posted
I've been treated with Doxy for the past 4 months making moderate improvements. I had seen some good sections of days. I might even go as far as to say that I had a good day mixed in there.
About two weeks ago, it all came to a screetching hault. It felt as if someone slammed a door in my face. I had not felt that bad since before my treatment begain in Nov of 2006.
I started on Omnicef 600 mg once a day. I'm still feeling badly, but hoping that I will get back on the wagon.
Can anyone releate to this?
Also, mixed in this mess is a new script for Armor Thyroid to address my low body temp. 97.0 average.
Doc says that I should be doing better in about two weeks. That Omnicef is faster acting than the doxy and that I am most likely herxing right now and will continue to do so until the bug load is reduced.
Its so hard to take a step backwards when I felt like I was moving forward. Darn!
-------------------- 26 months of treatment. And counting....... Posts: 298 | From Northeast Kansas | Registered: Oct 2006
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posted
I was taking doxy along with a bunch of other stuff and felt like you describe, somewhat better with some almost good days in there.
The next month the LLMD added Omnicef into the mix. I've been herxing ever since! It's probably been about two weeks for me. I finally have enough energy to cook dinner so my hubby doesn't have to do it, but other than that, I'm laying down all day. I can also manage to go to the grocery.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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quote:Originally posted by Visual Afterimage Man: Its so hard to take a step backwards when I felt like I was moving forward. Darn!
That has GOT TO BE the WORST thing about having Lyme disease!
You think you're doing better and then WHAM!!!!
Hang in there....it will get better!
Be careful not to take too much Armour. It can catch up with you quickly and put your thyroid into overdrive. Take it easy and be sure to have the dr check your levels frequently.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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posted
Thanks for the advice! I am feeling a little better today.
Lymetoo... he's not checking my TSH or my T3 or T4. He's going based off of body temperature. I'm on a pretty high does of Armor, but it hasn't made me feel worse. My wife on the other hand had big time side effects. She had a resting heart rate of 110 when she was on the high doses of Armor. Thankfully, he had her back down from that dose because that's a little too much strain on her heart in my opinion.
He told me that the low body temp is an effect from the Lyme. Once we have the Lyme bug beat then I will not require the armor to get my body temp back to normal. I hope he's right... its just another pill that I have to take twice a day. I'm up to 19 pills a day now. Nice!
No more set backs please. I want to feel normal again. This brain fog makes me very very weary. I think it's the worst part of the entire thing. I feel like I'm constantly under the influence of alcohol. Thats probably the best way I can describe it. Bouncing off walls and feeling very very unaware of my surroundings. It's terrible!
-------------------- 26 months of treatment. And counting....... Posts: 298 | From Northeast Kansas | Registered: Oct 2006
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posted
Body temp is thought by some to be a more accurate indicator of thyroid. Dr. Broda Barnes pioneered the method ... you can google him and learn more about it.
My temps. raised when I was using the salt/vitamin c protocol while I waited for my LLMD appt. I didn't want to just do nothing during that time! I think it was the salt. I've also read that salt/c is a treatment for adrenals, which need to be working right for the thryoid to work right.
My temps have stayed high even after two months off the salt/c. My basal temps. are about 98-98.2 in the morning; it's a whole degree higher than it used to be.
I also have a far infrared sauna, I wonder if that's helped my body temp. too. I had been taking a glandular thryoid for many years but have been able to stop, so I think your doc is right.
I hate the brain fog, too. It seems more like being drugged than under the influence of alcohol. It's more like being on Vicodin or Demerol to me. I'm social when I've had a couple drinks, and I'm not too social right now.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Good point.. maybe it's like being drugged. Its terrible and I hate it.
What about this body temp thing? Now that I'm no a higher dose of the armor, my body temp is up around 98.4, almost an entire degree higher than it's been for the past 18 months. Could this also be making me herx? I haven't felt this bad for a long time.
-------------------- 26 months of treatment. And counting....... Posts: 298 | From Northeast Kansas | Registered: Oct 2006
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posted
I really don't know, but I can tell you I haven't had too many good days since my temp. was raised. I don't think the bacteria like the warmer temperature.
The first three weeks on meds I did feel somewhat better though ... and my temp. was already high then.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Now what is going on? Last night I had almost 4 continous hours of feeling good... I might even venture to say, GREAT. I felt like myself. I had energy, I had balance, I was in a GOOD MOOD, my knees didn't hurt, and my eyes weren't playing tricks on me. I'd say that I felt like myself, almost entirely lyme symptom free.
Whats up with that? Right after I had a major set back, and switched over to a new antibiotic, I got a moment of clairity.
I'm hoping with all of my heart that this is a flash of what the future holds for me. It was the first sign that my treatment might be working. (Been treated since Nov 2006)
For those of you who have become well/remission. Does this sound familiar? Did you experience good moments, which lead to days, which lead to weeks etc? I'm hoping that it's a step in the right direction.
One thing is for certain. I want more of it! God it felt good to be normal.
-------------------- 26 months of treatment. And counting....... Posts: 298 | From Northeast Kansas | Registered: Oct 2006
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Armour thyroid was the worst for me. I now use synthroid and feel much better. As far as the relapse, I am going through that now. I recently had sinus surgery and that was all it took to set me back months. It seems that any kind of stress causes an increase in symptoms. Good luck with your new treatment, and I hope you bounce back soon.
Posts: 1603 | From ny | Registered: Aug 2006
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