and IgG: 18 ++ 30 - 31 IND 34 IND 39 + 41 +++ 45 - 58 - 66 - 73 -
My understanding is that I am CDC neg but IGeneX Pos. Does this mean I have an active infection or could it just be the result of having late stage LD for so long? All of my testing going back to 2002 has very similar results. Oh, my ELISA came back reactive as well.
Posts: 41 | From Toronto, formerly of CT | Registered: Apr 2003
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Crikey! Looka that 31 band!
That is positive enough for even an idiot doctor to recognize.
LOTS of specific bands, and then some!
Don't think this is a result of having lyme in the past; if you were really "cured" you wouldn't have so many reactive IgM bands.
Of course, I'm assuming you are symptomatic for lyme.
Hope you'll be getting treatment!
Best,
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Its a active infection sorry you need llmd keep treating
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
This is where I start to doubt things, I am symptomatic... I think... but I have never had physical sx, only neuro, so I wonder if its just all in my head and nothing is really actually wrong. What a fun disease... grrr
Posts: 41 | From Toronto, formerly of CT | Registered: Apr 2003
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Jedibelle.
Don't feel weird about having only neurological symptoms.
That is plenty common!
We've had threads on here where many people with lyme have only neuro symptoms. I'm one of em! I wish I knew how to search for those threads and I'd link them.
Neuro lyme means spirochetes are in your brain. It's a hard space to defend for your body. You need good abx that will pass the blood-brain barrier. Such as doxycycline. There are others. Sometimes your body can fight off the spirochetes, thus you have no physical maladies, but your brain has little protection.
Keep treating; hope you have a good doctor. I know they're kind of scarce up there!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi Jedibelle
Very possitive specially with ***** at band 31. Sorry to say this. Many people here just have neuro-lyme.
I have a friend in CT that just has it in his heart. It can pick one area & hang out there. But can also spread to other area's of the body,
So it is very important to get treatment now.
I had *** on my band 31 . A very wise LLMD told me once that you have a zero chance of not having lyme with that band lighting up so much. It is highly reactive to lyme. Here is a link that explains the WB better than I can:
posted
Thanks guys. Fortunately I have a great LLMD who pretty much said the same things as you (I just wanted to hear it from another source) but he is in the states and I no longer have insurance. I am so lucky to have him though, hopefully I'll figure out the financials soon. Thanks for being so helpful and supportive Posts: 41 | From Toronto, formerly of CT | Registered: Apr 2003
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