Kindly pardon me while I moan, nay scream bloody murder. This monument of decrepitude is a total wreck, a walking or should I say wobbling disaster. I bring this to your attention because I do actually have a serious question that could be of benefit.
My problem is this. I have been since September running what is called "low grade fever" which is typical of lyme patients. Of course when you realize that my normal temeperature for years has been 97.3 a wildly swinging temperature zigzagging up and down all the way up to 98.8 or even 99.1 is no laughing matter and is actually not low grade fever.
I also have very bad GERD and bad GI problems and pain. I have tried all sorts of abx with little or no result. However there is one or possibly a combination that has proven to "work"/. I herx like forty hells. It also knocks out the fever. That combination is oral penicillin and diflucan.
I have on more than one occassion-in fact for the last 8 months have been on it and gotten so sick I have could not stand it anymore and have had to quit. I have recently become concerned that the lyme disease has begun to attack my eyes. I went back on a half tablet of Oral Penicillin twice a day and the diflucan. In four days it had knocked out the fever.
By Thursday I was in agony. My knees, elbows, hands ribs and ankles were killing me. The peripheral neuropathy made was much worse as if my body were on fire and my stomach was in horrible pain as if somebody had a blow torch in it. Plus I was getting severely nauseated and almost throwing up.
As you can see, a grim scenario. Not designed to bring out the usual sweetness and light in my kindly nature. It even almost caused me to loose the ablility to joke and laugh.
So to my question. People have told me to take just slivers, small parts of the tablets of the abx. I have always been skeptical of that. Does such an approach work?/ Just how low a dosage can you take and not trigger off the Gerd and the horrible herxing and at the same time kill Boris and Myrtle Burgdorferi's overabundant offspring. I was prepared to tough out the herxing for sake of my eyes but the GERD is totally impossible.
We do have a way of just sort of stumbling into the messes, now don't we? Your kind responses will be appreciated. Cheers.
-------------------- Thomas Parkman Posts: 341 | From Columbia SC 29206 | Registered: Feb 2003
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Hi TP: I do not know about slivers of abx working, but I remember a couple of postings about a supplement that helped some folks with GERD and stomach problems.
So I am reprinting kelmo's post below; I hope that may help:
"Someone posted on here that they were helped with their acid reflux and GI problems with a "pine nut oil". It was found here:
It was a shot in the dark, and we tried it for my daughter. She had to stop antibiotics due to stomach pain. This oil made her feel better almost immediately.
She now takes it every day and is able to continue her treatment. Good stuff...not a network marketing item, so there is no personal gain by mentioning this. Tastes nasty, but the benefits make it easy to overlook."
Posts: 2557 | From home | Registered: Aug 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I'm not a doctor.. but I have spent time in that barbed wire canoe! NOT fun!
If it were ME... I would stop diflucan. I would try 1/4 of the pennicillin dose.
But before I restarted the pennicillin....
I would get a small bottle of Pepto Bismol or Childrens Mylanta. I would take one dose. If not better in 12 hours.. I would take one more.
Will a small dose of antibiotics work?
Well it works for me. And as you know I am Ms. Sissy-baby I can't take those big doses and I ain't gonna and you can't make me.
I would also check out H. Polori.. and would also see about switching to oral Nystatin rather than diflucan to address yeast.
If that doesn't work.. just keep in mind there is always someone who's turn it is to be on that creek without a paddle.
posted
Thomas, you are a wonderful writer despite your agonizing pain. Lyrical.
I can tell you when I had awful nausea and that blow torch in the gut feeling it was horror... I believe I was experiencing "belles palsy of the gut"
So what helped for me was getting those bowels moving every day--using any means possible...
I'm sure you take good probiotics, also trying digestive enzymes could help the pain.
With the problems you are having w/gurd, can you get injections of penicilin? If not, I would try eating half a big meal then swallow some abx, then the other half of the meal...
Make sure you don't lay down after your pills! (I had a blow torch in the esophagus experience doing this- took a week to cool off)
I am no doc but hope you get some good tricks to tame the dragon....
Keep up the delightful prose, Kim
-------------------- We are spiritual beings on a human journey...
Thank you so much for the kind advice and words of encouragement. This morning things were so bad it took me more than two hours just to get out of bed. Of course the motto of the Lyme D community is: "Just get your body there, the rest will follow."
So I am going to get out in the rain and walk and keep moving. Listen to Beethoven and keep moving. I don't give out, I don't give up and I don't give in. Cheers.
PS. Will let you know about the Siberian Pine Nut Oil. It sounds like a hoot, but why not.
-------------------- Thomas Parkman Posts: 341 | From Columbia SC 29206 | Registered: Feb 2003
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From personal experience taking Diflucan...I believe that stuff kills the ketes. I took it and literally had a episode of aura in my visual field that made me think I was the second generation Princess Leah flying through the opening credits - I almost wanted to create that great hairdo she had with the buns on either side of her head... are you smiling yet???
After just 7 days of Diflucan my eyesight improved and my floaters went away for awhile.
I have been afraid of long term treatment with it because of resistance issues and tough on the liver.
I hope you feel better soon. I have to say that imagining you walking through the rain listening to Beethoven just made me smile.
Your bullying your way through Tick Borne Illness and still keeping your sense of humor and keeping moving is an inspiration and really quite beautiful!
Until the sun comes out again....
-------------------- �Pride is concerned with who is right. Humility is concerned with what is right.� - Ezre Taft Benson Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Thomas, I doubt oral pennicillin is the only thing that would help that you could tolerate.
How's about Zithromax? It seems relatively easy on the stomach.
Or a weensy dose of Minocycline? Your head will fly apart for a whie before settling down again.
IM sounds good too, if you can drop the tons of cash needed for the investment!
I hope this will not vex you long.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Hi Thomas, our llmd had us alternate omnicef and diflucan, several months of diflucan and then the omnicef.
Diflucan kicks lyme but and yeast, some of my best/worst herxs. It also brought wellness. I didn't think I had yeast issues but some of the pain and arthritis were apparently caused by it.
Diflucan is harsh and needs to be started at a low dose, typically 50mg the first week, then 100 for a week and if ordered up to 200mg. Our doc had us cut 100mg diflucan in half for cost efficiency. Our llmd also said that a very low carb diet is a must while on dilfucan for best results. You don't want to be feeding yeast and trying to kill it too.
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