I'm going back up to Chico next week and I hope to make a longer, more detailed video. Let me know if anyone would like to see the video when it's completed.
We're making a video journal of her treatments and her physical reactions. We might create a website and post the video on it, as well as some of the photos we've taken.
Posts: 681 | From California | Registered: Oct 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Hi lymedad~ Hope your daughter sees some benefit from the hbot. My server blocked your video, so I can't watch it.
I'm headed out of town today to do 2 more dives (one today, one tomorrow).
I did 2 dives recently (2 months after ending my 40 dives) and got a substantial herx (flat on my back for 3 hours, sick feeling, rip-roaring headache and nausea). So, obviously, it's still killing off Bb.
Is your daughter also on antibiotics? Has she had a noticible herx yet?
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
I'm sorry you couldn't see the video, I'll try to come up with something else in addition to YouTube.
I had to chuckle when I read your question about our daughter's antibiotics.
She has a PICC line for the Rocephin infusions, now twice a day.
Her oral antibiotics are: Plaquenil, Ketek, Mepron and Samento.
She's now on her second week of HBO therapy and she has 6 weeks more after this week.
The director of the HBO clinic has suggested that she might need to come back again for an additional 8 weeks, but we have to see how she's doing after this first course of treatments.
I hope you are doing well and look forward to hearing more about your HBO reactions.
Posts: 681 | From California | Registered: Oct 2005
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posted
I'll tell you whose awesome, it's you guys who suffer from this awful disease.
I've met more people with strength of character, strength of mind and body than I've ever met in my life since my daughter has been diagnosed with Lyme.
I'm not sure I could be as strong as all of you are.
I told my daughter, Nikki, not long ago that she has got to be one of the bravest persons I have ever met.
She has been suffering for almost 6 years now with the pain and frustration and yet she is still willing to fight.
You guys are awesome, not me.
I think I would have given up by now and probably would have eaten a bullet rather than suffer as she (and all of you) has.
Posts: 681 | From California | Registered: Oct 2005
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Great video And many thanks for sharing. Please post again and let me know how her progress is coming along.
Blessings,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Thanks Lymedad, that was interesting. Hope your daughter gets better soon!!
posted
Cool video! How is she doing with the multi place chamber? Is she herxing? I mentioned before that the multiplace chambers were very weak in comparison to the single person chambers. I hope she is doing well though! It is essential to keep up the treatments and taper them over time and do long term maintainence. I used to do 5-10 every 6-8 weeks, and as many as I could every few months after that. Best to you!
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Multiplace and monoplace are equally effective but I agree with WildCondor its essential to keep steady maintenance dives for a while. See Julia's protocol or PM her about it, or I can tell you that although an initial one month, and later two months, of multichamber dives helped a lot, the gains were slowly lost, so I got a home chamber that goes to 1.3 ata (mild pressure) and use it at least once a week.
Posts: 2276 | From united states | Registered: Jun 2004
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posted
Thanks for your understanding and appreciation of our challenges Lymedad. It's uncommon that non-lyme-ies "get it" like you do.
Posts: 211 | From NC | Registered: Dec 2005
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This was a Retrospective review of Dr Lombards work competed by Dr Glen Burkland. Sorry that the graphs did not paste as well I will try and find the link on the web,
In addition to this I believe that heavy metals and viras loads should also be under control. That's just MHO..
Blessings
Julia
Efficacy of using Hyperbaric Oxygen Therapy In treatment for Chronic Lyme Disease A compilation of patient files
Robert M.. Lombard, M.D., F.A.A.F.P.
Lyme Disease is caused by an infection of the spirochete Borrelia burgdorferi that is generally known to be spread by a tick bite. The B. burgdorferi spirochete is an anaerobic bacteria, meaning that the organism cannot exist in oxygen. Treatment with hyperbaric oxygen has been used successfully in treating anaerobic infections and is recognized for such by The Journal of American Medicine.
Antibiotic therapy alone is not always effective against Lyme Disease. Most of the patients have had long courses of antibiotic therapy including IV therapy and yet the symptoms persist. In many patients, their quality of life has been diminished and in some cases the patient has become completely dependent. Neurological damage, pain, loss of muscle function, fatigue, arthralgias and a myriad of other symptoms plague the chronic Lyme patient. Hyperbaric oxygen therapy forces oxygen deep into the cells in all parts of the body including the brain and central nervous system.
