I was doing pretty good on Abx, my body aches were getting better, then I started Tindimax and my whole body aches, my shoulders are in so much pain and it radiates down to my fingers. I feel like I pulled a disc in my back but I have not done any lifting so I am scared.
My chest, back, shoulders and arms are in so much pain.
Anyone else feel like this from tindimax?
Is this a herx or did I damage my body.
Lyme4
Posts: 60 | From RI | Registered: Dec 2006
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posted
My daughter got much worse on Tindamax. I don't know if it was a continuous herx or the Tindamax. She had to stop taking it.
Posts: 488 | From NY | Registered: Oct 2004
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Tindamax got this one woman in opur local group into full remission but also left her with permanent peripheral neuropathy damage. It is like Flagyl in that it can cause this so be careful!!!!
It also tends to have major Herxes like Flagyl AND can be of GREAT enefit for those who can stay on it without reaping neuropathy problems!!!!
Take care, Bets wishes, Sarah Special Warnings with Tindamax:
Metronidazole, a medicine like Tindamax, has caused cancer in mice and rats. For this reason, Tindamax should be used only to treat the 3 infections listed in "What is Tindamax used for?” Tindamax may cause seizures and peripheral neuropathy (numbness and tingling in the hands and feet). Stop taking Tindamax and see your doctor right away if you have these symptoms.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
I pulse tindamax monthly, and from what I understand it is a cyst buster, so it may be that you have multiple cysts dying - thus it could be a herx.
My reaction is similar to the one you're describing, and I generally attribute it to a herx.
My LLMD is one that advocates backing off when it's too intense, so when it starts to get bad, I stop the tindamax till the next month.
If it concerns you, call your LLMD, just in case. (I'm not a doc!).
Just wanted to let you know that I experience the same when taking tindamax.
Also - flagyl gives me terrible peripheral neuropathy but tindamax does not. Guess all of our bodies are just different...
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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quote:Originally posted by cactus: I pulse tindamax monthly, and from what I understand it is a cyst buster, so it may be that you have multiple cysts dying - thus it could be a herx.
My reaction is similar to the one you're describing, and I generally attribute it to a herx.
My LLMD is one that advocates backing off when it's too intense, so when it starts to get bad, I stop the tindamax till the next month.
If it concerns you, call your LLMD, just in case. (I'm not a doc!).
BIGTIME DITTO!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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I have stopped right now and I will see if I feel better after stopping for some time.
I took the medicine 5 days on and 5 days off, so I did end up in total taking the medicine for 15 days.
I am scared on this medicine. I couldn't due minocycline, my brain swelled up and I couldn't even read because I was so dizzy. I felt out of body experience. That scared me more than tindimax.
So I feel like I can't due many of the abx for cyst busting.
I am on doxy right now, 3 times a day.
Thanks,
Lyme4
Posts: 60 | From RI | Registered: Dec 2006
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quote:Originally posted by lyme4: So I feel like I can't due many of the abx for cyst busting.
In my opinion, you can. [and you must, if you want to get well.] You just have to cut back on how much you take, per your dr's approval. Some people can only begin on a SLIVER of flagyl per day. Then you work your way up.
I hope you feel better by the end of the day and even better tomorrow!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Your right about I should be taking a cyst buster, thats why I am so frustrated.
If my shoulder, arm etc gets better after stopping, then I will take 1/2 the dose, and see.
I did half the dose for mino after the first few days on 2 pills, but I still felt awful.
The dr told me to stay on for a few weeks to see if I change because he seemd to like mino, but I couldn't after trying for 2 weeks on half dose. I do try to stick with it because I think it could just be herxing, so I give it some time. But when you can't get up and conduct your life, what do you do.
My whole family has lyme. Thats why I am so stressed. No one feels good and I am the Mom who should be taking care of everyone.
I can operate on other abx, but when I can't see, drive, etc, then I can't be doing that abx. How will we eat, live etc.
This life sucks.
Lyme4
Posts: 60 | From RI | Registered: Dec 2006
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posted
I agree w/Lymetoo. You must take a cyst buster if you want to get well. I think right now, your bacteria load must be really high, so you're experiencing strong herx's from the die off.
Lower your dose for a while, but don't give up on it, is my suggestion.
When your bacteria load is high, the die off can make you feel horrible. I remember wondering if I'd damaged my body permanently and if I'd ever be able to walk normally again. and now I am!
Treating this illness requires a big dose of patience in addition to the abx and other treatments.
Don't give up!
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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posted
Also, I forgot to add that you might want to try detoxing if you haven't been doing that.
There are all kinds of ways to do that...hot baths, ozone sauna, coffee enemas (which I've never done but have heard good things about), or using herbs, such as sarsparilla or burbur tincture.
I think a lot of the aching and pain we get may be due to the toxins released after the kill, and detoxing will help get rid of the toxin load and thus, the discomfort, more quickly.
When my joints were aching a lot I used to drink organic apple cider vinegar w/honey and it helped me a lot. I'm not sure if it was detoxing me or what, but it did make me feel better.
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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posted
My LLMD wanted me to pulse Tindamax 3 days a week, 500 mg in the AM and 500 mg in the PM. After reading posts here, I decided to start VERY slowly.
The 1st week, I took 250 mg.s in the AM and 250 mg. in the PM. The 2nd week, I took 250 in the AM and 500 in the PM (since I was going to bed anyway) and the 3rd week, I arrived at 500 in the AM and 500 in the PM.
Felt ahcey at first and VERY weepy, crying all the time.
"Illnesses, hover constantly above us, their seed blown by the winds, but they do not set in the terrain unless the terrain is ready to receive them."---Claude Bernard. Posts: 131 | From US | Registered: Dec 2006
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I started Tindimax a month ago with great resistance I might add. After two days my legs were buckling and I could not walk. I don't want to freak you out but the herxing has not been pleasant.
I can tell you that with much whining I have stayed the course. After one month my legs are starting to feel better than they have in months. My vision is getting really clear, and the best part the brain fog is starting to lift. Somedays I feel like I have I brain, and I am really not related to the tinman.
I saw my llmd yesterday and now I need to up my dose. I am not looking forward to it, but I know in the long run this is the drug that is going to really help.
I wonder if I had been given Tindi years ago, who knows maybe I would be in the situation I am in now.
I have a family too. I hear you. I know it sucks trying to be the best mom you can under these circumstances. I have spent days on the couch because of Tindimax but it's starting to get better.
I'll start a Tindimax Buddies post. There are a few people taking it right now. We can all comiserate together. Please give it a try, you won't be sorry.
Kathy
Posts: 175 | From Pa | Registered: Aug 2006
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I was infected 9 years before taking abx, so my bacterial load was high, not just with Lyme but also with two co-infections.
My LLMD waited until I'd been on abx for more than a year before she suggested I start taking tindi. And then, she advocated starting slowly.
As others have said, I pulse this abx -- one week a month (my week just ending). My initial herxes were pretty awful, but after a few months, they're diminished significantly.
During my tindi week, all my remaining symptoms are exacerbated. For me, that's floaters, some emotional volatility (anxiety), pain in knee and hip, some numbness. And always with tindi, a nasty headache.
But after the week, I feel much better....and in general, I've improved enough to return to work fulltime.
I dreaded taking this abx, but I agree with Too that it's probably vital to overall, longterm recovery.
I hope you're able to find a solution that works for you!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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