posted
LLMD decreased dose of doxy from 400mg/day to 200mg/day and added 200mg/day of minocin for sun exposure problems and with summer approaching. THe problem is that with this change I have been herxing terribly bad with extreme nausea and everything else for 2 weeks. I herxed from doxy for 2 to 3 weeks.
Since I'm new to this, only been on abx for 2 months, is this strange to herx from the same general class of abx? And my herxes seem to last for what seems like forever.
I have backed off of the minocin and have been doing 300mg/day of doxy and 100mg/day of mino to see if that helps. It seems like the mino has added to the dizziness issues.
Is there ever an end to this insipid disease? I hate this disease, it has made my life a living nightmare. Just wonder if I will ever get my body, mind and life back.
I have all of the meds to start with babesia treatment but have been waiting to get over this herx from mino so I can go into another herx from the Art, Zith, and Mepron. What herx can I look forward to wtih babs treatment?
Any info always helps.
Posts: 188 | From ID | Registered: Jan 2007
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posted
interesting: I was told to take either Doxy or Minocin, not the 2 together.
Also, you can burn on Minocin: my daughter burns more easily & intensely on Minocin than she did on Doxy!
I had a different reaction to Minocin than to Doxy, couldn't stand it & went back to Doxy.
Any time I tried a new med or med combo, I would have a new herx/reaction. Intellectually fascinating; tells me I have spirochetes in me which react differently to different meds.
ESG
Posts: 424 | From Connecticut, USA | Registered: Nov 2003
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posted
Also: Mino works deeper than Doxy: people start out on a low dose of Mino. I was started out on 50 mg a day and was to build up to 100 mg a day then to 200 mg a day, others have started on even lower doses.
I would stay on the med I was accustomed to and then introduce the other meds - i.e. stay on the Doxy and then start the Zithro or whatever else you are waiting to try.
ESG
Posts: 424 | From Connecticut, USA | Registered: Nov 2003
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Doomer~ I have not taken Doxy and Mino together either. In 2005 I was on 300 mg doxy for a relatively short period of time.
Now, (after my long bout with C. diff) I am starting on mino...and doing it very slowly. I was basically on 100 mg every other day, I will now try to go to 200 mg every other day...
I think mino can cause dizzyness.
Good luck....Timaca (ps...did you ever contact Mayo?)
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Doomer
I started Mino 4 weeks ago and I am still herxing too-
For the sun problems make sure not to eat ANY Citrus or cranberries-
Makes the Photo Toxic reaction Much Worse--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Hi Doomer. I believe the Minocycline is stronger than Doxy. I wonder why your doctor is not switching you over to it entirely?
Dizziness can be one side effect of Minocycline. I had it for about two weeks but then my body seemed to adjust.
Any of the cyclines can cause sun sensitivity. In my case, Doxy caused extreme sun sensitivity and the Minocycline caused much less.
Minocycline can be an effective med in some cases. I hope it works well for you.
Posts: 4681 | Registered: Oct 2000
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posted
Thanks for all of the feedback. I'm not sure why LLMD did not switch entirely over to minocin. I guess he still wanted some doxy on board for lyme and erhlicia. I did notice that the sun sensitivity was lessened on 200mg of doxy vs 400mg of doxy. I just hope that it penetrates bbb and does its job.
As a side note, I started with Artemisinin today. Took 200mg and am feeling terrible with nausea, gagging dry heaving, painful muscle twitches and just feeling bad. I decided to go ahead and start babs treatment in hopes of feeling better sooner - in a year or so vs later.
This is so difficult. Not sure if I will take evening dose of Artemisinin? Don't want to over do it. I'm to be on art for 4 days with 7 days off. Then add zith and then add mepron - providing I have tolerated the previous.
I'm so sick of feeling horrible. I guess lyme teaches patience because we have no other options. Posts: 188 | From ID | Registered: Jan 2007
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posted
My llmd just did this same thing - from Doxy to Mino yesterday b/c I was so sick on Doxy. Now I'm wondering if I'm going to be worse on Mino!
The restrictions are tougher on mino, too, it seems - no eating two hours before or after (gah, how do I keep from being nauseated???), no iron or supplements two hours before or after???
I'm going to be living life according to my friggin' pill schedule.
Sarah
Posts: 91 | From East TN | Registered: Mar 2007
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Greatcod
Unregistered
posted
The tetracyceline class of drugs is water solubile which is one reason they ask you to drink lots of water when you take the drug. My technique is to empty the pills into a glass of water, stir it around, and drink that. It doesn't taste good going down, but it dimishes the exerience of nausea. Worth it. Ask your doctor if thats ok for you to try. And the nausea is not a herx, the drug is nauseating.
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lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
Warning!! You must take the mino in its pill form, and with a full glass of water. It can burn your esophogus -- and do not lay down for at least a half hour after taking it. I find it difficult to monitor all the pill times, so I somtimes take the mino with food.
I started out on 200mg day of mino ( ), and was very dizzy for the first couple of weeks. Also headaches!!
My tummy has not been the same since I started the mino(bloating, mild upset, sore) -- but hey, it's all part of the program.
I will say that I am GREATLY improved on the mino. Hope it works for you!
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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My mino warning sheet from the pharmacy is very clear - DO NOT OPEN or BREAK the pill! After reading your post and wondering if your method would help my nausea, I called the pharmacy and the pharmacist says it's dangerous to take the medicine in powder form or dissolved in water because it can damage the lining of the esophogus as tissue there is more sensitive.
Please double check before changing the method of taking ANY medicine - my pharmacist says they're usually in the form they're in for a good reason!
Sarah
Posts: 91 | From East TN | Registered: Mar 2007
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posted
I've been on Mino for over two years and I had to start off slow (50mg a week). Mino does last in your system alot long then Doxy(8 days compared to 3 days) and IS stronger then doxy by about double. So 100mg of Mino is like 200mg of Doxy.
I don't think I could have tolerated the amounts of abx your on.
Plus I have never had any problems with the sun while on Mino, and I eat citrus fruits and sit in the sun as much as possble. But everyone is different, you have to see what you can tolerate.
As for breaking the pill...... My LLMD actually told me if 50mg was too much for me, to empty half the capsule in applesause and take it that way (to cut the dose in half)
timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I am slowly starting mino....currently I'm at 200 mg every other day. (The slowly is because I had C. difficile for 11 months and I DON'T want it back! )
I do take it with food (to spare my stomach), but not with iron supplements (or vitamin supplements for that matter). I don't take it with calcium products either. I think that avoiding taking calcium and iron at the same time as mino are the biggies with regard to mino absorption.
So far, so good. I sure hope it helps my lyme.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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), and was very dizzy for the first couple of weeks. Also headaches!! ![[Smile]](smile.gif)
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