I haven't been diagnosed with anything but here is what i'm going through
sharp chest pain, lasts less then a second and I get those maybe 2 or 3 times a day, i've been to the ER and they can't find anything
Occasional palpitations/flutter
eyelid twitches
mouth movement like i'm shivering but i'm not
alot of eye floaters
watering eyes
tender scalp and occasional headaches
when falling asleep sometimes i'll twitch and that usually starts an anxiety attack
night sweats
i'll turn words around when typing or forget to put them in all together, or use the wrong word.
I remember having a large rash probably back in the late 80's and that was followed shortly real bad heart palpitations and then flu like symptoms...but it all went away for years...then the symptoms I have outlined above came back about 6 years ago shortly after moving to upstate NY. When I had the rash etc I was living in the Philadelphia suberbs. I think I had it, and then got reinfected in NY
Any thoughts
Posts: 6 | From Arizona | Registered: Feb 2007
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posted
You should get IGeneX blood tests run. I'm born and raised in the Philly suburbs and will tell you that it is RAMPANT here. Post on the Seeking a Doctor forum and get recommendations for an LLMD in your current area.
Glad you found us - I don't know where we'd all be in our house without Lymenet.
-------------------- Getting older is when we would rather not have a good time than have to get over it. - Oscar Wilde Posts: 386 | From Radnor, PA - where the ticks run free | Registered: May 2006
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I notice your from Radnor, I grew up in Glen Mills, but think I came across the tick out in Oxford Chester county...thats when I had the rash.
Oh some other symptoms
I feel dizzy, especially when using a computer or standing up talking to someone
Also I sometimes feel like i'm drunk but I don't drink.
I live in the Phoenix area now....no ticks out here
Posts: 6 | From Arizona | Registered: Feb 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Could be TBD related, could NOt be TBD related, but it sounds very much like Babesiosis!!!
You can do a challenge with Artemisia which you can buy over the counter- try it for a week and see if you are responsive- note- with Babs you do Herx like with Lyme- feel worse before better-!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
sounds like what i went through this summer before i found out i had chronic lyme..
as well as babesia and bartonella...and now CPN..
the sensitve head, and weird pains in the chest..and then i would try to go to sleep and i would twitch and wake up and then go into a full on panic attack..
it was aweful ..please please please get to a LLMD.. i totally know what ur going thro..
-------------------- If Your Going Through Hell, Keep Going... Posts: 99 | From Shepherdstown, WV | Registered: Sep 2006
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posted
so, will these symptoms get worse over time if I don't have it treated or am I pretty much at the peak...they haven't got any worse in about 4 years or so...I can deal with these symptoms but if they are going to get worse I want to do something about it
Posts: 6 | From Arizona | Registered: Feb 2007
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posted
Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
The following signs/symptoms may be present in those infected with Babesiosis: Fatigue* Arthralgias* Myalgia* Drenching sweats* Headaches* Emotional lability* Depression* Dark urine* Splenomegaly* Dizziness* Nausea and vomiting* Cough* Dyspnea* Fever* Chills* Hepatosplenomegaly* Jaundice* Malaise* Shortness of breath* Bleeding tendencies, bruising* Thrombocytopenia* Hemoglobinuria* Hyperesthesia* Pulmonary edema* Encephalopathy* Low to normal range leukocyte counts* Possible elevated levels of dehydrogenase, bilirubin, transaminase* Anorexia* Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection. An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
welcome bill to the board.
1st some bad news for you; ALL 50 STATES HAVE TICKS, but there are fewer in arizona!
i'm going to send you my 45 pages of newbie links/advise/symptoms/ss disability/IGENEX testing info galore/etc. by PRIVATE MESSAGE, PM.
you can click on MY PROFILE to read or read in your home inbox. Please keep in HOME FILE FOLDER or print these off.
delete them from your lymenet PM box since it holds 60 posts only; they fill up fast around here! good luck. you're on the right track; you found us.
you will get WORSE when you are treatment as it will be killing off the spirochete ticks inside of your body; but that means it is WORKING.
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