posted
I am doing neuro rehab to try to coordinate my eyes with my brain. (After tests, this is what they feel are causing my inbalance, fatigue, frustration and emotional melt-downs. I am TIRED of trying to be in balance all the time. The brain and the eyes are not in sync.)
The exercises are fairly simple (for the normal person) exercises. Such as turning head to focus side to side as you walk. (I look one way, when I look forward again I lose my balance.) Or, keep head still and move eyes from side to side for one minute. Hum. Another off balance moment....I fall backwards and have to keep adjusting my feet.
There are many more....at least it does show me that there is a real deficit for my off-balance state. I would also like to state that I think, after 3 weeks of this (3 times a week at the hospital plus practicing at home 3 xs a day) that I am improving a bit.
I do have 30-40 lesions which my LLMD says looks consistent with lyme. They are mostly in my cerebellum but also in the white and gray matter.
No-one else seems to know what they are, but they do cause many problems.
So, if you are having off-balance, dizzy problems, perhaps your doc can prescribe treatments at a clinic. (They deal alot with stroke and accident victims...would be under the neuro-psych dept.
Anyone else doing this type of treatment? I am also doing yoga and tai chi...not as well as in the good ole days, but I plug along!
Posts: 190 | From BC Canada | Registered: Jul 2004
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posted
Hi islandgirl, I'm really glad you brought this up.
I didn't do that exact treatment, but I did have several weeks of speech therapy after my neuro symptoms went so haywire I had trouble speaking and with word substitution issues and...what is it called...paraphasia?
Anyway, I didn't think the therapy would help me very much, but it actually helped not only with the speech issues, but also general organization/brain fog/coping issues. It also taught me how to re-learn what I had lost.
Bottom line for me was that I felt that there were some excellent neuro therapists out there with a very useful bag of tricks! It gave me cognitive tools which were like gold.
Alison
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The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Hi all.
Alison, I am a Speech Pathologist. I wondered if Speech Therapy services would help with anomia (word finding difficulties) and other speech problem.
Were you taking antibx during this time?
I am so glad that it helped you and that it was a positive experience.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Absolutely! Well, they helped me. I was not on abx at the time, I still had no idea what was wrong with me. I was in a car accident and thought that I had some sort of weird concussion from being rear-ended, though of course no trauma showed up on any of the tests they did.
I remember the exercises for anomia (great word btw) really helped me. My speech therapist basically taught me to create new neural pathways.
I had huge problems as I was still working at the time and I would be in trying to talk to my boss and I would be completely unable to remember simple words. I would start a sentence and then stop in the middle, trying desperately to remember the word for "meeting" or "chair". I was desperate to be able to function at work.
So my therapist drew a spiral on a piece of paper and told me to basically "walk in a circle to the word", meaning I needed to just start saying all the words I could think of that were *close* to the word I wanted until eventually my little overtaxed neurons would get to the right one.
For example, if I was trying to get to the word "Meeting", I would stand there and say "Making, group, gathering, place, people, marketing, moltenlava, marker, meaning...meeting!"
I felt like a real doofus, but it worked. And I explained to my boss to just bear with me until I got to the right word. She was so understanding and great, if a bit perplexed at the methodology.
I think it also helped keeping me from getting frustated and hitting that brick wall when I got halfway through a sentence and couldn't complete it and would just stand there, silently gawping like a fish. it got me unstuck.
After awhile it got easier. I still have to do it sometimes though. And it also seemed to work when I caught myself substituting the wrong word.
Speech pathology is pretty interesting!
Alison
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The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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