hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Hello lymies,
My son has been having a problem recently...he'll get a pounding heart when he's active. It doesn't take much activity to bring these episodes on. You can actually see his heart pounding through his shirt. It feels like his heart is going to explode through his chest.
He has no pain or shortness of breath. He doesn't become nauseated or sweaty. He doesn't appear afraid or anxious, just thinks it's interesting that this is happening.
He has an appointment with a cardiologist early next week. Is this common with Lyme or related to disautonomia? ...or is it dysautonomia???
He told me this evening that he had another weird thing happen recently...he felt like his heart quit beating, couldn't feel his pulse, and started jumping around trying to jump start his heart. It eventually started again; this scared him.
When he gets cold, his hands turn purple and his skin will blanch easily when you press his skin. It takes longer than usual for the color to return to his arm/hands.
Do you think all these signs are related?
I don't like the sound of these things.
I called his LLMD, but I haven't heard from the doctor yet.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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posted
i hope he is not doing artemsisnin as that can happen from that herb..if he is on it stop it now..that has happened to some of us.. eric
Posts: 593 | From long island ny | Registered: Apr 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Good morning,
I have been having the same symptoms on and off, even the skin discoloration when I am not cold.
I was thinking NMH or POTS or both.
My legs also get reddish and blotchy looking.
Wierd thing is while on doxy, these symptoms went away.
On babs treatment again, no doxy and here I go.
Hope you get some good responses.
I did receive a lot of info that was pm to me on both.
I am going to pursue this with my LLMD next month.
When I called my non-Lyme literate cardiologist, they just didn't seem to be very interested in scheduling
a tilt table test. Hope your son feels better soon.
It may help him to know that others experience this same thing.
I sometimes have a hard time finding my pulse even in my neck.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
He's on doxy & zith for Lyme.
Polar blast, he's not on artemesinin.
My son's LLMD measured his heart rate and bp while lying, sitting, and standing. There was some change, but not enough to worry about a month ago.
He said he had disautonomia and an irritable immune system.
I didn't know about the "heart pause" then.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Mom,
I just thought about this while I was in the shower.
Does he take magnesium supplements.
I had the sensation of heart skipping a few beats prior to adding magnesium.
I'm sure you already do....Just wanted to mention it.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Hi
Some of it does sound like dysautonmia. There is a huge array of things that can be caused by dysautonomia. About 5 weeks ago I posted a thread which revolved around a book I had found on dysautonomia. Here is the link:
It can cause a lot of heart symptoms, especially related to any kind of excercise, and for all kinds of strange reasons. It fits what happens to me to a T.
The cold white blanched hands could also be related, but then hypercoagulation could be an issue. If it is only his hands, it could be Raynauds. In my case it was Raynauds AND hypercoagulation. It effected my feet as well.
My skin was kind of blanced white all over with a lace like webbing in red or purple.....that was the hypercoagulation. There is lots of info posted around on this site and I have posted several threads with some good info.
The hands turning red happens to me too. I was actually wondering why it happens just recently. It happens to my feet too. I am thinking the dysautonomia.
So distressing when this happens to your kids. It's one thing for it to happen to me, another to have it happen to my children and then possibly my grandchildren. Posts: 1251 | From california | Registered: Apr 2005
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I also have the pounding heart symptom! It can happen when I just get out of bed, I don't have to be very active at all for the pounding to be very hard.
My Cardiologist knows next to nothing about Lyme, so he thinks it's Autonomic Dysfunction. I honestly don't know much about it, but I'm having the same problem!
Posts: 64 | From PA | Registered: Mar 2007
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I haven't posted in a long time but I read weekly. Your sons symptoms sound very familiar. Two summers ago I had the terrible pounding heart. I could see mine in my chest and also my pulse throbbing in my neck. It started out just happening if I walked up a flight or stairs or with some other minor activity. Then it got to the point it was all the time. I also had the mottled skin, red/purple hands and feet. I didn't have to be exposed to cold temperatures for that to happen, just cool. This was all happening before my lyme was finally dx'd after 10 long years of looking for answers.
I went through all the regular cardio tests, EKG, stress test with thalium, echocardiogram, and holter monitor for 2 weeks. All of my testing came up fine. It's important to rule out all causes and to not just blame on lyme.
Anyway, they never put a name to what was happening but shortly after I started my lyme and bartonella treatment those symptoms disappeared. I had become so used to the pounding heart that it freaked me out when I didn't feel it anymore.
I probably wasn't much help but just wanted you to know that it has happened to someone else.
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