After a full year of treatment with IV and orals, it's all returning. The brain zaps, the overall body pain, the forgetfulness and lack of ANY energy due to fatigue. I have to face it, it's like all 60+ symptoms are back.
Painkillers don't help me anymore and the orals make me sick.
I've tried alternative and most haven't had any long-term positive effect.
So, I'm hoping everyone who stops by just throws a shovel full of dirt into the well I'm in and save my family the cost of burying me.
I don't have the results of my mri back as yet, but it really doesn't matter what it shows, does it? I have what I have, whether it's lyme, ms, cfs, als, fibro, bone cancer, whatever......
No cure in sight so I'm thinking of going to a bad section of town and looking for fun drugs. Too bad I don't know any good pushers....just the medical ones whose stash do Nothing for me and my pain.
Sorry for the whine but I had to let it out somewhere rather than keep it in. Posts: 867 | From PA | Registered: Jan 2006
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-------------------- Getting older is when we would rather not have a good time than have to get over it. - Oscar Wilde Posts: 386 | From Radnor, PA - where the ticks run free | Registered: May 2006
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
What alternatives have you tried?
D Bergy
Posts: 2924 | From Minnesota | Registered: Aug 2006
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I don't think one year of treatment is enough for some of us big sickos.
I am on month 13 and I am shocked that I am not free of this $#@$ disease.
Could you be plateauing (sp) in your treatment protochol? Can you get some free mepron from GSK? --It doesn't crap out your stomach like abx.
I like the rife idea, but IV or IM abx may be the 2nd year plan (can you get people who love you to raise some $$$$ for your treatment?
I don't like the thought of you down there in that well, I am clinging to the edge by my fingernails ready to head down with you so please start climbing up!
-------------------- We are spiritual beings on a human journey...
posted
I just bought a rife machine instruction manual for my husband to build from ebay.
I also called an oral holistic surgeon to get rid of problematic root canals and crowns. It's really intersting to me, but every time I try new abx, the right side of my jaw with these crowns swell up so that I'm aware of them. Maybe this is my systemic system is off.
I do remember once the root canals were done for awhile, I got a terrible taste in my mouth. When I went to dentist, he drilled them out and the foul smell almost knocked us all out in the room!!!
So, he drills it out, replaces the hole and puts a crown on them.
Am I being poisoned by way of my mouth? I'm starting to think so.............
It may be my last hope as I will work this with the sauna and abx, plus a few other detox methods.
I only wish I had some pot to get thru it all, since hard-core pain meds do nothing. If anyone out there has a source, I'm so ready to try it. My doc laughed when I told her I'd take heroin for the pain in my overall body if I could.
These docs have no idea what we deal with every minute of every day. I'd do anything to fix it.
My husband said to me today.......so you want to look like the Bumble in Rudolph by having your teeth pulled?
I told him......I don't care what I look like if I can get better! Posts: 867 | From PA | Registered: Jan 2006
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posted
Have you looked at Stephen Buhner's book Healing Lyme? A lot of lymies are trying his herbs, and there's an active email site at [email protected]Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Do a search here on jaw cavitations. Most of the discussions are by Gigi. Many have found that the root canals were a MAJOR source of infection that MUST be addressed.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi tothepoor house ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ here's a cyber rope of hope for you to hold on to from your fellow lyme friends here grab on & don't give up. We have all been down in that dark well but it does get better.
It took me 3 years on different abx to get better & the 7 months of rife have been holding my progress.( Not including my recent trip to CA hell for which in time I will rest & recover)
there's so much you can have hope for:
*treament for the co's-which most LLMD's agree can keep ya sick *herbs *rife *cavitations *a change in abx when you hit a brick wall
you never know when you will turn the corner but you will someday so hang in there & hold on
posted
And it took 4+ yrs of abx and 1 1/2 yrs of rifing to get me where I am. It's worth the wait!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi tothepoorhouse,
I am sorry you are feeling so hopeless right now and the painkillers are not helping. Pain stinks!
I ditto suggestions for treating possible co-infections and other treatments. I was on 2 years of abx and felt like I was standing still, better but still sick. I thought I was herixng when it was Babesia rearing it's ugly head.
I also replaced my old fillings with new porcelain ones. I still have a few to go, but I feel it made a difference for me. I want to get the rest done as soon as I can. I did some Vit C IV's and I take a lot of herbs( trying to detox mercury) and am very careful with my diet. I think it all helps.
Reading your last post, I think you are on the right track, don't give up, you have only been in treatment for a year. That is not long time for lyme. I have been in treatment 5+.
Hang in there..it will get better. Posts: 6641 | From Michigan | Registered: Jun 2001
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posted
I have been in treatment for about two years and when I start not doing well and going backwards I treat Babesia and then take a leap forward again.
I had all my fillings out and I thought at first that it did not help but after a year I think it has helped alot. It just took awhile to reap the benefits.
How do I know when it is Babesia? When I start having a fever, trouble breathing, more mental problems, fatigue, headaches, aches, and tingling in my arms. Not having sweats much.
Posts: 293 | From healdsburg, ca , sonoma | Registered: Feb 2005
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posted
TTPH, Hold on............Lassie always came through before.
Hope you feel better soon.
Posts: 158 | From PA. | Registered: Jul 2006
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
My dentist told me he could screw a fake tooth into my jaw.(Thr hygenist managed to pull of my crown while cleaning my teeth). He reattached the crown temporarily and I said when it comes off you can pull the tooth.
It is not worth it to keep these infection factories in our mouths. A coworker of mine missed several weeks of work with headaches that could not be diagnosed. In the end it was a infected crowned tooth. He never even felt it.
I hope your home grown Rife machine helps you out. Its all we use and it works slowly but surely. I have my wifes treatment log posted on the Lyme Rife Yahoo site if you want to see the progress so far. It is too long to post here.
I guess we both may look like Jack-O-Lanterns. But, on Halloween we can just put a flashlight in our mouth and scare the kids.
D Bergy
Posts: 2924 | From Minnesota | Registered: Aug 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Yup, Lassie always saves the day*)! SO does treatment if you treat long enough. Wish it was quicker, but it is not! Take care, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Hope the teeth turn out to be the source of your problems. Many years ago I had a bad case of mono. I recovered to a certain extent but couldn't quite get better.
I always felt under the weather and the glands in my neck always ached. Two years went by, I got a full blown case of tonsilitis. Had the tonsils removed and I was right as rain!
The mono had created holes in my tonsils and created a complete bacteria factory. Once the factory was removed, I felt great!
Posts: 984 | From San Diego | Registered: Nov 2006
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