posted
I'm currently on IV rocephin (going on 3 months) and Rifampin (going on 1 month) for Lyme and Bartonella. From what I can tell the IV Rocephin has not done anything. The Rifampin, however, is definatetly helping. My doc is considering putting me on IV docycycline in place of the Rocephin. I have CNS lyme. Any good experiences switching from rocpehin to iv docy (by the way, I've never done doxy - not even oral doxy)? He may possibly consider IV Zithromax...not sure but any thoughts on that one would be appreciated too.
Posts: 98 | From cambridge ma | Registered: Oct 2005
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posted
My 11 year old son had lyme-menigitis when they started his IV Rocephin and he responded quickly and was doing well for 2 weeks when he developed an allergic reaction. After that they took him off the Rocephin they put him on IV Doxy and he did very well, he did respond to the IV Doxy, however, unfortunately, the doctor took him off the IV treatment after 4 weeks and he went down hill very quickly. Good Luck
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi Nicolette
I was on IV zith & also on doxy. Both abx's seemed to cross my blood brain barrier well. Had some extreme herx's on the IV zith & also on the high dose doxy. The doxy may hit some of my co's as well.
Can't add much more except to say if the herx's get too bad let your doc know & maybe he/she may be able to ramp you up more slowly if you have a high germ load. The herx's where bad for me but did help in the neuro department.
I would also crank up the pro-bibotics alot & also try to do some detox stuff.
good luck & hang in there & feel better soon Dana
Blessings Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
It's strange how different the treatments are. Our LLMD likes to go through all of the oral antibiotics and uses IV at the end.
I wonder if anyone knows about different rates of recovery? I guess that's an impossible question though, since each case is so different.
Hope you feel better soon.
Posts: 1366 | From Southeast | Registered: Sep 2005
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
I did IV doxy this past December and part of January,,,the result was a disaster. It was either hitting some co-infections or it made the Lyme worse...am now on IV Claforan.
I have always hexed very well on oral zithro...especially when my bacterial load is high...so,
I agree with the co-infection possibility here...on the other hand...in my case, I wish I had either stuck out the Doxy...it was a very hard time....lots of neuro....or, gone with Zithro.
I am currently off all abx...just Samento.
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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my first treatment was Iv zith and it took me out of death valley so I'd have to say it was good. The herxes were severe, but I was very very ill, and there were times I had to skip doses to let the toxins die down.
a year later I did 6 months od Iv doxy and cleared a lot of co infections and my brain and my joints improved a lot. Iv doxy was also a miracle treatment for my 17 yr old son who had a horrible time with rocephin.
So, everybody likes a different flavor!
My son is maintaining well on orals now, I'm awaiting IVIG and very ill! Oh well!
I hope you get well!
Posts: 663 | From NH USA | Registered: Sep 2004
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I wouldn't say he is in remission, but he is doing well, fuctioning fairly normally, as long as he takes his meds, and all huge list of supplements.
He's not getting worse, he acts like a crazy teenager, but he frequently needs more rests than his peers. He still has memory problems which may be permanent damage from Lyme, from previous loss of blood flow to his brian.
He is at a private school where he get tutoring to help devlop skills to get past his losses. He's doing well overall. We are very very proud of him for being so couragous to move away from home to face his losses and work so hard to overcome his handicaps.
Posts: 663 | From NH USA | Registered: Sep 2004
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