I think we have talked about this subject before. My sons (age 17 & 21) have pseudo-tumor cerebri (increasted intracranial pressure). They were diagnosed after having very high opening pressures when they had LPs.
Both had a severe, unrelenting headache for 24/7 since at least 1999. They tried meds & LPs and continued to have the problem.
Jordan (17) had an LP shunt inserted in April. He can now wake up without a headache but stills gets one when he has been up for awhile. His shunt is adjustable and they need to find the right setting for him.
Jake (21) had a VP shunt inserted on May 30th. His headache has decreased from a 10 to a 7. Before the shunt, Jake was not able to be out of bed for more than 1-2 hours. Since the shunt, he can be up all day. The neurosurgeon said he needs to heal for 8 weeks before considering adjustment to his shunt.
Jake & Jordan are both happy they had shunt surgery.
Peggy
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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posted
I have had this constant head pressure 24/7 since I got ill over 18 months ago... Feels like my head and brain are swollen and my head will pop opff... It NEVER goes away but has varying degrees of intesity.
I also hear my heart swooshing in my left ear from time to time and sometimes it lasts for days.
This is by FAR my very worse symptoms because with it comes all the weird off balance feeling and like I am being sucked into teh ground when trying to walk or concntrate on anything.. also walking makes it worse and so does any kind of bending, lifting which I can barely do anyway.
It is VERY scary and I wish it would just go away.
I DO NOT know what causes this??
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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jamescase20
Unregistered
posted
Gentimicin I just started taking...about 80 mg IMs at bedtime...omg...stirred up something!@
Got terrible right side only migraine like headache..had to stop..day 2...but...I think its working at the bugs in my head..even though they claim it dont cross bbb.
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