To date, our Center has treated 43 patients diagnosed with Chronic Lyme Disease. The data from those patients' files reveal 36 patients (84%) showed improvement after their initial hyperbaric treatment. The results were further broken down and analyzed by the following categories: length of time patient had been ill, number of treatments, atmospheres of pressure, duration of treatment, period of time over which treatment was given, gender, age, and antibiotics taken during hyperbaric treatments. In all the above considerations, the one category that established a significant pattern in this patient population was length of time the patient had been ill prior to hyperbaric treatment. This category shows that patients who had been ill a shorter period of time experienced the most improvement. However, the ranges were quite diverse and one patient who had been ill 15 years experienced a 64% improvement in symptoms. The tables and charts below express the outcomes after the initial Hyperbaric series. Some patients returned for further treatments and some did not. Some patients returned follow-up information on their symptoms and while that information is relevant, it is too sparse to interpret by chart. For example, one patient reported being 10.87% worse after the initial series, but was improved by 55.80% after one month. Another patient reported a 19.47% improvement after the initial series, a 78.76% improvement after one month, but had escalation in symptoms to 27.43% worse than the original baseline. The table is included to show the diverse nature of the responses that were returned.
One aspect of hyperbaric treatment than can be determined is that most patients respond and initially most of them had an escalation of symptoms before they saw improvement.
While the greatest majority of patients used the treatment protocol believed to be followed in the Fife study of 60-minute treatments at 2.4 ATA (equivalent to 45 feet underwater pressure), some patients tried a variety of different methods hoping to find a protocol that assured better results. Some tried two treatments daily while others tried one treatment daily for more days. Some tried pulsing pressures by using lower pressure one day and a higher pressure the next. Treatment duration varied from 60 to 90 minutes and pressures ranged from 1.75ATA to 2.85 ATA. Some took an initial treatment series and then returned for follow-up or monthly boosters of 2 to 8 treatments. Some repeated the initial series or went longer than previously. While the variations of treatment for initial series did not produce any particular trend in results, the long-term results could not be assessed. .
Equally as innovative were the various antibiotic therapies and adjunctive therapies used during the treatments. Some of the adjunctive therapies included antibiotic "cocktails" where IV, IM, and oral antibiotics were combined. Some patients did aerobic exercises daily. Some did hyperthermia treatments, using saunas and hot tubs to get their body temperatures up. Some used Methylene Blue, bovine colostrum, various painkillers, antidepressants, sleeping pills, herbs, vitamins and homeopathic remedies. One pattern that emerged from the results of antibiotic use show that no patients on IV reported that symptoms were worse at the end of the initial series.
The patient population included two people who reported being diagnosed with co-infections subsequent to hyperbaric treatments. The outcomes of these patients was that one diagnosed with babesiosis reported a 23.6% improvement in symptoms and one diagnosed with erlichia showed a 16% escalation of symptoms after the initial series and only a 4% improvement 3 months later. Patients who are considering hyperbaric as an adjunctive therapy may want to consider getting treated for co-infections prior to hyperbaric since the co-infections are not anaerobic.
Overall Patient Outcomes Symptoms Escalated Improved 0% to 25% Improved 26% to 50% Improved 51% to 75% Improved 76% to 100% No. Patients 7 15 12 7 2 % Patients 16.28% 34.88% 27.91% 16.28% 4.65%
Length of time of illness The range of time from the date patient became ill to the start of HBO was 10 months to 38 years with the mean at 8 years. The range for patients in this category who improved more than 50% was 8 months to 15 years with a mean of 4.9 years. The range of time from the date patient became ill to the date of diagnosis was 1 month to 35 years with a mean of 5 years.
Years between date became ill and HBO
Symptoms Escalated Improved 0% to 25% Improved 26% to 50% Improved 51% to 75% Improved 76% to 100% Minimum 4.4 1.6 0.6 0.9 0.8 Mean 10.11 9.3 5.53 6.01 1.2 Maximum 21.0 38.8 22.4 15.2 1.6
Treatment Protocols Treatments were administered in varying atmospheres of pressure ranging from 1.75 ATA to 2.85 ATA with the mean of 2.41 ATA. Duration of treatments ranged from 60 to 90 minutes with a mean of 61 minutes. Patients received either one or two treatments per day to a maximum of 120 minutes per day. Treatment periods ranged from 5 days to 292 days, mean 72 days. Total treatments per patient ranged from 10 to 53 with a mean of 29.
