too, it was so bad.
It went away with lyme combo that targeted all forms, but I have read that bartonella can do this also. So, it would depend on if you are still on meds, what meds, how long, etc.
Hopefully you are reporting this symptom to your llmd?
Northstar
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I am suffering from increasingly frequent electric shocks. My legs even jump from it - the shocks are that strong.
I've already had the nerve burning for four years, and nerve tingling for one year, but the shocks are even worse. It is really affecting me.
I've just restarted Bartonella treatment. The nerve pain has not responded all that to Lyme medications so we are pursuing Bartonella again - I do test positive for it.
I wish I had an answer, but I am going through what you are going through.
I will post if the Bartonella treatment helps. But right now I am having a hard time tolerating even a low dose of the medication.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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quote:Originally posted by northstar: Not sure about calcium, but people do use magnesium for muscle spasms, perhaps with a broad spectrum mineral supplement.
I had all that stuff.....I'd like to forget about it, too, it was so bad.
It went away with lyme combo that targeted all forms, but I have read that bartonella can do this also. So, it would depend on if you are still on meds, what meds, how long, etc.
Hopefully you are reporting this symptom to your llmd?
Northstar
Northstar
Yes, I have reported this to my doc and she's not sure whether it is Lyme or some other neurotoxins that are causing it.
What kind of Lyme combo did you use?
I have been taking a new "natural" antibiotic that my doc gave me for a month now (made from bee propolis I understand). Should be really effective stuff.
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I'm not dealing with this right now, but before diagnosis, this was a major symptom that definitely made me jump. I would get this shock of electricity feeling in two of my toes in my left foot.
Also this electrical vibration in my neck. The doctors tried telling me it was related to migraine although it didn't always come with a headache.
With the diagnosis, all the unknown pieces finally fit in to one mold, but it took me five years to get the answer. I am on Bart treatment now, but only been diagnosed for two months.
I haven't had this come back up YET, but sadly, I do expect this symptom to return during treatment, since it was a major symptoms for me.
It gets so confusing when someone tells you that a certain supplement will help with one symptom and then you read another post telling you not to take it.
My head is spinning, but I would definitely love to hear all replies on this since I imagine my days are numbered before this comes back in the form of a herx and it wasn't fun before diagnosis either. Ugh.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
What you are talking about is different from having a lot of static electricity shocks when you touch grounded things right? You are getting shocks while sitting in a chair or in bed that makes an arm or a leg jump suddenly?
This sounds to me like it could possibly be the beginning of MS symptoms where the nerve sheathing is damaged from the Bb/Bart/Myco/Clamydia/Ricksettia/ or whatever soup of pathogenic organisms are at work attempting to destroy our bodies. It might also be from problems in the brain due to unwanted organisms being there.
Jill, I can see why this is happening to you more since you have had to discontinue Tx for a while. Something that you might want to consider trying is LDN therapy (Low Dose Naltrexone). It works in MS patients to stop the progression of the disease (which is most likely a result of undiagnosed Lyme or another bacterial infection). I was going to start it, but I just found out that it cannot be taken with any Immune suppressant, since it strengthens the Immune system. I am on Plaquenil, so I will have to wait until I finish with it, or discontinue the drug. I am considering changing it for Tinidazole.
This problem should go away with the right Tx over a period of time. It might help to take supplements that can help to repair any damage. I read that NAC helps to protect the Myelin sheathing.
"Over 150 new therapies are currently being studied in MS: drugs that modulate or suppress the immune system; drugs that tar- get immune system proteins to block inflam- mation; anti-inflammatory agents; and anti- oxidants that may help reduce nerve damage. The cycle of attack and repair.
In MS, immune cells cross the blood-brain-barri- er, enter the central nervous system - the brain and spinal cord - and attack myelin, the protective cover- ing of the central nervous system. This causes inflam- mation and the destruction of myelin in patches.
The brain has the ability to partially repair itself by producing factors called ``neu- rotrophins,'' which can repair myelin, regenerate nerves and stimulate new neural connections.
These factors are released during inflammatory flare-ups to repair some of the damage done to the myelin, the cells that produce myelin, as well as other neural con- nections. This repair can lead to a remission of symptoms. However, repeated in- flammatory episodes over- whelm this repair system and the damage begins to accumulate.
