posted
I am totally unfamiliar with your situation, so what I say must be taken with a massive crystal of NaCl, but when I was badf with the lyme etc., it certainly FELT like I needed all my joints replaced! However, I was able to nail the lyme, albeit after a more than two-year struggle. Subsequently, I was able to recover almost completely, without any joint surgery.
Again, I don't know your exact situation, but the main thing you need to concentrate on is getting over the Lyme.
Have you tried a suuplement called "Nutrijoint'? I found that helpful. And there are many other things to try, too. Good luck to you!
DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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bettyg
Unregistered
posted
judith, good timing!
i'm having left hip replacmeent surgery mon., march 5, noon CST. I've had CHRONIC LYME 37 years.
i'll let you know after surgery and my recuperation. i've had 12+ surgeries.
also, GLUCOMASINE is good for joint pain! also with MSM.
do NOT buy chondroitin; it's NOT proven to be effective and costs so much moe than plain glucosamine!
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posted
I'm w/haplycarlessdave. Almost all of my joints have ached terribly earlier in my illness. I've now been on abx for 1.5 years and most of my joint problems no longer exist.
I also have a friend whose brother has Lyme disease and had knee surgery, but when they opened up the knee, it was filled with a milky fluid which upon evaluation, was determined to be caused by Lyme disease, so the surgery accomplished nothing.
What's scary is that he planned to have back surgery soon for a "bad back" as well.
I told him he needed to get the opinion of a 2nd Lyme Dr.
Agressive abx therapy and patience are required to get past this phase.
I'm not an MD. My opinions are based on my own experience as a Lyme patient and as a former pharmacist.
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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I had thumb joint replacement surgery done at the Mayo clinic in Rochester. They replaced the bone in my thunb with -----glee now I can't remember what it is called but I got alone very well with it. My hand is not as stong as bvefore but they told me it would be. At least the pain is gone in the thumb. My hands still hurt but it is because of the arthritis in the rest of my hand. I had been lyme disease for 43 years when I had the surgery done. sick
Posts: 538 | From Iowa | Registered: Apr 2006
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I meant to say my hand isn't as strong as before but they told me it would not be before I had the surgery. sick
Posts: 538 | From Iowa | Registered: Apr 2006
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posted
Not all joint damage reverses with Lyme treatment. Someone I know with Lyme just had a double knee replacement. A well-known LLMD rheumy told him that if he waited, there would be too much damage to have the surgery. When his knees were removed, there was no cartilage (or whatever) left.
So don't rule out the need for surgery just because you think it is caused by Lyme. There may be other issues or such extensive damage that it does need to be done.
I'm not a doctor, so please ask yours.
-------------------- Suzanne Shaps STAND UP FOR LYME Texas (www.standupforlyme.org) (Please email all correspondence related to protecting Texas LLMDs to [email protected] with copy to [email protected]) Posts: 977 | From Austin, TX, USA | Registered: May 2004
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