posted
You know, I have done a lot of research on Lyme and it's co infections since my diognosis 6 months ago.. mainstream and natropathic medicines and everything in between,and I have spoken to a lot of lyme patients on this forum and others and people I have met personally.
Just one thing I have yet to find.. anyone whom has been totally 100% cured from chronic lyme disease. People who have had the disease like myself for many years, undiognoised and mistreated seem to struggle with ridding and then keeping the disease at bay!
So, I guess I would like to hear from anyone who has been totally free of their lyme for a long period of time and what protocol did you follow?
I spent the last 6 months on 10.5g a day of amxoy and babesia drugs and now have a mid line in and 2g a day of IV Rocephin, but it isn't going well and I have been herxing since the first day and bed ridden everyday since for the last 10 days since I started it.
I am concerned what these drugs are doing to me and seriously thinking about doing a 100% natural protocol through my natropathic doctor instead.
Any thoughts or stories would be greatly appriciated, thanks!
Posts: 13 | From Stamford | Registered: Jan 2007
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
My doc, Dr. H, has a natural protocol and is a very holistic physician. However, he really believes that in the beginning you have to lower the bacterial load with antibiotics. He thinks I'll be on them for at least a year or two.
After that, we will work with a more natural protocol to keep me healthy and keep the bacteria down.
I was undiagnosed for YEARS (over 30) and had three flare-ups before this one. The last one was in 1991 and this one started in 2003. I had 12 very healthy years! In 1991 I had my amalgams out, detoxed the mercury with supplements under the direction of the mercury-free dentist, and went on the anti-candida diet very strictly.
Looking back, I can see that I still had symptoms since we never addressed the Lyme, but I felt good and had a lot of energy. I've eaten very healthy this whole time, too, and was very aware of detoxification. I think it helped that I ate very little sugar and "white" foods. I tried to eat 50% fruit and veggies, raw or lightly steamed.
This last flare-up was from a long-term stressful situation. In fact, all four flare-ups were due to stress.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
That is the question. i don't know the answer. I have been afraid to think that i will have to live with these neuro symptoms for the rest of my life.
My Doc & i have had several long talks on this topic. He acknowledges that the medical community has no good answer for those poor people (like me) who did not get prompt treatment after infection.
It scary.
Posts: 213 | From ohio | Registered: Jul 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi Debs
I went 7 years without any treatments for lyme or my co-infections. My understanding is that once my lyme had become so chronic & entrenched the word "cured" is not applicable to me.
I like the word remmission better. With TX I reduce my germ load & then keep it in check with some method and this seems to reduce the symptoms to a "liveable level"
Cured...remmsission...feels the same for me. I will always have a very good chance, if I get run down & stressed to relapse. For me there is no way to kill off all of the kets. To use the word cured would not be the right choice of wording.
Sorry I don't have any links at the moment to back up my thinking but this is what I feel is true for me.
But on the other hand if you catch it early enough & get the right treatment you have a better chance to use the word "cured" .
good luck on your journey to wellness
Blessings Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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