I am so sorry you are experiencing this. It is really bothersome. My neuropathies come and go. But they have been made better by injections of methycobalamine (vit B12 without the cyanide moity (attachment) cyanocobalamine has a cyanide attachment to the molecule. This is bad for us sensitive folks, we can't detox it), anyway methycobalamine and folic acid IM every two weeks. I am fortunate that my husband knows how to give injections. Have your LLMD fill the prescription at a compounding pharmacy. They all have access to the same recipes in compounding these compounds. Your injection should be compounded to avoid preservative. They last 1-3 months. Good luck
Debbie
Posts: 54 | From Clovis, California | Registered: Nov 2006
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Can you share where you have this pain? This was actually the first symptom that I experienced. It was in my upper legs, always symmetrical.
My LLMD says it could be caused by Lyme inflammation, swelling up the inside of the spine. This swelling causes pressure, which can manifest itself as neuropathy.
The ducks actually did not realize it was Lyme at the time(that was discovered only a few years later)... I took Neurontin for it and that helped a lot. I am in treatment for a few years now and the neuropathy is much and much less, almost as good as gone.
Good luck,
Tim
Posts: 147 | From Westborough, MA, USA | Registered: Feb 2004
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posted
For me, the burning pain - (if you mean like burning nerves and hot head) was heavy metal poisoning. When I chelated, it went away. Took a year to chelate the Mercury. *Bit*
Posts: 116 | From Bisbee, AZ USA | Registered: Sep 2005
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bettyg
Unregistered
posted
welcome maryann to the board. tell us about yourself ok!
how long have you been sick? diagnosed with lyme?
what blood labs were used to show a positive lyme dx?
symptoms?
I'll send you a PM, private message, with my newbie links/advise to help you along.
maryann,
our search feature works really good here too! so you could use this; found at top UNDER POST REPLY in black and white box.
type in neuropathy or 2nd phrase you want into on
MEDICAL TOPIC LINE ONLY ANY DATE .... now use my guidelines and how to EDIT MY PROFILE showing the longest period of time at the bottom for searching vs. default!
leave membership blank! click send; it will bring up the results on one; then type in other name, and you can read all the good advise already on the board to help you out ok!
see you are a fitness instructor; perhaps you could give us some tips knowing all the pain/limitations we have with our lyme/fibromyalgia/fatigue problems. could you as time permits? we thank you!
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