posted
It's been a while since I've posted even though I continue to visit often.
The last few days my CFS has returned with a vengence. Granted I'm under lots of stress with divorcing my husband of 19 years.
Any suggestions?
Posts: 738 | From Colorado | Registered: Oct 2004
| IP: Logged |
Cobweb
Unregistered
posted
Provigil (script) Long naps prayers One Day at a Time
Watch out for resentment- I recently heard someone say (maybe it was on Oprah) Resentments are like drinking poison and expecting the other person to die.
posted
Maybe get tested for food and chemical allergies. Reducing sugars, wheat, red meat, dairy foods and avoiding cheese, mushrooms, all perfumed products and alcohol helped me. I only eat fresh foods and bottled spring water. I also take a good multivitamin and mineral supplement and powdered vitamin C.
Hope you feel better soon.
Posts: 67 | From UK | Registered: Jan 2007
| IP: Logged |
WildCondor
Unregistered
posted
You have Lyme right? I would shy away from saying you have CFS, if you have Lyme, because CFS is only a symptom. Anyway, have you tried methylcobalamin B12 injections daily? What do you take for your fatigue?
IP: Logged |
Yes I have lyme. I mentioned chronic fatigue because that's what I'me xperiencing. Of course we all know lyme produces many different symptoms. Lyme is likely the problem here.
Posts: 738 | From Colorado | Registered: Oct 2004
| IP: Logged |
posted
maca root from first chinese herbs
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
| IP: Logged |
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Siberian Ginseng also known as Eleuthero, B50's twice a day, and extra pantothenic acid.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
| IP: Logged |
Vitamins like B-12. I can pm you a full list of things that can help with fatigue.
How's your sleep? Melatonin is a natural supplement that may help.
Sorry you are having such a hard time on top of being sick!
Good Luck!
MommaK
Posts: 242 | From Mississippi | Registered: Oct 2006
| IP: Logged |
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Many years ago, I was diagnosed with Chronic Fatigue Syndrome and had overwhelming exhaustion for years. It was probably a first bout of Lyme, although my symptoms were very different than what I now experience from the tick bite in 2003.
Anyway, back in my CFS days, my adrenals kept "crashing" so to speak, according to the various holistic M.D.s I saw.
The one thing that would give me a boost was Isocort, an adrenal supplement.
I have no idea if that's related to a steroid, because Lyme wasn't in my vocabulary back then. So I hesitate to recommend it without knowing.
However, there is another thread going on adrenal insufficiency, and I have the books listed on that thread and they are helpful.
Good luck! Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Still searching myself but here's a few things that have helped me along the way:
Eleuthero-Ginseng whey protein powder a combo of A-Acetyl-Carnitine & selenium NADH 5 mg coconut milk & sugar free pure cocoa powder-combined source of life mini tabs acid free vit c powder
hope you can find more energy soon Blessings Dana
make sure to talk over everything first with your LLMD
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
posted
Thank yoe veryone. I also think stress is a huge factor right now.
B vitamins are excellent I'll give some of these things a try.
Posts: 738 | From Colorado | Registered: Oct 2004
| IP: Logged |
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Mepron!
Posts: 2451 | From Lyme Central | Registered: Aug 2001
| IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Glutathione has helped reduce my fatigue. B-12 is also another supplement that can be helpful. Good luck and feel better.
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
Cobweb
Unregistered
posted
I also found out my thyroid meds needed to be upped.
IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Here's another one that came to light in the last few days-
Yeast!
Been taken sporanox for a few days & have way more energy
Not a cure for lyme but may contribute. After 3 years of TX for lyme & co-infections this may turn out to what has held me back in lingering energy & other neuro symptoms as well.
Hope you can have some more energy Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Green powder mixed in juice or water. I like Natural Factors Enriching Greens, but there are lots of other good ones too, for an afternoon boost.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
| IP: Logged |
Dana what is Sporanax? Is it a prescription or something I could get a the health food store.
Posts: 738 | From Colorado | Registered: Oct 2004
| IP: Logged |
bettyg
Unregistered
posted
snowboarder,
i have no advise even though i've had fatigue really bad these l8 months, but here's my advise since you're going thru a divorce ok:
LAUGHTER, play some videos, dvds, etc. that really make you BELLY LAUGH; play them over and over to release all those GOOD TOXINS in your body!
best wishes on all you are going thru; come for support any time; we're here for you always! UNCONDITIONAL LOVE; no strings attached!
IP: Logged |
posted
Just recently, B-12 shots have helped. I only do 1 cc a week but it seems to do something. Could you have any malapsorption issues like gluten intolerance (celiac's) or leaky gut??? Lmye can trigger this. I notice that when I dine on carbs, esp. pasta, I get WORN OUT. I can sleep a weekend and not wake up.
Also, I've been getting my thyroid checked regularly as a way to monitor fatigue. I discovered that I'm HYPO and have Hashimoto's syndrome. I think this played a huge part in my fatigue. Now I take Armour Thyroid.
I try not to feel guilty about sleeping obscene amounts, and led others' comments about my "laziness" slide off. I don't know what you're abx combo involves, but you're body is engaged in a serious battle--- it needs time to renew, refresh, etc.
Posts: 390 | From Oakland, CA | Registered: May 2007
| IP: Logged |
timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I was diagnosed with CFS at Stanford Medical Center. The doctor there determined I have high viral titers and put me on Valcyte, an anti-viral drug.
There are some links here on lymenet about viral testing.
Also info at the patient's forum at the HHV-6 website.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
| IP: Logged |
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
If you cant get Provigil, you can try Ritalin. I actually like Ritalin better
Melissa
Posts: 3905 | From USA | Registered: May 2007
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
B-12 Shots has helped me with everything
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Just a pet peeve of mine, as a 15-year CFIDS sufferer before Lyme. I'm bedridden by CFIDS, and hate when people confuse "chronic fatigue" (a symptom) and "chronic fatigue syndrome" (a clinical diagnosis).
I know many here were diagnosed with CFIDS/CFS but please don't confuse it with the symptom of chronic fatigue. You wouldn't want everyone running around saying they have Lyme disease too because they are tired and can't find their keys!
With that said, I personally haven't found much of use in 15 years, though the things that have helped me a little bit are: nebulized glutathione, HIGH dose daily b-12 injections, a yeast-free diet, staying within my energy envelope, reducing chemical exposures, using infrared sauna heaters to sweat out toxins, and Nexavir (an antiviral). I second the idea that you should get tested for viruses.
Posts: 929 | From Massachusetts | Registered: Oct 2007
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Some great suggestions here from everyone.
I have found malic acid and per Dr. B. cordyceps to both be helpful.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
![[woohoo]](graemlins/woohoo.gif)
Printer-friendly view of this topic