I am new to the board, and recently diagnosed with Lyme. Although I probably have had it for many years. Was diagnosed prior with Fibro and CFS. Who knows, the symptoms are so similiar. I am going to begin IV antibiotics, I do have insurance, however I do not know what they will and won't cover. Any help and suggestions regarding how to get financial assistance with medical bills and drug treatment would be greatly appreciated? Also, has anyone on the board ever been approved for Hyperbariac Oxygen and if so how? What diagnostic codes? I am so used to reading the CFS/FM boards this area is very new to me. Thank you all very much for any help and info you can provide.
Posts: 21 | From Tampa, Fl | Registered: Feb 2007
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I'm sorry you need to come here for help, but this is THE place on the Web to find information and fellow sufferers of Lyme disease.
The best time to post questions is during the day. The nights get rather quiet around here. I know Betty will be along to send you lots of good information tomorrow. Welcome again
i'll send you a private message, pm, with my 35+ pages of newbie links/advise on using the board.
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Welcome
What IV abx are you going to start with?
If it is Rocephin you should have been told that Rocephin can cause gallstones and some people end up losing there gallbladder due to the stones from the rocephin use.
posted
Welcome!! I hope your dr is going to put you on a cyst-buster also, as Rocephin will cause the spirochetes to turn into cysts. The cysts also need to be treated.
Rocephin is NOT the only med that does this....so don't dump the Roc just because of that!
You CAN get well without IV, so consider that also.
I don't know anything about hyperbaric. It's not going to cure you, but should help. I know there have been several here who use it. I hope they will see this soon.
Also, you can use our search function here to research topics such as hyperbaric. YOu can read past discussions on it.
Look for the tiny word "search" right under Lymenet Flash.
Have you found a Lyme Literate MD??? [LLMD]
Again,
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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posted
Thank you all for welcoming me and your advice. No, I did not no that Rocephin can cause make you loose your gallbladder, thank you very much for sharing that.
And no I did not know that Rocephin can cause the spirocites to turn into cysts. And finally,I do not know what IV's he wants to use, and I am open to any other alternatives?
I have been on way to many antibiotics already, and IV scares the hell out of me. He is an LLMD, I like him very much. However, he loves IV and big doses, and my body does not mix well with that.
I appreciate all of your feedback, I am certainly open to good suggestions and alternatives ASAP before any treatment is started. I also know I am dealing with many co-infections which is a nightmare.
Thank you all for such a nice welcome and the advice. I wish the best health to all of you, I know how this disease, CFS,FM, and these crazy conditions can turn one's world up side down.
Posts: 21 | From Tampa, Fl | Registered: Feb 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
W E L C O M E ! ! ! ! !*)!*)*!)*!)*!)*!)*!)
There is a free IV Rocephin program if your insurance doesn't cover it!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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