posted
Hi Everyone! I"m dealing with horrible headaches that are concentrated at the base of my skull. Anyone having these? If so, are you getting any sort of pain relief? I've been on migraine meds and narcotics, but nothing helps. I guess I need to get better! I am seeing a great docter, just can't get relief. Thanks!
Posts: 9 | From South Carolina | Registered: Jan 2007
| IP: Logged |
posted
welcome bess to the board! sorry to read about your headaches!
i'm sending you a PM, private message with my newbie links/advise for you.
if you need a dr., go to SEEKING DRS. and show in topic line...LARGEST CITY you're close to and STATE IN topic line!
bess, you can do a SEARCH, found at top under NEW POST in black/white box.
type in: headache or migraine MEDICAL TOPIC ONLY ...if no results; show body text ANY DATE ...make sure you EDIT MY PROFILE FIRST to show longest period of time at bottom of profile vs. default!
leave membership no. blank; click START function or whatever it's called; each thing you do is not the same name! good luck!
IP: Logged |
posted
I experienced a long period of daily headaches. The severity of the pain diminished when I got my vitamin D levels under control by avoiding foods with D and minimizing light exposure.
Headache is one of the symptoms of excess vitamin 1,25D, the form of the vitamin that the infection helps to manufacture.
Posts: 727 | From USA | Registered: Mar 2006
| IP: Logged |
posted
I am having the same problem just now. The base of my skull but also down into my right shoulder and down in between my shoulder blades. But all this is super swollen too. Have not been treated for lyme in 5 yrs. When I was I had a pain doc and was on methadone for the constant head pain. It's wasn't a migraine but meningial headache. They can feel a lot alike. The lyme pain felt much deeper and I would have shooting pains, pain that felt like cramps, pressure pain. Still have probs bending over or exercising as it increases the blood flow. Don't be in constant pain for too long. I regret that. I don't play now. I am done suffering. If I am in pain I want relief and if that is heavy-duty drugs, then bring it on.
Posts: 3 | From Albuquerque | Registered: Oct 2006
| IP: Logged |
posted
Hello again! Thanks so much for responding and sharing some of your treatments. AP, I'm on lamictal, topomax and lyrica! No relief. I think I've given up on ibuprofin. The lamictal and lyrica are helping my nerve pain though.
Bettg, thanks for sending me all the "newbie" info. WOW!!! dguy, I've never heard what you are explaining with vitamin D. I'll definitely look into it. Thanks!
Hi amberamber, I'm sorry you're going throuh a rough time. My doc was initially worried about brain swelling, but 2 drugs, diamox and ? did nothing. So Monday I am having a nerve test done in that area to see if the lyme has caused any damage. May I ask why you haven't been treated these last 5 years? God Bless To You..........
Posts: 9 | From South Carolina | Registered: Jan 2007
| IP: Logged |
posted
I have found the only thing that gives me some relief for headaches like that is laying down with a heating pad against the back of my head/neck.
Carol
Posts: 56 | From southeastern PA | Registered: Jul 2006
| IP: Logged |
posted
I wonder why it's just at the base of your skull--does this signify muscle problems at all?
When I read the title of your post, I figured I could help because I've had a headache for a couple of years.
However,mine's usually located behind my eyes.
When I do get back of the head pain, I massage my neck vigorously and that usually eases pain a bit.
The meds I take for headache are tramadol, lamictal, and skelaxin.
If the pain is truly unbearable, there are some pain patches out there (I think they are narcotic) that supposedly really help.
I don't know, though, because I had a severe allergic reaction.
Sorry I can't help more, but I definitely feel your pain! Feel better soon!
Emily
-------------------- -Em
"Thank you, Oh Lord, for giving me the power to control my pain" Posts: 59 | From Missouri | Registered: Sep 2006
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I often find relief by using a theracane for trigger points. There have been times when nothing else works so I know the pain for me is often related to trigger points (muscle knots) in my neck and shoulders. Sometimes the relief is immediate.
The other thing that can be helpful is a low carb diet. Carbs often cause trigger points if you are hypoglycemic. Something that is not always obvious. Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
posted
Hi again, Thanks for the recent replies. I just made a trip to my docter yesterday in NC. He is seeing patients like me who have pain concentrated at the base of the skull. This pain is from extremely irritated nerve endings. The interesting part is that he is seeing a connection with these kinds of headaches and babesia. I've been treated with improvements, but he wants to try again for a few months.
As for pain relief, I'm maxed out on my nerve pain meds so hopefully they'll help. I'm also seeing a massage therapist and getting trigger point injections to try and calm those nerves down. So far it just hasn't worked. I've had this head pain for over a year, I've been sick for almost 14 years. I think I just need to get better!!!!!!!!!
Posts: 9 | From South Carolina | Registered: Jan 2007
| IP: Logged |
posted
I have had migraines with aura for a long time...but when I became acutely ill I then started experiencing pain that would start at the base of my skull and radiate only half way up my skull all the way around it from ear to ear.
I had babesia...once it was treated the weird pain in that pattern went away...as well the migraines I would have which I now think were more like mini seizures have for the most part disappeared too.
Hope you feel better soon.
-------------------- �Pride is concerned with who is right. Humility is concerned with what is right.� - Ezre Taft Benson Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[Smile]](smile.gif)
Printer-friendly view of this topic