posted
When does the severe fatigue and all the muscle and joint pain stop. I slept 2 hours last night because of the muscle twitches and pain.
I have been on antibiotics for about 6 weeks but the fatigue is worse instead of better, I think. I thought the pain in my hands, elbows, shoulders and kneees would get better too. But that has not happend either.
The doc says to give it time. But I really need to go back to work. But, like my husband says, if I cant make it up at home for more than a few minutes I am not going to make it to work.
Posts: 347 | From WV | Registered: Jan 2007
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Hi,
Sorry that you have been having a hard time.
Fatigue an insomnia together is a wicked brew.
Do you know how long you have had lyme?
I felt worse on abx, then fatigue and pain started lifting in about 6 months; 12 more months and I am much much better and off.
My LLMD says continue abx til you are symptom free.
When I or my kids got too miserable, we cut down the dose or with my son went to MWF dosing.
Also, we needed sleep and pain meds to get through.
I'm at 6 months of treatment. At this point I have noticed that my brain function and eye sight has improved slightly. However, fatigue, muscle tremmor and pain has set in.
We are all different, but from what I am going though, sometimes your main symptoms improve only to surface new ones.
I also got new issues once I switched abx. Again, its a good sign that you are herxing.. your killing the bugs. Gotta get through it.
Talk to your doc about Provigil. It has helped me with the fatigue, but it's expensive.
-------------------- 26 months of treatment. And counting....... Posts: 298 | From Northeast Kansas | Registered: Oct 2006
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
My LLMD started me on NT Factor last month. I don't know if I've just had a major breakthrough or if it's the NT Factor, but after my last herx two weeks ago I jumped from 25% to 50%.
I don't feel nearly as fatigued as before, though I still have many of the annoying babs symptoms -- air hunger, heart palps, and Lyme symptoms. The fatigue is still there, but I'm more functional than I've been in two years.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
It can take a long time for things to even out. I also felt the same way as you when things started out. Very tired. Even after 7 months of daily treatment tiredness can creep in. So if you can take a nap during the day that is really good. Your immune system is working hard to fight what is going on so it's no wonder you are tired. Go with it and let your body have the rest it needs. Best of luck.
Posts: 31 | From Bloomfield, New Jersey | Registered: Nov 2006
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WildCondor
Unregistered
posted
If you have only been treated for 6 weeks, then you have a long way to go. How long have you been sick? Are you co-infected? What is your current protocol? Any other health issues?
It took me 3 years of treatment to be able to function, and 5 years to be able to work again.
Everyone IS different...need more info. the good news is that as long as you are aggressively treated, you can get better.
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