Doctors have now recognized this pattern and are hoping to develop therapies that will provide both neuroprotection (block attacks on myelin and nerves) and regeneration (repair myelin and nerve function). Suppressing inflammation One of the first steps in treatment is to reduce the inflammation in the central ner- vous system and prevent demyelination "
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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posted
I've had electric shock feelings in my head, right side only, for a number of years. This symptom has steadily improved during treatment although it does come back during a herx or if I am very tired or stressed. For me it is one thing that I am really happy has improved because it is very disconcerting and quite upsetting.
Posts: 21 | From Ireland | Registered: Oct 2006
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Perhaps it's not the same thing as what you are experiencing but I had both tingling in my extremities, especially my hands. Separately, I have had rhytmic muscle contractions in my extremities and a fluttering sensation paricularly near my eyes.
If you have had stomach problems or, particularly stomach surgery, you mey have become deficient in vitamin B12. In order to absorb it well, a sustance called intrinsic factor that is produced in the top of the stomach needs to be present. Some people lack it. Other risk factors for B12 deficincy include chronic infection and a vegan diet. I say this because B12 deficiency can cause gradual degeneration of the spinal column which, beyond a certain point can be irreversible. This can occur in people whose B12 blood level is normal and an early early symptom is tingling in the extremities.
Many doctors who treat lyme believe that Lyme patients tend to be severely depleted of B Vitamins, in general. A few believe that supplementation with B vitamins can actually support the bacteria. In my case, supplementaion with both vitamin B complex and vitamin B12 have helped me feel much better.
Similarly, many doctors who treat Lyme believe that Lyme patients are chronically depleted of magnesium. Regardless of whether this is correct, magnesium is an antispasmotic and has helped many Lyme patients with symptoms of cramping, twitching, and fluttering sensations.
If one has a problem absorbing vitamin B12, it will be more difficult to treat this with oral B12, but large doses have been reported to do this in some cases. Another alternative is vitamin B12 injections (cyanocobalamine) which is inexpensive (less expensive than the syringe used to give it), and once the depletion is corrected, can usually be sustained with one injection per month.
Similarly, if one has difficulty absorbing adequated magnesium from one's diet it will probably be more difficult to correct this with oral preparations. A complicating factor is that large amounts of magnesium taken orally can cause diarrhea, which then further depletes magnesium. Some here have taken magnesium sulfate by injection and have found it to be very helpful. Usually people take 1 gram (2 ml.) via the intramuscular route. The discomfort can be eased by the addition of 1ml of 1% lidocaine to a 3 ml. syringe and the use of a long needle to reduce the severity of temporary lumps in the gluteal muscle that magnesium sulfate can cause.
Good luck in your quest for recovery. I know that in some ways it can be even more diffiult to get treated for Lyme in nations that have national health services than it is in the U.S. where doctors may have more freedom to treat as they see fit.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
What kind of Lyme combo did you use?
1. mino/zith with pulsed flagyl
HOWEVER:
I threw in all types of supplements , and adjusted diet to natural unprocessed foods.
a. Supplements minerals + magnesium omegas (lots) multi vit + b6,12, b1, folic acid Vit.E (used Weil brand for gamma and tocotrienols) Vit. C New Chapter mental clarity (mycomedicinals) (this has lion's mane in it) CoQ10, acetyl l carnitine, r-lipoic, n-acetyl cysteine, chlorella (I was careful with nac, though) (try to find info on diabetic neuropathy) keeping regular with lots of greens, Zand psyllium
b. foods: eliminate glutens find and eliminate all sources of msg if you do a search here, or on google, for excitotoxins msg hidden you will find a list of the other names they use for msg in foods. did not use l-glutamine for stomach...afraid of consequences and of course, paying attention to threats of candida, etc.
My poor liver !
I have no idea really why it went away...abx? supps? or the combo.
It was horrible deep pass out throw up pain in teeth and jaw and brain. Body symptoms were stinging stabbing.
Also, after it went away, I decreased or eliminated the acetyl carnitine, r lipoic, and nac. I may bring back since I seem to get mild brain pains, with roof of mouth, and jaw involvement, during extreme crisp sunlight or changing weather fronts.
I am trying to find info now, to see if full moon, solar flares, or electromagnetic storms coincide with symptoms. (you can always blame it on the weather !)
Northstar
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