Symptoms Escalated Improved 0% to 25% Improved 26% to 50% Improved 51% to 75% Improved 76% to 100% Minimum # Tx 17 10 20 21 20 Mean # Tx 26.71 25.33 33.83 32.86 31.50 Maximum # Tx 46 42 53 45 43
Atmospheres of Pressure Used during HBO Symptoms Escalated Improved 0% to 25% Improved 26% to 50% Improved 51% to 75% Improved 76% to 100% Minimum ATA 2 2 1.75 2 2 Mean ATA 2.41 2.41 2.40 2.41 2.36 Maximum ATA 2.85 2.85 2.85 2.85 2.4
Duration of Treatment in Minutes Symptoms Escalated Improved 0% to 25% Improved 26% to 50% Improved 51% to 75% Improved 76% to 100% Minimum Duration 60 60 60 60 60 Mean Duration 60.04 60.77 62.32 61.91 60.00 Maximum Duration 90 75 90 90 60
Period in Days over which treatments were administered Symptoms Escalated Improved 0% to 25% Improved 26% to 50% Improved 51% to 75% Improved 76% to 100% Minimum Period 23 5 15 19 12 Mean Period 41.57 62.47 94.83 85.57 57.50 Maximum Period 124 166 292 169 103
Gender Of the 43 patients, 25 were female and 18 were male. Range of improvement for the male group at the completion of the initial series of treatment was �157% to 77% with a mean of 13% while the female group was �22% to 97% with a mean of 30%.
Symptoms Escalated Improved 0% to 25% Improved 26% to 50% Improved 51% to 75% Improved 76% to 100% Males 4 5 4 4 1 Females 3 10 8 3 2
Age Ages ranged between 5 and 64 with the mean of 36.
Symptoms Escalated Improved 0% to 25% Improved 26% to 50% Improved 51% to 75% Improved 76% to 100% 1 to 20 2 2 3 2 1 21 to 40 2 6 5 2 0 41 up 3 7 4 4 0
Antibiotics Of the 43 patients, 35 were taking antibiotics during their Hyperbaric Oxygen Treatments. 18 patients used IV antibiotics. Of these 10 also took oral antibiotics and 2 took intramuscular antibiotics. 30 patients total took oral antibiotics and 4 were taking intramuscular antibiotics.
Symptoms Escalated Improved 0% to 25% Improved 26% to 50% Improved 51% to 75% Improved 76% to 100% IV Only 0 2 3 0 0 IV with Other 0 8 3 2 0 Oral only 6 3 3 5 1
Improvement for patients by antibiotic. Note: This table does not take into account that some patients were on combinations of antibiotics.
Antibiotics Used During HBO Minimum Mean Maximum No Patients Amoxicillin -7.47% 4.01% 15.49% 2 Bactrim -16.04% 26.40% 68.84% 2 Biaxin -157.14% -10.92% 64.06% 9 Ceftin 39.39% 49.70% 60.00% 2 Cipro 34.73% 55.83% 76.92% 2 Doxycycline -16.00% 16.71% 56.67% 5 IM Bicillin -96.88% 3.64% 64.06% 5 IV Doxycycline 22.22% 63.38% 39.39% 2 IV Primaxin 16.67% 30.81% 34.73% 3 IV Rocephin 6.82% 18.25% 34.19% 6 IV Vancomycin 2.65% 43.36% 64.06% 3 IV Zinacef 0.00% 0.00% 0.00% 1 Suprax 42.11% 42.11% 42.11% 1 Zithromax -21.89% 27.73% 73.53% 10
My Thanks for the hard work of Rea and Connie and the memory of a fine physician, Dr. Lombard, who did this initial work. It is being continued by Dr. Glenn Burkland and myself. We are working on a follow-up study to evaluate the success of these patients years after their treatment. Lead author and expert researcher and clinician, Dr. Glenn Burkland, of Exton, Pennsylvania has done past cancer research with me, and is a tireless patient advocate, helping many people in ways that go unseen. He is a Renaissance scientist and clinician in the truest sense of the word, and I suspect he will follow the lead of this initial clinician, Dr. Lombard, in a way that is honoring to this man's memory.
In Your Service,
Dr. J.
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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And many thanks for sharing. Please post again and let me know how her progress is coming along.
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