posted
Can we trust the powers that be to disseminate the CORRECT lyme info for public awareness???
If so, then I will celebrate too!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
Even if they get the information right, it'd be great to help eradicate the idea that this stuff is limited in scope.
Having babesia and STARI mentioned in there is also very hopeful- most people have no idea that other diseases besides Lyme and Rocky Mountain Spotted Fever can come from ticks.
-------------------- Symptom Free!!! Thank you all!!!!
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
Even if they don't quite get the information right, it'd be great to help eradicate the idea that this stuff is limited to Connecticut or whatever they seem to think.
Having babesia and STARI mentioned in there is also very hopeful- most people have no idea that other diseases besides Lyme and Rocky Mountain Spotted Fever can come from ticks.
-------------------- Symptom Free!!! Thank you all!!!!
Good to hear that there are funds for the education - Next on the agenda - How about some real lab tests that are 99.9% accurate
thxs mags
Posts: 259 | From California | Registered: Mar 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Good morning fellow dish rags.... (hope you get some sleep mag)
Yep.. these all-nighters working on this bill stuff ain't no fun... for sure. But.. hopefully after this week it will slow down.
Now..
Am I stupid enough to think the HEALTH department will send out the best information available IF the bill passes and isn't stuck in a drawer somewhere? No.
Do I think the one million will be used wisely and in the best interest of all? No.
Do I think in the right hands the money could do MUCH better? Yes.
And that is a dirty rotten shame to have to think that way.. but tis true. No doubt.
Give ME the million.. and I could at least buy off the ticks or send them all to the south pole for a vacation!
But.. if we look at the positive side... we MAY get some warning signs in our parks which none of our groups can afford.
We may get some handout brochures free of charge for the public and the schools.. and at county fairs educational events, etc.
We may get some tv time we haven't been able to get to bring the message right in the home.
And maybe an updated web site.. and some one to write press releases.. and what ever.
And yes.... the information may be the "pull your socks over your pant legs" junk... but..
Years ago we had NOTHING. Notta. Zilch. Zero.
If by chance... back in the "old days"... there was a small deal in a newspaper somewhere in the country.. it was ALWAYS against us and our position. We would freak when they said the trash they did. It got so bad that the motto ... when we would get dumped on royally was...
"Well at least they said the word LYME."
So, is this perfect... absolutely not.
But.. we NOW.. after LOTS of hard work and persistance by the various groups in Maryland.. have a legislative group that is educated about Lyme enough to even CONSIDER the Lyme disease situation and TRY to help us.
We have someone not only listening.. but who is actively... on their own.. trying to help those who are sick and prevent others from being sick.
Will the bill pass with amendments? I don't really think so because the health dept.. in MY opinion.. would rather give up the million dollars than let the ILADS guidelines be sent to doctors. They are stubborn... and remember we are fighting the Hopkins ID ducks here.. and the editor of the IDSA guidelines.
Can I blame them for not taking the million and trying to help others? No, not really.
I wouldn't accept $500 million dollars if I was told I had to send out the IDSA guidelines. Each side is.. if nothing else.. committed to their cause.
cave--yep - hope the bill passes- maybe it will help someone. MD today maybe CA next
tincup- lots of hard work - you are doing you must be taking some special vitamins!!
i am hoping that the recent movies on TV and interview will spark more interest and determination to change things
We need another celebrity and or a top notch politician to come in close contact - (of course i am not wishing for the lyme clan to attack any one ) --- then we'll get some where
I am seriously considering sending my CDC results and the ILDA guidelines to every doc who misdiagnosed me
keep us posted
i am going to sleep now (I think) and dream about excellent lyme diagnosis and treatment
take care
mags
Posts: 259 | From California | Registered: Mar 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Cave..
You are real smart.
Did I say that? Ahhhhhhhhhhhhhhhhh!!!!! HA!
What you are saying is right on the money. All that stuff has been running through my mind too. HARD to trust these fellows from the DHMH after they've caused so much grief... and allowed this GARBAGE to continue... and are hanging on the coat tails of the IDSA.. or they ARE the IDSA.
I am trying to dig the good out of it all.. but hard to do. So no appologies needed... you are right in line.
meg..
I got a brief report back.. and am waiting for more tomorrow.
I learned it didn't start till after 5 PM.. so folks are just getting home after a SUPER LONG day!!! Poor things, bless their hearts for going and having to wait that long.
All who testified were for the bill WITH AMENDMENTS!!! GOOD TEAM WORK!!!
Except for the Health department of course! They were favorable to the bill.. but not with our amendments. Go figure. Why do you think they don't want to hand out the ILADS guidelines?
No answers yet as this is a long process... IF it goes any further. I doubt the Health Dept will bend and allow the ILADS guidelines to go out to doctors... but... NO.. actually I don't doubt it.. I know it!!! But..
If the legislators will stand up and do the right thing and REALLY help us.. that would be quite nice and would go a long way toward helping people.
If the bill goes down the tubes.. it will be ok. We never asked for it.. and absolutely don't want it if there is a chance one person would be harmed by it... and folks would be harmed by it in this condition without amendments.. as would our doctors.
Soooooooooooooooooooooo.. if it is shelved.. or stuck in a drawer.. maybe it wasn't something meant to be. Truth is.. we have our goals set MUCH higher than this.. but this would have been a nice stepping stone had it made a positive difference for patients... and the public.
Thank you to everyone who helped with the bill and made calls and wrote letters. Hang in there and when we have more details.. will let you know.
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