posted
I put this over in "General" & it was suggested I repost it here, so here goes:
Hi everyone,
I've hunted around the net but can't seem to find the answer to my question.
Is it important & beneficial to report my CDC positive WB to my health dept? What good would it do? Would help me & others or bring harm?
Just really wondering!
Kayda
Posts: 582 | From midwest | Registered: Nov 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
This is a good question, Kayda, and I have no clue either.
It seems that reporting "rules" are different in each state. I did not know this. I thought the criteria for reporting were all the same in each state.
Did you contact your county health department just to see what they said? It might be enlightening (or not).
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
It is important to report so they can STOP denyng the existece of lyme in your area. They will have to start educating doctors as a result.
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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posted
Yes, it is important. Call your local health department and see of you are a statistic. I think doctors are supposed to send it in but recording requirements are sketchy so ask if yours did.
Posts: 238 | From Bethlehem, PA | Registered: Oct 2004
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posted
I kept watching this and figuring someone with more experience and knowledge than me would answer you.
Here's what I found out when I was diagnosed. The Health Department call me after the doctor reported my case of Lyme.
The Health Department asked questions like - Did you see the tick? Was it less than 6 weeks ago? Did you immediately get a bulls-eye rash? Did you immediately get antibiotics?
My answer to all those questions was, "NO", so I'm not a reportable - - - in my state.
I contacted the CDC in Atlanta and was told that unfortunately each state sets their own reporting criteria. So if my state said I was not counted, I ain't counted.
Since I live in a tourism state, I am sure that is the reason.
That doesn't exactly answer your question. Point is you will have to question the governmental agencies in your own state to get the answer.
Good luck!
Posts: 108 | From Florida | Registered: Sep 2005
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posted
In my opinion,there should be no questions,a positive test should be all that is required.But i think they should ask,if you think you got it out of the area,and if you are sure you did get it in another area,it should at least be reported to that area.If you look at a lyme map,all those little dots are lyme cases turned into the cdc by your local heath department.So if your positive you deserve a dot.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Wow, Paula - that is very distressing news!
You mean that you were CDC positive, and your case was still not reported to the CDC just because you didn't have the other criteria?
Wow. I'm enlightened about all of this, and certainly not happy about what I am hearing.
No wonder the CDC reporting stats seem so out of whack in certain states.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
Like Paula 007, after a positive diagnosis I was called by the County Health Dept. after my LLMD reported it, he actually told me to expect a call.
It is important for counties to know this, this is the only way to get goverment to acknowledge there is a problem, which they won't unless WE demand it, and when I say WE, I don't just mean those of us that have Lyme, I mean everyone. People have to contact the right people for anything to change.
It's hard to make people understand that it's to their advantage to get involved and educated about Lyme and other TBD's, it's in my backyard and it's in their backyard and it's only a matter of time until they find that out. And............ by that time, are we gonna have any LLMD'S around ? They're the only people that can help.
To make a point about the issue about how precious the knowledge that our LLMD'S have.....while my husband and I had just had blood tests done and the results were not yet back, I had told my LLMD that we were both having health issues that needed attention, I developed a cough and my husband was having so much pain in his kidney area that he had to come home from work a few times.
So we mentioned this to our LLMD, and he said that we should go to our family Dr. I had ask at my LLMD's office that what tests were being done there that I'd like for my family Dr. to also be kept informed.
Well alot of good that did having them sent there, because I had to tell him what the tests were being done for, he had no idea what these tests were, (and his exact words were). " I have no idea what these tests are"
It's like banging your head against a wall trying to get neighbors, friends and even family members to understand the scope of this problem. That's why it needs to be reported, they have to realize how big a problem it is and contact their government officials and ask what's being done.
I guess until it hits HOME, THEIR HOME, they're just not going to listen. [B][/B]
Posts: 158 | From PA. | Registered: Jul 2006
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