posted
Does neuro LD ever get cured? Does anyone know anyone who had neuro lyme & got better? I have tryed to get educated on LD & from what I have learned, it seems no one with neuro lyme ever recovers.
Was dx with neuro LD 1 year ago. Doxy & flagyl & now ceftin & alinia and lots of supplements.
No improvement. Symptoms actually worse (burning skin, muscle cramps & twitches, floaters & other visual problems & dizziness back after being gone for 5 months).
My doc says he "wishes he understood the mechanism for the persistence of this disease". I wish he did too. Thanks for listening to my rant.
Posts: 213 | From ohio | Registered: Jul 2006
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Have you ever been treated for a co-infection?
Posts: 1603 | From ny | Registered: Aug 2006
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posted
savebabe, I was tested for babs, bart & ericholana (sp?), and all were negative.
Posts: 213 | From ohio | Registered: Jul 2006
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
I am no expert, but I have read that the tests for babesia are not reliable (i.e., false negatives) due to the many types of babesia that are not tested for. I hope some others can join in here to explain further for the other co-infections.
Posts: 2557 | From home | Registered: Aug 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Sigh....Thought I would jump in here and hopefully give you some hope.
I have gone from being bedridden and in lala land for several years to being able to be out and about in my power chair twice a day for an hour or two.
It seemed like everytime I started a new abx, I was worse at the beginning.
But, gradually, I noticed I was getting better.
I still have a long way to go.
But, the turtle did win the race.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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WildCondor
Unregistered
posted
Yes it can get cured! It may take a long time though! Keep fighting, and eventually, with proper treatment, it will get better.
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Vanilla
Unregistered
posted
I was at Igenex the other day and heard Bart tests are unreliable too.
My neuro symptoms are better or at least at the moment they are better.
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A definite yes for my wife and I. We both had the extreme brain fog, memory loss, and the cognitive dysfunction that relates to speaking and forming sentences.
Every bit of that is in the past. No stutter now, and I am back to doing some math in my noggin.
Test negative now with IgeneX. Results due to herbal treatment, most of which is posted on this board.
It can be done.
Blue Skies.........John
Posts: 134 | From North Carolina | Registered: Sep 2004
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
yes! i had severe neuro-lyme and i am MUCH better now.
posted
In the 2.5 years since my dx, I've "gotten better" twice, only to fall down again. I was clinically dx with babs and bart, and since being treated for both (for 4 months now), I feel better than ever.
I was really bad-off. I virtually lost my life. Now, though my fine motor skills are still lacking, and I have cognitive "flare-ups," I started up my college education again (lightly), and I'm just chugging along.
Who knows when I'll be done with IV therapy, but as long as I keep getting better, I'm not really complaining. It took a long time to find the right treatment plan for me.
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I did*)!*)! I was severely debilitated and going into dementia and have been at 90.9% for years & years now*)!*)! 1 year orals, 9 months IV Rocephin did the trick*)!*)! Never did any alternative therapies excpt Artemisia with mepron and zith for Babs-
I know lots of neuro Lymies who made good recoveries (not all full revoceries remission but like me doing great) and ALL were with IM Bicillin or IM Ropcehin or IV Rocephin!!! If you have neuro Lyme IMO IV Rocephin is your best bet after being treated for other TBDS!!! EVERY neuro Lymie in my opinion should be treated for the main tbds because they are often seronegative- Babs, Ehrlichiosis, Bartonella- in Ehrlichiosis 2 of 4 people in one study who DIED of acute fatal Ehrlichiosis were repeatedly blood negative!!! Important study!!! Take care, Best wishes, Sarah from CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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