posted
Dear Friends, My name is Joseph and I am from Massachusetts. I have been ill now since the end of 1999. I just returned back from another hospital stay in which I was introduced to more lyme ******* doctors than one could ever want. I am back home now and strongly feel that my end might be coming soon. It has been a long battle and I have been fortune enough to have the best of Llmd but today I am in a situation that is Totally mind blowing. I don't know if anybody with some real knowledge could speak to me I would greatly appreciate as I am alone and I can mentally do it alone anymore. So, At this deepest time in all the years I have been ill. I would again have to ask if there is someone out there that has knowledge that could talk to me before I just can't do it anymore. Just e-mail me and I can either call you or I will give you my # and you can call me. May God bless you all and my he bring fast healing to all of you that are suffering from this aweful illness. Many Thanks. Joseph
Posts: 15 | From Boston | Registered: Jan 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Joseph,
Some things come to mind as I read your post....mind you I have lyme brain.
Get some rest. Give yourself a hug. You sound frustrated, exhausted, overwhelmed...in other words..the mountain is just too high to climb right now or even think about climbing.
I do not do well on the phone but can communicate via the keyboard as I lie in bed.
I came down sick in Oct. 2001....too sick to work ro do routine chores around the house.
I have written letters to my daughters several times when I thought I was going to die.
I wish I had kept them now. I would get better and then throw them away.
Next time it happens, I will keep them and put them in a safe place.
How can we help?
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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My heart is breaking as I read your post as many here have feel that terrible desperation and feeling of helplessness and hopelessness.
I have been through several dark times with my illness where I told my husband I didn't think I was going to live.
Please tell us more about the type of symptoms you are having and treatments...why were you in the hospital, who is your llmd (dr. d?)
With more specifics someone will come along who may have answers for your immediate problem. Most here are not docs but people who are in (or have been in) the trenches of this terrible illness.
Try to be strong and know that you can be feeling better with tremendous patience and nurturing.
Blessings, Kim
-------------------- We are spiritual beings on a human journey...
posted
It was wonderful talking to you, Joseph! I hope I helped in some small way. Let's hope and pray that your special dr can help you find someone who can improve the quality of your life.
I'm so sorry I couldn't do more to help.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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One day at a time is how I survive when things are really bad.
Posts: 175 | From Pa | Registered: Aug 2006
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bettyg
Unregistered
posted
joseph, i'm also going to send you my newbie links/advise since this is your only 5th post in 1 yr. since you've joined.
note at the beginning is the hotline no. for folks thinking about suicide; they are great listeners and perhaps could offer some additional hope for you.
i couldn't read a lot of your post since it's solid block of text with no paragraphs and 2 blank lines between each paragraph.
if you reply, please show it with blank lines between paragraphs so we neuro lymies can read/comprehend and then provide whatever you are NEEDING ... SUPPORT PLUS.
i've been dealing with chronic lyme 37 years; 34 yrs. MISDIAGNOSED, and 2.5 yrs. in lyme treatment.
tutu has been longer; i believe 46 years; so you are NOT alone! many oldtimers like us with lyme forever and never correctly dianosed/TREATED!
i'll send that to you while it's fresh on my lyme mind or that thought went to never, never land!
thoughts and prayers headed your way..
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
i can not offer much except empathy and sympathy.
I have struggled since 1991 but have had many years of remission too. I know the deepest darkest corners here. I am afraid I may not be able to pull you out of them and so i hesitate to say me me me me--call me! But i want you to know that even though I dont know you at all, i can relate to your struggle, your grief, and your exhuastion.
please find a way to hang in there.
suicide hotline is priceless.
A few deep breaths and just letting yourself make it till the sun rises the next day too.
You are so brave and strong to have come so far. Things are going to improve. dont let the disease win. sometimes just when we are about to make improvements, the spirochetes freak out and know they are losing so they mentally mess us up. Dont let them win. You are going to beat them.
all my best, trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
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